Hi Everyone, I have posted on a few threads before.
My mom is currently being treated with the Tykerb/Capcetabine regime. She has secondaries in Liver originally, now in brain. Had been on Herceptin but as we know, this does not penetrate to the brain.
We know about the ‘normal’ side effects expected, but she seems to be experiencing problems with her vision and balance, especially in the mornings; she also seems to be getting very confused at times.
She had another brain scan just a couple of weeks ago and this showed there was no real progression to speak of in the size / shape/ amount of her tumours, which is why we feel it may be a ‘side effect’.
My dad and I find it quite distressing to see her like this…we are all normally super positive and feel we can deal with whatever is thrown at us…but this is different. She seems to be v frail at times and it is very upsetting.
Anyone experienced anything similar???
Lots Luv to everyone
Dawn xx
Hi Dawn, is your Mum being offered any radiotherapy to the brain? x
Hi Belinda - she had radiotherapy when brain mets first discovered - this was back in March of this year. I have read that some ladies seem to experience these symptoms after rads, but not sure how long after - 5 months seems a long time to me. We are seeing onc on Sat…but I do like to be armend with as much info as poss…
Hi again Dawn, I have 3 friends who’ve had radio to the brain…it did take them a long time to recover…I think, seem to remember it was several months…Good Luck with your Mum’s onc appointment…hope the Tykerb’s working well…I’m also on capectibine for bone mets.
xx