Hello everyone, In the nicest possible way can I say that I didn’t want to meet you, but after treatment for primary bc December 2006 to June 2007, I have just been diagnosed with bone mets in left arm,spine and ribs. Well I wanted retirement but not on these terms. And talking of terms looks like I won’t even finish the Summer one as chemo (taxotere) starts again in 2 weeks.
The worst bit is going to be telling my youngsters (27 and 25). We’re delaying it as my daughter is just going on a week’s holiday and I’m not going to spoil that when there’s nothing she can do except fret. It’s a colossal bummer isn’t it and to say that I’m monumentally p****d off doesn’t begin to cover it!
I’m sure I’ll be on here again soon, but, meanwhile my thoughts are with you all as I gird my loins for yet another fight back…
teacherjy
Hello teacherjy,
Welcome back to the BCC discussion forums, but I’m sorry to learn of your secondary diagnosis. You’ve come to the right place for support as the users of these forums have a wealth of knowledge and experience between them. I have put for you below links to a couple of BCC’s publications which I hope will help you. You may also find the secondary live chat held on Tuesday evenings 8.30p.m. to 9.30p.m useful and you will be more than welcome to join in, just follow the links from the home page.
Secondary resource pack:
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/2
Secondary cancer:
breastcancercare.org.uk/server/show/nav.718/changeTemplate/PublicationDisplay/publicationId/6
Kind regards,
Jo, Facilitator
Hi Teacherjay
So sorry about your diagnosis and wish you had got the good cards.
Take Care
Jane x
Hi teacher jy
I cannot disguise the fact that this is bloody awful, - having said that there is a great deal of hope these days, especially with some of the new chemo’s and meds that some of us are being treated with, so don’t give up.
It’s always difficult with children however old/young they are, but I found the most significant difference is the degree of informationthey MAY want. Two of my children 19 and 24 want to know everything whereas my 18 year old wants to know nothing. I try to keep up to speed for the other two. If however that is not your way of dealing with this you can always refer them to this site.
I wish you well and take very good care.
Hi teacherjy
Sorry you have to join us on the secondaries site - somewhere we’d all like to avoid but BC doesn’t listen to us does it? I also have bone mets, dx last April, and have found this site full of information, support inspiration and friendship -plus a few giggles along the way, which I hadn’t expected. I know how you must be feeling right now and all I can say is the shock and upset does seem to get better over time. Obviously there are down days but also a lot of up days as well. I also felt better to cope with things once my treatment plan was in place and even more when I started treatment. I had chemo after dx and this will knock you for 6 but it is very do-able - just be easy on yourself and listen to your body. There is a wealth of information on here from all of our experiences so make sure you ask as many questions as you need.
Take care
Nicky x
ps I also have children aged 18 and 20 and that was the worst part, telling them. It is difficult to judge how they feel at times and, just when I think they are coping, I get an outpouring of tears - not easy and I wish they didn’t have to go through this with me.
Teacherjy I have sent you a pm.
Clarabelle xx
Thank you everyone for your kind and thoughtful words. Have just got back from a weekend with my daughter when I told her - keeping it light and as cheerful as I could. She’s not daft and will come to a greater realisation but better I think to do it at her own pace. My husband has done same for my son so now it’s ‘official’ and I have to buckle down to the treatment - 3 more days trying to be normal in a classroom then off we go - ho hum.
Made easier by being able to share here - thinking of you one and all - let battle commence. teacherjy