Waiting game :((

Had core biopsy yesterday…my results should be ready Wednesday 10am … Which is six days to go… Radiologistbsaid it looks all innocent and possibly a fibrodenoma measuring5x9 mm buts needs to confirm via a biopsy… The biopsy went ok alt better than the mammogram which hurt a lot… I wasn’t aware I had a lump I didn’t realise where it was until I had the biopsy … Anyone else in same position as me ?

Hi Ashleigh,

My FA measures 11mm by 3mm, so not far off yours.

I am booked for a clinic appointment on Monday and I have opted for a removal.

I have been told that it is very rare that misdiagnosis occurs. Actually, a question, a week after my biopsy, I am finding that the pain is quite bad in not unmanageable, but much more noticable.

I have posted in the benign condition area, but there is not much activity in there…

Well I haven’t had any pain from mine… My biopsy site was a bit sore tender but now much better,sorry to hear yours is painful,makes me wonder why mine doesn’t hurt… While waiting for the results I find my imagination gets carried away thinking the worse as the lump doesn’t hurt,well I hope it is a fa as I want mine removed too… Have a good weekend and speak again next week xx

My imagination ran away with me too, Ashleigh…

The waiting is purgatory, I understand. I would have been waiting until tomorrow, but I called the breast care nurse and they gave me the results over the telephone.

I have been reading a lot about breast density and how mammograms can miss cancer in dense breasts. All of that was going through my mind, as the mammogram didn’t pick anything up with me, it was the ultrasound.

Fibroadenomas can sometimes not be painful, but we all know our bodies, and faced with the anxiety of leaving it in or having a removal then I am opting for a removal. Given my age, have enough going on with the peri menopause, without being concerned about something that shouldn’t be there.

Please remember, these people know what they’re doing, if they suspect a fibroadenoma, then it likely is one, they are the professionals and as hard as it is to trust them, we have to. I am pleased I had a biopsy, as those results were conclusive and they are 99% certain it is benign, that’s a pretty high percentage and has put my mind at rest.

Were you given the telephone number of the breast care nurse? Maybe you could call them and you could have tbe results, worth a go…

The pain under my arm could be related to something else, but I have mentioned it at clinic and hopefully, once removal is done, it will alleviate that, if not, then I know it is something else.

Call the BCN, you may not have to wait too long.

Best of luck and let me know…

Hi sommer43
I haven’t got a breast care nurse,but they said I will have to see the breast surgeon with the results in the clinic on we’d… I had a hysterectomy nine years ago and have been on hrt ever since…soi haven’t been through the menopause as yet… A bit scary as nine years is along time but like yourself we have to put our trust into the doctors don’t we … Thanks for keeping in touch and putting my mind at ease xx

Hi Ashleigh13,

Just wanted to wish you all the best, keeping my fingers crossed for you too!! Remember and let us know how you get on, take care and lots of hugs xx

Hi Ashleigh.

DO you mind me asking how old you are? Do you know that fibroadenomas are associated with oestrogen? Which is why I wondered why I have presented with one now, when my oestrogen levels are dropping? I have since found out, that I could have had this for some time and that it was not palpable previously.

The BCN’S have been a god send to me, were you not given a number to call if you were concerned about any aspect of what you were going through? I am sure most clinics have BCN attached to them, perhaps ask at your appointment, or call the clinic and ask to speak to a BCN. I am peri-menopausal.

I’m now 45… I had an ultra sound 4years ago and nothing showed up also was checked last year by gp nothing, but this year there is something I only went because I had a swelling under my armpit I have always been told it is a fatty lump under the arm,but this time it has escalated because it’s on my actual right breast upper quadrant

Right!

I can read you’re worried, it is so worrying isn’t it? I was checked over in 2007, by a GP and he found nothing then, it was just a check nothing prompted me to get myself checked and I have always been breast aware.

You had an FNA right? Which told them they suspected a fibroadenoma? I seem to recall your measurements, and that you mentioned an FA.

Is this the first time you have had anything like this? It is for me and it completely threw me. I couldn’t have gone another weekend without knowing, hence my call to the BCN.

FIbroadenomas are harmless, please be assured of that, they cannot turn benign, because of your age, similar to mine, I know that removal will be an option, because it can hide other problems and prevent screening from doing it’s job.

I think there will be a breast care nurse attached to your clinic Ashleigh, find out tomorrow, try to get as much information as you can, while people tell you not to worry, that 80% lumps are benign, that doesn’t help your emotions, because it gnaws away at you. I will keep you informed of what the consultant states to me tomorrow, and as it is my body, I have plenty of questions that need answering. I sometimes feel I am overreacting over wanting this removed, given what some people are going through, many would want my dilemma, but it is my dilemma. I want it out, most of the time, then the other part of me thinks :Why have surgery when it may not be necessary?" Will it remove the need for further screening if I opt for a removal, I simply don’t fancy being up there, before my time is due and the list goes on and on.

Your worries are hugely understandable, I can certainly empathise with you, I am not unduly concerned and while here it primarily cancer, as a benign lump, I have my issues with it. First time I have been through something like this, so naturally I am learning to deal with a different set of emotions that were not there a month ago.

As for googling, I have been given some great reading by a lady who works at a breast clinic, it is wise to search, but you have to be careful on the searching you do and read, I have read some valuable papers on the little that is known about breast pain, which is something that I have, and in my underarm and my upper arm. But at least I am armed with some good questions, it is my body and I want to sure I am fully furnished with the facts.

Hi sommer43
No I never had a fine needle aspiration… I had a core biopsy, I wonder why they never did fna on me first? Here I go again getting paranoid,radiologist said it looks innocent but needs checking with a biopsy,the breast surgeon said it could possibly be a fibroadenoma but need to double check with a biopsy… So they weren’t sure just guessing …:((

Okay.

Well with my FNA, they didn’t take enough cells, so was a pointless exercise, for me. As I had to go back and have a biopsy. You simply missed that extra time, and I agree with that, I would have preferred a biopsy.

The surgeon stating it needing checking, is of no indication he thinks it is something more. They have to be sure of what the mass is, before they can do anything, so that must not cause you any worry, it is the normal course of action.

Fibroadenomas are funny things, I think, while people state “You must be so relieved it is not cancer” I am not relieved at all, I am relieved it is not malignant, but relief would have been “Go home, there is nothing there” that is total relief.

If they think it is an FA, which are easy to spot apparently, then it likely is, they are very much one on their own. The biopsy is to rule out all other possibilities, rather than looking for something, that’s how I look at it… Remember, radiologists look at these everyday and I was told the same by mine, she had found a mass, but it looked innocent.

Thanks for replying so promptly you do put me at ease… Where a bouts do you come from? I come from a place called tamworth in staffordshire England … Just curious that’s all luckily I’m off work this week and return next Thursday what a week off eh! X

Hi Ashleigh,

Places like this are a god send, because of the anonymity, where we can get our feelings out and nobody seems to mind… I use them all the time, as for me, while the medics are the people who will sort us out, they don’t talk to our heads, do they? I suppose that’s where the “clinical” bit fits into the words “clinician”

I am in Lancashire, originally from here, moved back last year, to take care of a relative, who needed lots of help, severe mental illness. That’s been a minefield I can tell you, taking on psychaitrists and consultants, while trying to get a diagnosis for her, that took me four months to get. Why I have found the inner resolve to deal with my own treatment, consultants are professionally trained in their chosen area, but they are still human and I am not afraid to ask questions about what is going on with my body. Operative word, “MY”

I still suggest that you call the clinic and find a breast care nurse who will be able to reassure you, where I received the results of my biopsy, I simply asked them and bingo, 20 minutes they called me back. I can now approach tomorrow with a list of questions about what is going on inside my boob!

I do sometimes feel like I am dealing with the secret service around this breast malarkey…

What a week off indeed… Positive thoughts and vibes coming right down the M6 to you!

Also, so many people have told me to listen to the doctor, which I will. However, the best came from my friend, who I have been speaking to and has had 12 fibroadenomas removed, her exact words,

“Have it yanked”

Hilarious!

Hum…

I am furious!

Went to my results appointment today. After being told that there was nothing to worry about by the nurse, I read the pathology report, which gave a B3 reading on the suspected fibroadenoma.

“Good news” she screeched at me, it is “probably benign” so we are not going to do anything!

I stated to her that I wanted it removed, age, already going through peri menopause, looking after a scizophrenic mother, the anxiety of leaving it in, far out weighed the thought of surgery.

So she reluctantly agreed to examine me, and stated there was another lump that she could feel.

Surgery booked on the 7th March with a wire inserted, so they remove the right lump, and the second lump will be subject to further screening after the removal of the first lump.

I knew I could opt for a removal, due to my age, were I 22, I would have been prepared to watch and wait, however, I am not and the watch and wait process for me, is not a good option… Given my age. While I am sure it is benign, I still don’t want this in me.

I am a positive person, however, this consultant, has come out with too many probablys, not at all reassuring. Thank the lord, I have a good GP, who I am seeing tomorrow, who will go through with me her thoughts on what I should do.

Ashleigh, I hope you’re doing ok!

Probably isn’t good enough At all! Poor you how frustrating … I would still have the lump removed what does b3 mean on the pathology report… Thanks for updating me … I’m still in the same boat waiting! Speak again soon no doubt love me x

Birad ratings, are 1 = Normal, 2 = Benign, 3 - inderterminate, 4 = Suspicious, 5 = Malignant, I believe, Lulu posted that on another thread and I asked for mine from the pathology report. Part of the testing at pathology which guides the diagnosis I believe.

How are you feeling?

Thanks for that… Well tonight I’m a bit sore and uncomfortable … Where my core biopsy was done not the actual cut scar … I have 2 red lumps where the needle gun was pressed I think they are pressure marks he must have pressed hard as I didn’t feel it because of local anesetic and they have come ever so inflamed typical hope they go before Thursday as I can’t stand wearing a bra at the minute ! I won’t look good in my nurse uniform with wobbly boobs will I lol x

I have a red marks there now, which are slightly tender to touch.

I have made an appointment with my GP, about the chronic pain I am in. The consultant again didn’t offer much in the way of advice for that, but honestly, while I am not paranoid, I don’t see why I should have to live with chronic pain all the time without knowing the cause of it. Which has been more and more, when I lie down, when I open the car door, seat belt, you name it.

Have you got a list of questions to ask? I went with plenty, even though she was reluctant to answer them, like when she told me she couldn’t feel the lump, I told her she told me it was palpable, hell the woman even put the cross with her pen where it was!

I did want to suffocate her, imagine a young woman going in alone, or an elderly woman, who had nobody with her? It is shocking. I will bloody “good news” her, one minute a cheery wave out of there, the next getting her diary out and booking surgery? It is bizarre.

No you won’t, what time is your appointment?

Well my appointment isn’t straight forward either… Radiologist said to go down to the clinic we’d morning after 10… On the letter it said the results will be discussed at an mdt meeting then review me in the clinic with the breast surgeon … I will phone them up on we’d to make sure the results are there etc…I’ve got a feeling I will get a phone call tomorrow bu that’s me being paranoid again