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Hi Livvy, welcome to the forum ? I’ve had Tubular, can you tell us a bit about your diagnosis ? X
Hi,yeah I’ve got invasive lobular in both breasts and tubular also in my right,I’ve just got my consultation notes and only realised about the tubular after reading them,I’m obviously not paying enough attention at my appointments! It also says I’m grade 2 in both what does this mean? I’ve been so positive up until now and today I’ve just crashed I feel so hopeless. Xx
Thank you jobey & sue,for your replies I have my pre op assessment next week so hopefully surgery not long after that,I just feel like my heads going to explode with it all! My tumours are 24mm and 14mm by the way,I’m hoping your both ok and on the right road to recovery. Xx
Livvy sorry you’re distressed after your appt. Grade 2 is good!!! I am grade 3 & would love to be grade two. Stage is based on how big it is & whether it’s spread eg to lymph nodes (they can’t really confirm this 100% until after your surgery often). Grade is based on how many cells are dividing & how weird the cells look (are they like normal breast cells & are they arranged as they should be or all disorganised). I was freaked out when I got up/down graded to grade 3 after surgery, but the surgeon said it’s just one factor. They use a number of things to decide on the best treatment eg your age, size of tumour, if it’s in the lymph nodes, whether there’s vascular invasion, is it inflammatory, whether it has HER or ER/PR etc etc (there are more). They are all combined to form a general risk picture & the treatment is based on that. For example I have 2 bad things (grade 3 & HER+) & 4 good things (stage 1, not in nodes, ER+ & no vascular involvement). Each person has a different combo & no one thing is really bad in it’s own right. It’s just telling the docs if you might need chemo & if so, which one. xx