Hi there,
It’s been just over two weeks since diagnosis of two tumours in left breast both with dcis and invasive. They said it looked stage 1 poss 2 so had SNB this week and waiting for reults - anybody have any idea how quick they can come back as my Dr says it could be two weeks and got a huge knot in my stomach which I assume is normal?
If SNB is ok I will have a mx and a tummy recon at the same time. Anybody give advice on the real after effects and recovery time? I have a 12yr old with autism and a hubby who has his own health probs so worried about them too.
Thanks for listening and for being there…
Hi Dee
Sorry to hear about your dx. I was diagnosed in feb. It took 2 weeks for my results of snb to come back and thankfully had only spread to one lympth node. I had a lumpectomy and full lympth node clearance and recovery time for this should have been 4 weeks, but when results came through it was larger lump than expected so had to have mastectomy but I didn’t have immediate reconstruction as I didn’t feel strong enough at that time. I was told that recovery time would be at least 12 weeks for that kind of reconstrution though.
Not sure this is any help.
Hope all goes well
Love and best wishes chris xx
Thanks Chris, and Yes it does help - the waiting is awful isn’t it. I have to have mx because I have two lumps and they’ve told me it could be one big one but won’t know until the op. I know it’s a big op and my gp has given me a note for 3 month but said it will be longer so I’m kind of prepared for it. My mum has been through it twice and lost both hers but no recon and she’s ok now so got a lot of strength from her, but last week when I was on my own, I felt sick, dizzy and couldn’t sleep and was feeling a bit giddy so spoke to my bc nurse and she said what I was feeling was normal and so thought I’d join up on here and talk to somebody who’s been there. Thank you again; Hope everything goes well for you too. Love Denise x
Hi Dee,
I had a mx and diep recon back in oct 09 and was back to work at 10 weeks but with restrictions on lifting - I am a nurse but felt really well and able to cope physically with the job, interestingly my surgeon said that he expects ladies to be ready to return to work - depending on what they do in 5 - 8 weeks!!!. Just make sure you do as they say with exercises etc and it shouldn’t be too bad. if you want more info re diep then please PM me.
Results came back from snb in 2 weeks, which I think is probably normal but wasn’t worried too much with that as during op they had “frozen sectioned” lymph node and had told me in recovery that it was clear. Just the way my hosp does things.
Hope this helps and good luck with results and surgery.
Marjay xxx
Hi Dee
Welcome to the BCC forums
In addition to the valuable support you have received here from your fellow users you may find some of our publications useful to read to help you to understand more about your diagnosis and possible treatments. I have posted some links below where you can read or order these online:
Also, please do call our helpline for further support and information, the number to call is 0808 800 6000 weekdays 905 and Sat 9-2.
Hope this helps
Take care
Lucy
Thank you to all of you x
Hello Dee I had similar diagnosis in January and had left Mx and then 6 chemo from February onwards. About to start Herceptin. My husband also has health problems but we got through the chemo and he was great. It has brought us closer and it sounds awful but since this I now know what I have in life and who to value. After 25 years of marriage it wasn’t always the case. I am sure many of you know what I mean.
It took me 6 weeks to recover from the MX and even now the scar can feel sore and it is difficult to just feel ribs and not the breast. Do the exercises and keep them. The chemo was not as bad as it could have been.
You are in a dark place at the moment as I was and on occassion i still am. This teaches you to live in the moment as it is all any of us have. The past has gone and the future is not here yet.
Cry when you need to and then when you feel better just take joy in your special child.
Ado, Thanks for your post and kind words. Got my results yesterday and everything has changed; Op delayed as have to have chemo first and scans next week. Needless to say I’m terrified and that’s why I’m on here at this time.
Hope things go well for you,
Denise x
I am in a similar situation to you. I was diagnosed this week as having 2 malignancies - one in my left breast and one in the lymph node, which I found myself, but the smaller breast lump was found after a mammogram. I have been told I will have chemo but not sure whether this will be as primary treatment, with surgery at a later date, or surgery then chemo. No mention has so far been made of a mastectomy, but I am guessing it may well be an option for me.
I have two boys who are 8 and 2, a marriage which has been rocky for many months now, and my husband feels he is being rejected - despite deciding not to be there when I got my diagnosis, and an elderly Mum who lives with me, and went through breast cancer herself 13 years ago and had a lumpectomy and axillary node clearance herself. I lost my Dad two years ago, just after having my youngest son.
To say I am absolutely terrified is an understatement. I have bone scans and CT booked for next week, and a meeting with an Oncologist. I am lucky enough to work in a hospital and they are doing everything possible to help me, but it all still feels as though things are moving so slowly
Hi Helen,
We can all understand your worries and fears, it is very early days for you, and once you get a plan, you will know what you are dealing with.
Never good when you have no support, so sorry to hear your husband was not there for you.
I had three ops in three months, and never met my onc until after all healing, so with you meeting your oncologist next week, sounds like you will be having treatment before surgery.
The bone and ct scans are always a worrying time,l hope everything goes well for you.
Let us know how you get on.
Sandra xxx
Helen, We are in a very similar place. My mums had it twice 13yrs apart, last one last year, she has had mx each time no recon. I have a 12yr old with autism & adhd, he knows I’m having medicine and and op but that’s as far as I’ve got yet. Like you too I’m having bone scan and CT this week and petrified, not of the process but the results and the knot in the stomach just doesn’t go away does it? I met my onc last Thursday, went in crying came out smiling, but it’s a really frightening path we’re going along…
I’m so sorry about your marriage, I’ve been through divorce and now lucky enough to be married to a wonderful man, but I really feel for you and especially so at this time.
Keep coming back here; it will help you get through the day, it has for me and the ladies on here are fantastic at lifting you up when you’re down and understand what we’re going through.
((Hugs)), Denise x