Very scared :-(

Hi elttiks

Sorry your membership of the club has been approved. Post away, ask any questions you like (there’s NO SUCH THING AS A SILLY QUESTION), join in with the silly stuff and the serious stuff, and we’ll be here to help you along and you’ll no doubt do the same.

We have ALL been where you are.

hugs

CM
x

I have never posted on this site before, I had breast cancer 14 years ago at 33 I had no kids then, I had a mx, chemo opted out of radio, I had tamx and zoladex without which I wouldnt have my beautiful 2 babies now 8 & 7. I have had regular check ups and done well.

Today I find out that I have DCIS in the other breast, I understand how all you mums feel because now its just a little bit different!! my oldest boy is autistic so it’s a little tricky to plan around him.

I have always tried to maintain a posotive spirit and it has helped, dont get me wrong I have also had my share of tears and fears (got loads now as I prepare to do this journey again)but take comfort in the fact that I have survived, this is not a recurrence it is a new cancer (thats the way life is sometimes) and as I undertake whatever comes my way I wish you all well and remember everyday advancement is being made, life is some journey eh??

Hi, results are back. Invasive Lobular Cancer intermediate. More biopsy today because MRI test were inconclusive. Monday appointment with surgeon to discuss operation on Wed or Fri followed by radiation, hormone therapy and possible chemo.

thanks again. Once I digest it I will be back with more questions.

take care ladies and big thanks, xxxxx

Barbamama, please don’t panic about the inconclusive results for some areas in the MRI, it’s because that scan picks up every little thing and it’s not always possible for them to interpret the scans for sure to see whether a shadow is something sinister or just a normal change in breast tissue. I had to have another shadow investigated with a core biopsy after an MRI and it turned out to be perfectly normal but while waiting for the results I convinced myself I’d be dead in a week! And I cried when I was told it was fine.

Horrible to be still in the waiting room, but at least you have some of your results so at least now you have a bit of an idea what you’re facing. Bummer that you’ve joined the club, but we’ll be here for you whenever you need us. Ask anything you like. Also good that you don’t have to wait too long before you see your surgeon, as waiting for appointments can be almost as fraught as waiting for results.

Write down all your questions because otherwise you’ll forget them. And take the time to write down the answers too, that will help you to pace your meeting.

Good luck.

CM
x

I was diagnosed nearly a year ago this week. I remember hearing the word “invasive” (ductal in my case) and feeling a bit freaked out by the word. But it just means not “in situ”: the tumour has grown out of the node or duct.

I talked to a woman this evening who had a type of ovarian cancer a few years ago. When finally removed, her tumour was 30cm by 15cm. She’s fine now (official all clear). But eek! nonetheless.

Dear Barbamama

I am also sorry to hear you have joined this club - but glad you have found this site.

I just wanted to say that I am also no longer UK based and I totally understand what you mean about different (direct) bedside manners. I am living and working in Asia and had my treatment in Bangkok. The medical standards are fantastic but the approach was definitely different. The Doctors and nurses were wonderful, don’t get me wrong, just that it is similarly direct.

Do feel free to PM me if you want to - take care and we are all in this together.

Big hugs
Philippa

Dear Barbamama and Elttiks,

So sorry you have both had to join us. Wishing you luck for your treatment. Invasive bc can still be very small and early stage and the prognosis excellent. Now that you have your dx you can move forwards with treatment along the path to recovery. Although no one wants to be dx with bc it really is something which is better dx and treated than just left. Any questions, worries we are all here and in this together x