Hi.Has anyone used cold caps?if so could I have some feed back please ? Xxx
Focus on getting through the first ten minutes as it gets a lot more bearable after that. Its too early to say whether it has worked or not for me so can’t comment on that. Take some paracetamol beforehand too. Good luck!
Hi
As mentioned take pain relief an hour before you start treatment and something to keep you occupied like a difficult sudoku puzzle or similar during the first 10-15 minutes of the cap being on - after that you become used to it.
Also remember that it is not guaranteed that you won’t shed hair - you will - but not anything like the total hair loss that many ladies are affected by. Use a sleep cap at night. Your hair will be thinner and need careful handling and it will be worth it.
I have had 5 of 6 FEC-T treatments and although my hair feels very thin to me - other people are impressed by how much I still have. Also if you are prescribed a free wig - take it anyway -as you may still need or want it just in case.
Good luck
Hi, I used the cold cap and was so convinced that I would keep my hair but unfortunately, on about day 16 after my first EC it started coming out in handfuls. Although I still did the cold cap for the second EC (much more difficult as hair was so thin) the hair continued to come out until there was no point continuing. I had thought, as my hair was so thick, that even if it did come out I would have enough left as I had been told it generally thins but my came out in huge clumps.
There was another lady who was having a different chemo regime which was more or less weekly. She had very good results from the cold cap and kept most of her hair.
in terms of actually having the cold cap on, I found it wasn’t too bad at all. You get used to the cold very quickly. The main thing is that it prolongs the process as you have to have it on before and after the chemo but it would definitely be worth it if you’re one of the lucky ones!