I was diagnosed in 2019 Primary Breast Cancer, I had operation and radiotherapy, was on Tamoxifen for 5 years with a mammogram each year. 2024 September came of Tamoxifen and my last mammogram. 2026 Feb found a lump in the other breast, I have been diagnosed with Breast Cancer Primary at present awaiting PET results. The waiting has affected my anxiety so much. I have had radioactive scans, blood tests.
The hospital last year had a new unit for cancer,one stop shop, mammogram, biopsy and scans in the same hospital apart from PET scan, radiotherapy.
I think for all of us we just want to have communication, I have been chasing and have been advised the meeting is on Friday, no meeting last week bank holiday. My Cancer doesn’t think of a bank holiday.| One thing that goes through my mind is if it’s urgent they would have called me up asap. I don’t know. We just have to stay strong.
I am upset no ongoing treatment appointments afterwards to see how I am, especially after finishing Tamoxifen . Stay strong xxx
So sorry you find yourself in this situation . It is hell having BC once but having to start again is just unfair. I think you are in the worst phase waiting for results, but hopefully you will be through it soon and know what yo are dealing with. It is always better when you have an idea of the way forward I think. Hopefully, given that you have had yearly mammograms, the new primary shouldn’t be too big or advanced.
I had two primaries too, 10 years apart. I had yearly follow ups with examinations, all that time and a short 5 months after final discharge I found another lump in my remaining breast. So all that follow-up (mammograms and 2 yearly MRI scans) didn’t find the second primary!! I am now 18 and 10 years on from it all and remain very well.
It certainly sounds as though you are in a top-notch centre so you should get excellent care. Just try and hang in there until you are “in the system” and i hope things will seem a bit easier.
Good luck with it all and do keep us posted when you do get your results.
Hi @lil56 No advice as I’m brand new, diagnosed 27 march, just got my treatment plan this morning, still finding my feet and learning, Just wanted to say Hi and I feel your pain with the waiting. Sending love xx
Hi I’m new here, going to the hospital today to get my treatment plan and what stage I’m at. I’m absolutely terrified. This group is giving me a way to cope somehow just want to say Thank you.
Hello. They are having their friday meeting today for me, hopefully thy will decide.
I can only advise deep breathes.before you go write out any questions, if someone is going with you to ask them to take notes. Take one day as it comes, Take care dont forget let us know how you are doing, love and big cuddles xxx
Hi,thank you for your advice it really helped. I hope things went well for you Friday.
Thursday I was diagnosed with her2 positive. There starting my treatment soon. There’s a lot of visits to the hospital which are exhausting . Please let me know how you got on.
Hello, They had their meeting, the hospital has an app wherd test results,letters,appointments. I received a letter for meeting next Thursday.Still have no idea, so angry ,frustrated. Have no idea if spread to lymphnodes so unfair.
Hi,I hope your ok . I understand what your saying about being angry and frustrated. It’s the waiting is the worst part but stay strong just another few days you get there and you will be OK. I know its hard but try to keep yourself busy that’s what I’m doing. Two more weeks to wait for biospy results on the second breast but do you know what we will get there. Stay strong sending hugs xx
Good Evening all, Hope you are all staying strong.
I had my MDT appointment today. All test results have some back. I have primary breast cancer stage 2 grade 3. The pet scan has shown it has not spread past by lymph-nodes in armpit. My genetic test is clear. The cancer is non hormone receptor. So the plan is for pre chemo before operation, going to put med seeds in the cancer and the lymph-nodes in armpit and in another area. I have a meeting on Monday with the oncologist to advise exact treatment, take my height and weight. I was bit ahh as the surgeon who was talking to me couldn’t say what treatment with chemo but i suppose each doctor is specialised with different areas. The nurse i spoke to afterwards was very warm, understood and explained things more clearly. I don’t know how i feel at present to be honest, the appointment for Monday is good to get is started. When I was talking to the nurse I did say I take it if it was more serious , you would of called me earlier, and she nodded. I don’t smoke, drink, love chocolate. just have to see how it goes on Monday. Hugs to everyone xxx
Hi lil, got the results Her 2 positive grade 3 stage 3. Had another biospy done and mammogram on the right breast waiting now for those results there not that concerned but just want to be sure.
I’m starting chemo in two or three weeks. I’ll be honest there are days I’m grand I could deal with anything there are other days not many but I just fall apart but as I said I will get there we all will.
How did you get on? You were saying you would hear something Thursday.
I have stage 2 grade 3 non hormonal, pre chemo first cant remember the exact name. Have a meeting witn oncolgy on Mondday, have medseeds to be impacted on Thursday then chemo will start. I will find out monday what type of chemo, Hope you take care. we are all strong we can fight this. big hugs xxxx
Ah I’m so sorry, I can’t wait to hit the five year mark to get off Arimidex, and now I read what’s happening to you. Cancer so unpredictable..hopefully you’ll be around for many years, but I understand the anxiety, thats for sure
