I hope you are well, no matter where you are in your journey.
Just wanted to know what people’s follow up routine is like. I had ER+, HER-ve breast cancer, nil lymnph node involvement but some possible vascular invasion.
Here is my journey so far:
Breast screening clinic
Lumpectomy (wide local incision)
Initial oncologist appointment for radiotherapy
Radiotherapy (15 plus 5 booster)
Oncologist appointment post radiotherapy.
Here’s my issue: I’ve been discharged from the oncologist clinic and will have yearly follow-up with surgical team which run breast screening clinic.
My concern is having nil onocologist/medical input especially regarding tamoxifen etc. When I had an issue regarding birth control, for example, my GP asked me to refer to my oncologist. Now that I’ve been discharged what do I do?
What are other people’s experience of follow up care? Please let me know. Thinking of putting a complaint in as I want to have that support for the next 5 years or so. It means seeing me once a year which I don’t see as an unreasonable request.
Please let me know!