The waiting is horrendous … two weeks before the first appointment then another week for results, your mind is all over the place the word is at the back of your head 24/7 cancer ! it leaves me for a few minites and I function normally and then BAM i fell sick and teary … you ladies are so strong and so helpful to new comers you all deserve the best of the best you are keeing me sane at the moment, bless you all
I’m the same had breast clinic today after waiting 9 days and now waiting on biopsy results even though they don’t think it’s anything to worry about something is going on as I have one very large breast that feels compleatly different to my other. Like you said this group has helped me alot iv been on here everyday since I was refered to breast clinic x
The Results waiting room really is the most awful place. I remember feeling the same last August, as strange as it sounds it was almost a relief to find out I did have breast cancer because then I could crack on with getting better!!! obviously I would have preferred not to have it but I at least had something to focus on, weird!! I took solace in coming on this site too as no question was too silly or sensitive, this place is an absolute sanctuary!
Easier said than done, but try and distract yourself with little projects until you do get your results. I sorted my wardrobe out and had a cull of clothes I hadn’t worn in 6 months and took them to oxfam. I started to write a journal and I joined a walking club. But if you feel like you need to have a slump day and a good cry, go with it and be kind to yourself you are important. Simone xxx
Thank you so much simonwithane, funnilly enough I had my cry today … had to keep myself going all week because I was at work but this morning the floodgates opened, feeling especially teary as only 2 days to go until I get the results… but in a way you are so right once I know whats what and if its kick A.se time then i know ! obviously I dont want the consultant to say its bc but not knowing is just horrendous, hope you are feeling as well as can be, keep in touch x
hope you still do something special for your birthday whatever the news. Good luck
hi,
i went with my partner last friday to see the consultant (1st visit).
They took a biopsy and mammo and ultrasound. It looks v likely to be cancer. they gave it 4 out of 5 rating, whatever that means.
We go back on Wednesday for reult of biopsy and treatment plan i think they said. seems quick to me.
Does anyone know if there is a benefit of private health care in this situation. I am worried sick about her. Anything I can do, anything,I will do my best. I just don’t knwo what to think.
any advice help greatly appreciated.
They said it was a pea sized lump, but not looking liked it spread (not sure how they know from a mammo?).
Hi sossukuk,
Im sorry i dont know about private healthcare but it sounds to me like you are doing something, you went with her, you are supporting her unfortunatly there isnt much more you can do at this point. The waiting is the worst part for you and your partner.
Sorry not much help but good luck to you both.
Tina123
Hi Sossukuk,
To echo what the others have said, the waiting is the worst part as you feel you should be doing something but ultimately until you sit down with the onc you can’t do anymore.
I was lucky to have “good” private health insurance so have had all my treatment private. I said good private health because a lot of providers put a limit on the cost of cancer care that they provide.
I know for me the difference was due to the “postcode lottery”. I was grade 3 HER2+ large tumour, so my onc wanted to attack it with aggressive chemo every 2 weeks rather than 3. For this I therefore needed Neulasta injections to build my immune system quickly and where I live they weren’t available on the NHS, so that is one thing I wouldn’t have got. I also have just finished 12 months of Herceptin. Again where I live I would have had to fight for that on the NHS, whereas there was no quibble over it.
I also needed radiotherapy and again living where I live I would have got it on the NHS but hospitals with the requisite equipment are few and far between so there tends to be a long wait. Whereas I started rads 3 week after surgery.
If you have private health insurance and are not going to bankrupt yourself, I would ask the question about whether the treatment plan would be the same if you were going private as with the NHS. If it is different then you can make a choice.
Just to highlight the differences in area, my husband’s scretary has gone through the same treatment as me over the same time period during the same time and she had all hers on the NHS. But this is down to where she lives.
Personally if there is no difference in the treatment plan and no difference in timescales the NHS has breast cancer care down to a tee, the only benefit with private treatment is if you need a particular drug or treatment and can’t have it on the NHS.
Hope this helps you.
Sam