fab news LL! SOOOOOO pleased 4 u! bit of a bummer u have 2 wait 2 wks tho. is that the norm when u may b on herceptin? im er+ so dont know bout that side of things. enjoy ur day! alex xxxxxx
Longlashes, excellent news, the best being NO NODES as firstly they won’d have to go back in and take any more, and second your chance of needing chemo is reduced.
I don’t think the consultant has any way of knowing your HER2 status at this point, so is going on the stats. I believe 25% of tumours are HER2+, so you have a good chance of avoiding Herceptin and its accompanying chemo. I’m assuming (I’ve forgotten!) that your grade is only 1 or 2, did the surgeon confirm this or is that another thing you’re waiting for?
Back in The Waiting Room for LL - what torture! - but you’ve had some of the information you’ve been waiting for and it’s been good, so here’s hoping that continues. In the meantime, LL is up for babysitting, house cleaning, dog walking and everything else to keep her mind occupied!
CM
x
OK yesterday ‘RESULTS DAY’ - What a strange day… Saw consultant who declared the biopsy as clear woo hoo! I was so happy until he said BUT 3 tumour specialists had looked at imaging and had all agreed this result was not what they had expected as it looks extremely suspicious and it doesn’t add up. So had more biopsy done ten threads taken under mammogram as they wanted the chalk (what does this mean?) and start the wait again for next thurs - been booked next week with a surgeon for results. Very sore today but to be expected just wish I knew what i am dealing with. Got to take comfort in the good biopsy result but because lump is like a sack of marbles they worried that first biopsy not true reflection of entire mass. My chin is up though and I hope everyone else ok and thanks for your replies on here feel less lonely with this extra support xXxXxXx
sorry sandi u didnt get everything u wanted to hear but thats great news they said it was clear. another rubbish wait but keep the PMA! thinking of u, love alex xxx
ps, just guessing but maybe “chalk” means they want to biopsy some calcification that may be present??? xxxxx
Either that or it could be an accent thing, and they didn’t say “the chalk”, they said “to check”! Anyway, another week in The Waiting Room for you, you poor thing.
Make a note of any questions you come up with. The first one I would ask is whether there would be any benefit in hoiking the whole thing out anyway, and checking in the path lab. That would serve two purposes, that you wouldn’t be troubled by finding the same lump again, and that they can check the whole thing, not just bits of it. Might be worth asking.
Mummysboob, you can be her+ and er+. I waited 11 weeks for my herceptin result, I had almost finished rads when I got.
hi cm, my her2 result has came back equivical. so has to be sent to hospital for more testing. have to wait 2 weeks for final resuls. im grade 2. hahahahah my son is off school so he has been keepingme occupied …my mam bless her has been helping me clean my house (NOT LIKE ITS DIRTY ) HAHAHAHA… and sandipantshell. fab news ones clear. keep ur chin up and be positive all the way and kick this twat in the but xxxxx
Hi all, have been reading this thread with great interest and am in agreement - the waiting sucks!! It feels like all I seem to be doing is waiting, waiting, waiting for more results and more results. I was really suspicious that they’d lost my HER2 results or something as when I got my results from my op they said they would be back within another week; well that was last Thursday and I’m still waiting. My BC nurse said she would chase them again. It will also determine whether I need radiotherapy or chemo and I feel like I’m in limbo and can’t get on to the next part of treatment till they know for sure - have been referred for radiotherapy anyway but no news on that either; wish them wheels would turn a bit faster!! Hope you are all able to enjoy the sunshine today. x
hi sunflower. yes seems like we are in the same boat waiting and waiting around. thats all ive seem to do since the 18th april…im waiting for her 2 to see if i have to have chemo. if i do i will deal with it. defo have to have radiotherapy…hope you get them back soon…xxx
Hello everyone 2nd trip for results today and have DCIS diagnosis bit numb but trying to be positive, US of nodes looked ok today so fab news they think non invasive, and got to go back next week to get surgery date ? 6th July is that normal time frame? Then they said Radiotherapy after surgery… I’ll be back whaen I’ve digested this news a bit more. I knew that first clear biopsy was too good to be true also they said high grade for todays result???
Originally my surgeon said I would have to wait 4 weeks for my op and when I questioned it he told me that studies have shown that waiting 2 weeks or 4 weeks for surgery makes no difference to the outcome, which is going to be excellent, so don’t worry about that. As it was, I had mine done within 2 weeks as waiting lists change all the time.
Jane x