Finished Chemo THANK GOODNESS Had a bad last chemo, got hit by the Tax Truck, aches and pains again and no sleep. Then got really bad Oral Thrush again, 11 days this time before everything stopped tasting utterly vile, I was miserable as sin on this, all I could eat that didn’t taste disgusting was noodles! and water.
My taste buds aren’t 100% just yet, still some slight oddness but totally bearable now and it could take a while after chemo before it’s back to normal. I had oral thrush 5 out of 6 chemos, in varying degrees.
Was feeling very ill, got the cramping bowel pain again and the squits etc. Headaches etc.
Now I’m left with just utter utter fatigue, doesn’t matter how long I sleep, I still feel totally wiped out. Wonder how long this will last as it’s getting on my nerves to be honest.
Though I’m so grateful not to have pain/discomfort of chemo now.
I’m on with Radiotherapy next, got my appointment on Friday to discuss what the treatment involves and the schedule.
NOt looking forward to all the travelling and feel a bit stressed about how I’m going to manage it all but I know I have to do it.
My BCN says I should be given Tamoxifen on Friday too, bit worried about how I’ll get on with it, seeing as I had bad SEs on Chemo.
I’ve had some probs in past with hot flushes due to my wrecked hormones from PCOS and it’s not nice. I’ve already got a Chillow wrap though so I’ll have that to go at and can get another if I find that I overheat that Chillow
I’m bothered about the vaginal dryness thing as well, I don’t like that idea of having to get lubrication out at inopportune moments to be honest. It’s not something you think you have to deal with at 35. I used Preseed Lube when trying to conceive and it killed things a bit.
Well, we’ll see what happens. From here on in it should be plainer sailing. I definitely think Chemo was the hardest bit for me but I may revisit this statement later, though I hope not!
Yayyyyy, so pleased for u that u’ve finally finished chemo. U had so many SE’s,it must have been really hard for u to cope with but hopefully the radiotherapy won’t be anywhere near as bad. i’m still at the start of treatment so can’t advise on any of the further treatments ur having. But i’m sure someone else will be along soon who know’s what they’re talking about. At least u can now go to the next step & say goodbye to chemo cos it’s finishedddddddddd, whoop whoop xx
Whoop whoop - the end of chemo is a real landmark. Well done you.
I lurv my chillow - indeed I now have two! Not everyone find them good but it’s been great for me. Chatted to my BCN this morning about the joys of hot flushes - she confirmed I’d tried just about all the non-drug options apart from changing brand of Tamoxifen, which my pharmacist has just done without telling me… yet to see if it makes any difference. In the end, for me, it’s a no-brainer hot flushes or increased risk…
Can’t help on the lubrication topic I’m afraid - I have nun tendnencies in that department!
I think you will find rads a breeze after chemo. Boring, tiring with all the travelling, but actually the least of it all.
I know, I had loads of SEs, got very grim and miserable towards the end of it all. Just got so fed up of feeling awful and in pain. Feels very lonely as well. I said quite a few times to my OH that there can’t be any errant cancer cells left if I feel this dreadful - LOL.
I’m sooooooooo glad all that is OVER.
I found the chillow helped me a lot whenever I had sweat problems in the past, hope it’ll work if I get that with Tamoxifen. I’m kind of hoping actually that I don’t have any noticeable changes as my hormones are already rubbish and Oestrogen low as it is.
At the moment the worse thing is the exhaustion, the last lot of chemo knocked me senseless in the fatigue stakes. Its hard to explain to people how it feels, it’s NOT like a normal tiredness. I’ve thought I’ve had tiredness in the past but not like this. My OH was saying “Oh I’m tired too, I know how you feel” and I said “no, you really don’t, this is different, this is a core tiredness”.
Oh for the love of god… you know I always open my mouth too soon, all this positivity stuff does not work!!!
I’ve had problems with piles/anal tear too since I had the WLE operation in Marxh and I didn’t go for 4 days, not realising about constipation induced by heavy drugs, and I had the biggest hardest most painful poo from hell once I did go, with a big pool of blood on top of it.
All the piles were internal before. Well, they’ve now externalised themselves, I’ve had that many probs since TAX with diahorrea and constipation, that my bowels have been completely wrecked and from what I’ve read up on it could take a while for all this to settle again and my body to repair the damage caused by chemo.
External piles HURT LIKE BILLY-O Last night I went to the loo, took 15 mins as I’m not to strain, then it was about an hour and a half before I could sleep because it all hurt so much.
Using Scheripol that the doctor gave me, can only use for 7 days at a time as it has steroids in it and thins the skin. It also has a local anesthetic in it but you wouldn’t know as this doesn’t seem to numb me!
It’s stinging like mad, I feel like i have a heartbeat down there, stabbing pains up my rear and throbbing and pain.
I’ll have to leave it a few days before i go to the docs and beg them to stick bands around them or something!
oh u poor thing El Kat, u just seem to get it all It sounds b****y awful & so painful. I can’t offer advice, just sympathy. Sending ((hugs)) your way & hope the pain lessens very,very soon xx
I’m not a medical person so you may want to check first but I have used Emla cream on my piles about 5 minutes before going to the toilet and it really does numb the area and help to stop the pain. You can probably buy it at the pharmacy as people put it on before having tattoos sometimes, but your doctor could prescribe it too.
Had a bad last chemo, got hit by the Tax Truck, aches and pains again and no sleep. Then got really bad Oral Thrush again, 11 days this time before everything stopped tasting utterly vile, I was miserable as sin on this, all I could eat that didn’t taste disgusting was noodles! and water.
Last night I went to the loo, took 15 mins as I’m not to strain, then it was about an hour and a half before I could sleep because it all hurt so much.