I had my results on Wednesday. I’ve got to have more surgery on 5th September as they only got a 2mm margin and they’d like at least 10mm I was half expecting this as it seems to be a recurring theme in other people’s posts ? Then I’ve been offered radiotherapy and tamoxifen. That’s if they don’t find anything else in the next surgery. This is such a roller coaster experience and I’m finding it harder than I thought , I know others are going through worse than me but It’s just the frustration of wanting to get back to work and some normality. It always seems to get more complicated as I go along ? I hope everyone else is doing ok much love Clair xxx
Hi, sorry you’ve got to have (or have had to have) further surgery, it does start to feel like one thing after another doesn’t it? I got the results from my second surgical biospy (left side) this week and thankfully it was all clear this time around. Also, following further discussion at the MD team, they are now not even recommending tamoxifen, despite the concern at the previous meeting about not being able to get a clear 1 mm margin for my right side mx. Its a bit confusing but I’m happy I don’t seem to need any further treatment for now 
Only slight wobble is that I’ve now found a lump in my inner right arm, just above the elbow, and I’m trying not to panic that its anything bad…
Also making sure I don’t feel pressured (by myself if no-one else!) into having to head straight back in to work mode after several months of this surreal experience.
Fingers crossed for everyone’s next results and coming treatment xx
Hi Liz , That’s fab news about the biopsy and tamoxifen ?
My emotions are all over the place at the moment I feel like I’ve lost all control of everything. I’m in more pain now than after the op and I still feel shattered. I work in a special needs school and I’m in my last week of the 6 week hols so a lot of my appointments / treatment so far have been in the hols . I’m due back on Thurs / Fri for inset days then of course I’m back in for more surgery on Monday 5th I just don’t know wether to go in for the 2 days or not? I do feel a bit pressured to go in as I think everyone thinks I should get back to normal !!( it’ll help they say) I’ve got a Drs appointment on Wednesday so I could see what he says and I’ll need to be signed off for 2nd op anyway.
Have you got the lump checked out yet ? its probably nothing but it’s the worry again isn’t it ? Ive had a few terrible headaches and started thinking all sorts . Xx thank you for being here to listen to my worries xx
I think there’s this assumption that, once youve got the ops out of the way and are physically healed then its all back to normal and start straight in again with work etc. I think that’s when the emotional stuff hits again, and the strain of holding it together through all the appointments and procedures - well, that’s how it works for me. I’m seeing my GP on Fri (also got my genetic results Fri) and going to ask for some more time off - my BCN was very supportive of this when I spoke to her about it. I did get my lump checked too - they think its a thrombosed vein which sounds a bit scary but the dr didn’t seem bothered about it and said it should disappear with time.
There was a link on one of the posts here to an article about the effects of having had cancer which I found helpful to look through as then I knew it wasn’t just me having a bit of a fall apart wobble when logically you would think all should be fine. I know you still have stuff to get through but may be useful?
xx
Hi thank you so much for the link it makes so much sence. I saw the dr today who said I shouldn’t even be thinking about work and has signed me off for a few weeks. He told me not to be so hard on myself and to take time to process what’s happening. It’s like he’s given me permission and it’s a relief . Our bodies are changed so much through this my shoulder clicks all the time now which my kids find funny ? It’s no wonder bits are popping up everywhere I hope your lump goes down soon. I’ll be thinking of you Friday xxxx
My results were really positive today I don’t have to have any more surgery ? I was so relieved it’s like a huge weight has been lifted. I’ll have 3 weeks of radiotherapy when I’ve healed and we’re going to discuss tamoxifen when I get the histology results back. The consultant did warn me I’m at a high risk of it reacurring in the future but today I’m feeling better about things xx
HI Clair, that’s really good news I’m so glad things are more settled for now. Liz xx
Hello I’m new to the forum, after a mamogramme in April I was found to have high grade, wide spead DCIS. I had a mastectomy on 2nd June and am now waiting for a second Elected mastectomy on 14th October. I first came to this forum 6 years ago when I had invasive bc. My treatment then was WLE, rads and five years of tablets, which I finished in September 2015. Feel like I’m back to square one at present.
Hello I’m new to the forum, after a mamogramme in April I was found to have high grade, wide spead DCIS. I had a mastectomy on 2nd June, for which I had no choice, it had to be done. I am now waiting for a second elected mastectomy on 14th October. I first came to this forum 6 years ago when I had invasive bc. My treatment then was WLE, rads and five years of tablets, which I finished in September 2015. Feel like I’m back to square one at present.
Hi Issytay,
I’m so sorry to hear news we’ll all be here to support you through it. I’ve also got high grade DCIS and had to have 2 wle operations to get a clear margin I’m now just waiting for my oncology appointment for radiotherapy. I’ve found this forum a life saver at times and I love the fact that there is also humor around which I’ve definitely needed at times. Sending you love and strength Clair xxxx