Hi Ladies
Well since my last post saying i am freaked out as i have turned yellow and my eyes are yellow i decided to go the hospital, and am i glad i did they took some liver blood tests and my bilbubrin was 238 they admitted me and i got out Thursday evening, i hve been to hell and back preparing myself for the worst was a understatement i had a scan on the Monday and had to wait or the consultant to come round which was on the Tuesday, i spoke to the registrar on the Monday who was full of doom and gloom.
When the onc came round he explained that my markers were very high and i could not have my chemo that day as i was due my Gemzar.
i exxplained to the onc that the two weeks proir to chemo i had had a virus was really took it out of me and said i had taken paracetomol and beechams flu then on top of that my chemo so fingers crossed and at this pointi have everything crossed my counts will come down by next Tuesday when my next chemos due.
i got home Thursday and theyellow is going right down which i hope is a good sign even though my urine is still pretty dark.
i can honestly say i ave never been so scared in all my life and didnt think id look the same again i looked like something from a horor movie…
on top of all that Wednesday night the nurses and patients came down with this sicknessbug thats going round the nurses were dropping like flys, i was begging the sister next morning to discharge me fortunatley she was thinking the same she said you need to get home.
ove Tracey.
Hi Tracey,
I was wondering how you were. You poor thing - sounds terrible and utterly frightening. I still don’t really understand what happened. Why did you become so jaundiced? Was there any deterioration in your liver, or was it just overloaded with cold remedies and the effect of the virus?
Thank goodness they’ve let you home now - last thing you want is to catch something else. I bet you were soooo relieved to get in your own bed again.
I guess you might need to offload a bit more, it’s been pretty traumatic and isolating. Go ahead if it helps, we’re all ears…
Love and a hug
Jacquie x
Initially i think they were saying my Liver had deteriorated due to chemo, they then thought that as i had had the Cisplatin on the Tuesday that had made it worse, then they asked me if i where taking any other drugs and then i said about the virus and taking the Parcetomol and he went through the roof when i told him i had also mixed with Beechams flu which also have paracetomol in he just looked at me.
So my next bloods are next Monday as chemo is due Tuesday sooo everything is crossed that the bloods have come down.
I can honestly say its been the worst week of my life…
Tracey. xx
oh tracey am sorry you are felling so bad , i know those feelings only too well , as i said before my eyes were yellow , my pee was brown and i was having night sweats i was so ill and the first chemo i had landed me in hospital with a serious infection , to be honest the oncol said to me if i had not responded to the taxotere i would not be here now . since then after the tax and xeloda my markers are now 35 and absolutlely all the symptoms have gone . in the hospital that week i cried every day and was a complete mess .
i am hoping xeloda will work for me now alone . saw oncol yesterday and he was very pleased with my progress so a good turnaround . fingers crossed it will last .
can you make our meet on the 24th april ?
love Tracy xxxx
Hi Tracey
I dont think after everything thats gone on it would be a good idea and my mum is watching me like a hawk (Lol) bless here she knows im always an on the go party animal and it takes a lot to knock me down but this reallt did stop me in my tracks and put the frightners on me, so taking it easy for a bit is on my agenda.
However i would love to come on the next one, ant excuse for a day in London it is London isnt it?
i wish now i had never had waited for the clinical trial to start when i had progression in January and gone straight back onto Xelodia again, but thats by the by now you live and learn i wont do it again.
im off work now for a bit already bored stiff!!! and spaending money ive not got being the shopaholic i am.
well bye for now love Tracey.xx