trying to keep sane whilst waiting, waiting, waiting........

Thinking of you Cath, oh yes the waiting room diet, that’s a good one, not quite as good asthe divorce one, but still one where food for me becomes a minor factor!

Hi there

had my second lot of surgery on 29th as planned. The surgeon said he had cut deeper and wider round the scar tissue from taking out the fibranoma in January; I have a follow up appointment on monday 12th march to get results so 10 days to wait- hopefully there will be clear margins from the dcis that was attached to the fibranoma cos the thought of a 3rd op…
i stayed in 2 nights because of drains but to be honest i felt so rubbish from anestetic and/or morphine so didnt want to move - even now i still feel ‘woozy’ but 1 day at a time eh.
I can feel a bit of an indent in my breast but the surgeon went through the scar from jan - have got steripstrips+++ then a big dressing so cant tell if scar is any longer yet.
I didnt feel nearly as panicky about the op this time tho cos it was same surgeon, same aneathetist and same nurses so felt in very safe hands.
Just glad its done…
Cath x

Hi Cath,
Hope you are feeling a little more recovered!

Sending you good thoughts for a week today. I go in on Wednesday for my removal! Had my pre-op today…

Sommer

Good luck with your op Sommer x

HI Sommer

yep feeling a little bit stronger every day - do you mean tomorrow for your op? hopw every thing goes as planned - just make sure you tell the anethitist to put plently of antiemetic in your iv before you wake up!
let me know how you get on.

Cath x

HI Sommer
good luck for you op wednesday hope they do a neat job

liz

Hi ladies,

Had surgery today, what a bloody palava! Radiologist said I didn’t need a wire, that he was going to decide how to locate it, then told me I have another mass in my armpit, after another, (my fourth) ultrasound!

Came home, after 14 hours, as my blood pressure went to 87/52, so they were reluctant to allow me home, but as I got coffee down my neck, it went up to what it was on admission, 101/60, let me home, I walked in at 9.00pm and the house phone was ringing, consultant’s secretary, asking me to go back on Friday!

Never heard of a clinic calling someone at 9.00pm at night! Onwards and upwards, thanks all for your kind words! Back to the drawing board. What was initially a “simple” fibroadenoma, has now turned into a right circus!

Sheesh!

hi sommer
how are you doing after op

liz

Hi Sommer
u ok?
cath x

Hi ladies,

I am doing okay thanks, a tad tender, but general is out of my system now!

I have an appointment at clinic a week on Monday, to get my histology on the mass they removed and to have another round of tests for the mass under my arm, which the radiologist found when he was skin marking me. I am now so confused as to what they are looking at…

What was a simple in keeping with a fibroadenoma, now seems to have gone on to be a right circus. Still smiling though…

Still chronic pain in my upper arm, hope that goes soon, I feel like I want to get in there and just remove it!

Hope all is well with you two.

hi sommer
just finished work and having a cuppa and hot x bun before retiring was starving
yours is dragging on !makes it all the harder

Im alive and kicking got my 3 month check up tues new consultant over here now suppossed to be brilliant and very nice i hope so , makes things so much easier if you feel at ease with your surgeon
she going to go throuh reconstruction options with me so will be interesting
take care liz

HI Lizzy,

Oh good luck for Tuesday… Let me know how it all goes…

Hi sommer and lizzy
hope you both ok as i know you both waiting on appts.
just thought i’d let you know how i got on in clinic today…
today was a good day - results from 2nd op found a 5mm tumour of dcis and they acheived clear margins - so no more cnacer and no more surgery - the releof is massive cos i had convinced myself they would find invasive cancer.
so now have a follow up appt booked for 3 months time at breast cinic and am waiting on oncologist appt in next 2 weeks to dicuss radiotherpay which will limit chances of a recurrence.
hope you both get the news you want at appts and i will keep coming back to this thread to see how you both doing
take care
cath x

Hi Cath

Well, I am not sure if congratulations are what you need right now, but you know what you’re dealing with!

Good that they achieved clear margins…

Yes, I am waiting on an appointment, again, I am spinning with my breast clinic, one calls me at 7.55pm, then the next day they call me again and say that they need to cancel that appointment and they will write to me for a new one!

I can’t believe how much pain I am in, under my arm, it is awful… I feel like I am carrying a golf ball under there, yet I cannot feel anything! Where the lump was removed is not so bad, dressing was changed today, and no sign of infection or any redness, just itching, which is normal. But the chronic pain? I just hope it settles down and once the histology is in, from the lump removed, I now have to go all over again another round with the clinic!

I hope you feel somewhat relieved after your news, no more cancer is good, and hopefully rads will kill the little feckers if they think of returning and multiplying again!

Thanks for dropping in, stay in touch, I hope you do!

hi cath

thats good news that they got the clear margins and dont have to go back in to do more surgery
at leat doing rads they are giving you a good chance to stop it recurring well pleased for you

sommer why didnt they remove the mass under the arm same time as the fibro / or at least have a look if they new it was there dont understand why you have to start all over !!!

I had my 3mth check today every thing went well except i have the start of lymphdemia ,i did notice my watch was leaving slight marks so am being reffered to the clinic to measure me up and show me how to massage correctly and what creams to use etc etc
dont have to go back to surgeon for 6 months I feel free again

I got my swimming form today so will go try my new swimsuits on see what they look like ahead of my holidays dont know how i feel about wearing a full swim suit but never mind small price to pay for your life I suppose

anyway good luck anyone waiting for results or tests hope all goes well for you all
liz

Hi Lizzy,

No idea, I do wonder what goes on up there in the Secret Service… According to my BCN, my hospital will not remove things until they know what it is!

Last night, I was in bed and for the first time, I was gently trying to ease the itching of my incision, when I felt (am beginning to think I am paranoid now) an oblong shaped mass in a completely different area to the incision running towards my nipple! Now, when the consultant agreed to excise what she called a fibroadenoma, she said there was another lump, which was the reason why she was placing a wire in to remove the right lump! This second lump is painless, and I asked my husband to feel it, he agreed I was not imagining it, I could tell when he was feeling it, with his face. The radiology consultant, disagreed with the surgeon and only skin marked me, where the mass was and that was when he told me that I had a grape like mass under my arm!

Aaaarrrggh, have called my GP this morning, to call me back.

Is it any wonder that I have never felt relieved?

Just called BCN, who has stated that on my notes, there was clearly a second lump!

Which seems to have been completely ignored!

hi sommer

dont know what to say for once im speechless an the mind is boggled

liz

Sommer, that is appalling. It’s bad enough going through all this without having to take responsibility for chasing up your own investigations as well. Hope they get you sorted very quickly.
Hugs,
Kathleen

HI Kathleen and Lizzy,

I am not so freaked out as hissed off with my consultant, I have told my GP I want a different consultant, which may mean another town, but we don’t care, important to get this sorted out.

When I had my first ultrasound, they only scanned the area where she originally marked the spot (at the second appointment, she clearly had not read my notes, as she told me she could not feel any lump!!!)

Because I am persistent, know my body, I know that my left breast is not right, I can see the second lump, feel like I am carrying a golf ball under my arm, and I want to find a reason for the pain. The excisional is healing nicely, but now am of the mind that the surgery I had last week was uneccessary! My breast feels exactly the same as it did when I went to my GP with the initial problem, if not worse!