Hi Butterflies
Hope all is well with you all and family/work issues are becoming less stressful for you all, nice to see you posting again Anne 
Just got my girlie out of hospital and hoping this will be the end to all her trials she,s faced this past year…
Still suffering with my knee made more problematic from climbing stairs all day to attend the aforementioned should,nt really be smiling as I,m in agony and now on sick for the next few days… Really need to rest it and my car going back into the garage gave me the kick up the bum to finally do just that!
Hope everyone managed to miss the storm? We had torrential rain first thing Monday then it stopped and we got the wind then by 4.00 the sun was out… Crazy day!
Really thinking of questioning my meds when I go for my check up in December… I,ve never suffered with so many aches strains and painful joints 
I,ve tried to carry on but I,m honestly sick of it now and if they can change it to something less harsh on the joints I,ll be happy!
Also my eye sight is deteriorating and for the first time in 7 yrs I,ve needed a stronger prescription, tho I suppose that’s just old age creeping on? I decided on varifocals… Big mistake I,ve walked into door frames missed steps and tonight didn’t see the corner of a cupboard looming and nearly knocked myself out!! So they are going! And I,m having ordinary lens put back in!
Moan over just feel I,m going up the creek without a paddle lately… Sigh!
Flutter gently Butterflies and wrap up warm xxxxhugxxxx
Hang on in there Doz! You got Vicki out of hospital - I must have missed something! Def mention your problems with joints at your next appt. - it’s not funny! Varifocals take a bit of getting used to… couldn’t do without mine now… anyway… big hug
EJane - your poor brother/kids… Behaviour may be fuelled by drink, but you ain’t got good mental health if lie in front of a train! To be honest, if someone really wants to end it, there’s nothing anyone can do… sounds harsh, but it’s true… big hug…
Janice -how are you and Phil doing?
Our lovely new chapel was flooded on Sunday afternoon… sluice blocked two floors up… that overflowed to the floor above, where they’re doing building work, so no builders were in Sat/Sun to notice the increasing depth of (brown, smelly) water… it poured through to us (and a few other places too). Fortunately I was in to take a memorial service, so could put buckets/waste paper bins out to catch the worst of it… and, equally fortunately, the service was elsewhere… Ended up mopping it all up afterward with packets of paper towels… worried in case the new wood flooring lifted. Two moslems stopped to help (passing to the prayer room) which was lovely. It all dripped in my hair, on my best (dry clean only) suit… we were due out to a Ruby Wedding tea party… they knew we’d be late, but we were very late, as I couldn’t go without having a shower and complete change!
Got a friend coming tonight who’s got to the final 5 in the Daily Mail’s Inspirational Women competition - looking forward to hearing all about it!
Love, spoons and hugs to all who either need or want them…
chapel survived unscathed really… the architect (about whom I had very little praise at the time) specified a really good quality flooring, and apparently it won’t warp or lift, so that’s great!
Great to hear Phil’s doing OK Janice…
Doz… you’ve gone quiet… are you OK my friend?
I’ve been quiet too on the forums, as I just haven’t had the time to keep up/catch up… day off today (woo hoo!) Tomorrow is hectic, so I’m making the most of today…
love and hugs… look after your fragile wings in the wind and rain of life…
Jane
Hi Flutterbys xx
Had a rare old couple of weeks and some enlightening but annoying news for my girlie!
Firstly we changed her Colitis consultant as he had messed her about so much with taking 16 weeks to sign a new prescription which the Rheumatologist had prescribed which left her on Steroids for all that time… Plus she never felt comfortable with him, he was always stroking her arm and being a bit familiar. So we changed to another! He spent an hour with her going through all her history and notes etc., and the end result… Not Colitis as such bur Self limiting Colitis ie brought on by outside influences, stress spicy food etc! Looking back her first and only big episode was 2 weeks after my diagnosis and she has,nt had one since but has been on some terrible medication, one lowers the immune system drastically the other plays havoc with your joints!! Looking back again… Discitis is caused by an infection which normally our body can fight off, but due to the meds she was,nt able so it attacked her spine! She has now had 2 foot ops for corrective surgery on the joints in her feet! Are you seeing the picture because of the Colitis diagnosis she has suffered 2 yrs of hell with the side effects from all the meds which it seems was unfounded!!! She has now been put on the correct med for severe IBS and has been weaned off the others… Could this be me getting my girlie back? Her last foot op is coming on well and her stitches come out in 2 weeks
I had another scare with floaters and flashing in my other eye last week so spent a few hours in the Eye Hospital where they anaesthetised my eye and said I had another retinal tear but again not serious enough to laser, so I,ve now got floaters in both eyes that are like smoke rings that meet in the middle… It’s not to bad but if I look at something bright they drive me bonkers!
Just finishing an annual leave week that has seen me spend more time at the hospital than I would have had I been working sigh!
Knee,s on the mend and physio app, came through for Monday… So I might just ask them to give me an all over back massage
Afghans home on Wednesday for 2 weeks so our Xmas is going to be spent in November before he goes back he wants to do an Xmas dinner at his house so I,m really looking forward to that but it meant I,ve had to do my Xmas shopping early… Soooo I,ve finished he of course had lots of things bought for his house including new bedding sets (OMG how expensive are they) a wheelbarrow and lots of gardening tools… A bit boring but he was in need and for Vikki I,ve bought her a private number plate as it’s her birthday in Jan and… Once her foot is healed she is buying another car 
My sister is doing well, she will have to live with the tumour but all the signs are that it has stopped growing and her abscess is well on the way to healing
Could this be the turning point for us all… I will not hold my breath but one can hope!
It’s very quiet on here but I am keeping up with you all when I can and hoping all is well and things are settling for everyone, happy to hear there were no problems for your floor Jane and hoping everyone’s problems are now small ones, also good to hear about Phils recovery long may it last Janice
It’s sad not being able to see other posts when replying and my poor old memory ain’t what it used to be but sending love to every Butterfly and the proverbial hugs and spoons xxxxxxhugsxxxxx
Vicky will love that doz brilliant idea!?? Just back from theatre. Mousetrap was good. It thi m I prefer my musicals! Nite nite x x.
Hi Flutterbies
I haven’t posted for a while…lots going on BUT the good news is that my brother is finally moving out next week. He has got a flat so he and the boys can have a safe, calm place to live. I’ve been scouring freecycle for household items for him plus friends and work colleagues have just been so helpful…so far I have a cutlery set, towels, crockery, table lamps, rug, canvas wardrobe, bedding…it sounds like the generation game…all I need now is a cuddly toy!! Sister in law is still drinking and is up in court a week tomorrow to be sentenced for drink driving. She could get a prison sentence but more probably it will be a ban, a fine and community service; which will be interesting if she is still drinking! I’m going to see my brother next week to give him what I’ve collected and to help him sort the flat out.
Some more good news is that I’ve now got a beautiful tom kitten, a british blue called Iolo; he’s just so cute.
Anyway, hope everyone is okay; flutter gently
Jane xx
Bless you Jane what a thoughtful sister you are I,m sure your brother will be over the moon… I wish him well on his new life and hope him and the boys settle quickly… I,m sure Lolo will too xxxxhugxxxx
Ah Janice I,m sooooo pleased for you and yes it’s about time something positive came along for you Butterfly xx
I,m sorry to hear the problems your having with settling into your job honey it is still early days and not what your used too, they do say a change is as good as a rest… And sometimes we do need a change, maybe it’s just not what your meant to do so perhaps looking for something different may be the answer??
I know I,m not happy with the politics around Nursing anymore but I could,nt leave because of that, I would miss what matters most, the patients… I think that if you look back and see why you were,nt happy it might make things a bit easier for you to move on xx
My boy came home last night I did a night shift monday night and because he was due home this morning I stayed awake all day so I could sleep last night and be up early enough to meet him off the train from Manchester at 10… Little tinker got the earlier flight and arrived home at 10.30 last night to surprise us… Guess who was zonked out at 9 last night and I missed his homecoming surprise tho I did wake up at 8 and we got to cuddle this morning ahhhhh! So good to see him again we spent the day gardening at his, it’s been beautiful, quite crisp but really pleasant oh I,m going to suffer tomorrow, we moved about 5 ton of soil to start 2 rockery,s and tomorrow were going to attempt to put the rocks on and go buy some plants I,ll leave the rocks to him and tell him where they need to be I,ll do the planting!
Hope everyone,s well and it will be so nice if we are all getting there
Love and hugs as always… Flutter gently Flutterbys xxxxxhugxxxxx
Hi flutterbies
Anne-hope you are settling into your new job; it takes time to do this and get to know the new people you are working with. Where I work; all 4 psychiatristsleft this year and I’m really missing them…that old saying is so true, you don’t know what you’ve got until its gone. The 3 new locums are sort of distant; they don’t come and have a chat like the others used to and work just isn’t the same any more. The advert has just gone out for the permanent posts so hope things change for the better then.
Doz - how lovely to have Dan home again
Just wondering if anyone has heard from Emmy; she’s gone very quiet
My brother got the keys to his flat yesterday and is hoping to have all his stuff moved in by next week; he’s got a lot to do as he’s starting from scratch. I’m going up on Saturday to take what I’ve got.
Anyway, as you can see from the time on this post; I’ve woken early again! Flutter warmly today
Jane x
Hiya flutterbys, sorry I haven’t posted for a while just had stuff as you do and I funny enough Anne had a bit of a do with the boob. Had a knock and didn’t really think about it but luckily was having lymph drainage a couple of days later only to get a gentle telling off for not phoning and going earlier to see my therapist. I had a swollen boob,shoulder,trunkal and neck up the one side all caused by the knock!! I was asked if I had been feeling ill and advised to go straight to GP if I did or anything got hot funny it was only then I realised how silly I had been but I think the ostrich syndrome kicked in! I wear my bullet proof vest and sleeve but have now been advised to try and get prescribed with a bolero type sleeve to help with shoulder and under arm so looking like I will certainly look like one of those mannequins in local chemist covered in every type of elastication possible, attractive I don’t think!
Never mind I am grateful to my therapist as she helped sort it and has shown hubby how to help me with shoulder and back and slowly getting back to normal ??? Whatever that is!! Anne I have had it in my boob almost since my op but didn’t know that it was why my boob was lumpy,I was told by the new surgeon that he didn’t like the look of it and I went into panic mode but my mammo showed I was clear. So on my first app with the therapist whose name I got from the lympho site she tells me it is from lympho and I had a soft boob for the first time in a couple of years!!! I now know how to do it myself but go monthly to make sure it’s all in working order,sadly I had to go private but it is the best investment I ever made as it helps with my Fibro too so win,win all round
Well I hope everyone is well and keeping warm, it’s been really cold here but they have said it will warm up a bit for the middle of the week? So glad you have had Dan home Doz and Xmas at any time is lovely! Janice so glad things are plodding along which is all any of us want.Jane what a to do with your poor floors ugh! Horrible stuff,my son had a down stairs loo in his previous house and that was how they knew the floods had arrived during 2006! It came up through that and he was totally worried about it then poor beggar had it happen twice more before he called it a day and moved!! So cold weather around here is fine even snow but not rain!! We made headline news on SKY the whole of those days!! It’s a beautiful place and it was so sad to see it all ruined but thankfully it has all come good and they all have flood gates and defences so hopefully it won’t happen again.
Right enough rabbit from me I hope you are all well and I am sending the usual spoons,love and hugs Em xxxxx
Oh my it’s ccccold
Good to hear your getting that poor old booby sorted Em I hope the wrapping comes with insulation ready for the winter… I,ve been working nights and turned the heating down at home finished yesterday and forgot to turn it back up so this morning that’s my first job!!
Had a fantastic pre Xmas day at Daniels Vikki “loved” her number plate and Daniel was over the moon with his house presents bless him he got me a voucher to spend at my favourite store… I am going to have fun fun fun spending it eeeeeek! I was,nt going to give Vikki hers till Xmas but she,s seen a car so it seemed appropriate to let her have it now it’s been wonderful having him home again but it’s passed so quickly… And he,s going back this week till next March/April but he,s decided come July 14 that’s it he,s ending his stint there and coming back to work in the U K yaaaaaaaaaaay
Still seeing physio re shoulder each week she,s really getting into it and the pins and needles in my hand is lessening tho she said it’s going to take time and work with having had it so long, round 3 in half an hour!!!
Started with a tickly cough yesterday and the old nose has started today oh woe is me! And we have several patients with a tummy bug… I guess it’s that time of the year again
I have my annual vist to the boob squashing clinic in 3 weeks and this year I hope they get it right? I have to see the clinic who are doing the follow up on Letrozole for tests this time which should be done yearly due to being on the list of people willing to be tested… Last year they forgot and put me in the survivorship clinic by mistake, and I didn’t get to see anyone! Thankfully it was picked up and this year I will get my follow up!
I hope everyone is well and keeping warm… Time to get ready to face Atilla the Hun at physio she,s lovely really but by heck she knows how to get at those muscles!!!
Flutter gently Butterflies and stay well xxxxxxhugxxxxxx
Hi flutterbies
Anne - I am like you; I found my lump on christmas day 2 years ago and last christmas I just couldn’t do christmas and so didn’t! We had a very alternative day at home and it was lovely to be free of the expectations of the day. This year I feel better and christmas doesn’t hold so much anxiety for me; I am having my aunt over for a few days and the family is coming to me on the Friday after christmas and I am actually looking forward to it this year. What a difference a year makes. I know there will be moments though where I’ll be wobbly but if I compare myself to this time last year when I would cry in the car to and from work and felt panicky; I am so much better. I’m enjoying choir and we are getting ready for christmas events and singing some beautiful songs like the The Angels Carol by John Rutter; they’re very uplifting.
My brother has finally told his wife that he is moving out a week tomorrow, she seems to have taken the news alright he says; but I think she will react at some point. Anyway, at least they’ll be out and will have a calm, peaceful place to live; their lives has been awful for so long.
Anyway, got to go; flutter gently
Jane xx
Hi everyone; it’s very quiet on here; just checking you’re all ok?
Jane x
Hellooooo Butterflies
Quickly caught up with the last few posts before I intended going to bed… Has,nt happened
Done quite a few nights and now just can’t get into going to bed at the normal…ish time so what better time to come and post
Afghan went back 2 weeks ago and it gets harder saying bye I stood on the platform as his train pulled out and wept… Came home and wept some more, had such a lovely early Xmas day with him and his new girlfriend along with Vikki and my sister, bless her she made it and it was wonderful!
Since then it’s been nights and looking for a car for Vikki and yes she found one just need her to get this protective shoe off since her op and she,ll be good to go… Which means… No more taxiing yaaaaay!
I,m now on annual leave and today started decorating my sisters bedroom, which was in dire need! Ceiling and 2 walls done, tomorrow one more wall glossing then I can paper the one remaining wall, she does,nt know yet but I,m doing it for her Xmas present
Things are looking up with Vikki since Daniel went back she has been house sitting at his, she is managing pretty well and it’s given her an incentive to strengthen herself up, she,s doing well so fingers crossed it won’t be long before she can start job hunting she can’t go back as head chef as she would,nt be able to do the lifting so it,ll be a complete job change for her, it has been strange at home as I,m rattling round on my own, she has Ben most of the time with me working nights so it’s not only quiet but quite strange not having my pooch it’s tidy tho so I should,nt complain ha ha!
2 weeks to go for my 3rd yearly check up Gulp! It’s come round really quickly, and it does make the old tummy churn a bit… But in the bigger picture I,m over half way there!!
It is very quiet on here but a busy time for people so I,ll just add to Janice,s wishes and hope everyone is good… So pleased to hear Phil is doing well and the realization thing, we can all empathize withit does take time to catch your breath again after the trauma of it all but I hope things keep improving for him and yourself it’s been a long haul for you both xx love hugs and spoons for everyone flutter gently and enjoy the build up to Christmas this year xxxxxxhugsxxxxx
I put my tree and lights up last night (after finishing my sisters bedroom to try to get a chrismassy feeling but knowing I,m working Christmas Eve and Boxing Day has taken the edge off it all so Christmas Day is a PJ day and feet up with Vikki… Can’t think of anything better!
I hope the scan goes well Janice love and hugs to you both and big hugs to everyone else xxxxhugsxxx
Hi girls
Christmas is just a day…that’s the thought I hold on to. I’m so much better than this time last year when I was anxious and tearful about it all; I still have my moments though when I look at myself in the mirror and think why has this happened to me; it doesn’t seem fair. What is helping me is my singing; i come away from choir practice feeling good. We have some wine, gather round the piano and sing and laugh and that’s the best tonic.
Anyway, got to get ready for work and after work some of the girls and I are off to the cinema to see Catching Fire so looking forward to that.
Flutter gently
Jane xx
Merry Christmas Flutterbys
Just thought I,d pop on to tell you I had my 3rd year check up yesterday and within 10 mins had my results
ALL CLEAR… Yaaaaaaaaaaaaaay
I thought our thread was in need of some happy news for a change, instead of me moaning and complaining so my message to myself is “be happy with my lot” as it won’t change, been to hell and back over the last 3 yrs but now it’s time to pick myself up dust myself down and be thankful for my life
I wish you all sunshine smiles clear results and a very happy Christmas and ALL the very best for 2014
Bless you all big hugs to all the Butterflies who travelled this journey with me and for putting up with the down times I don’t know where I,d have been without you all… And most of all to the friends I made along the way… Love you all xxxxxxhugxxxxx {>¥<}
Hi Gilly
Merry Christmas right back at you and a really really good 2014
There does come a time when we have to try to put it all behind us and be thankful for the days ahead, it probably won’t always be easy and the legacy might always live on but hand on heart I will move on and get my life into perspective bless you for a lovely post, good luck for your future xxxxhugxxx
Helloooo! Doz that’s a great Xmas pressie for anyone so happy for you!! Janice it’s all stepping forward hopefully from here on! I too feel it’s time to put things into place and to be honest I have made some amazing friends along this journey and looking forward to a more positive year for us all. We are going to our son’s for Xmas and staying over from Christmas Eve to Boxing Day it will feel strange no cooking!! We have been informed that whilst dinner is cooking we are off to the local to meet up with some ex colleagues of mine (son works with them now) one of them is an utterly gorgeous young woman who had a brain tumour which was successfully treated and is such an upbeat person that I know it will be fun as we were totally bonkers together at work!! She is planning (fingers and toes crossed) to get pregnant this coming year and yes her other half is excited too! I am starting to feel that positive vibe since seeing my lymph therapist who has made such a difference that I am feeling brighter
Jane I hope that you haven’t overdone it as I know it’s a busy time for you sending our flutterbys my best for a wonderful Xmas and peaceful New Year sending the spoons, love and hugs along with the hand if it is needed take care my friends xxxxx
Dashing through the snow…well, rain and wind to be precise!! We’re having a family christmas at home and my aunty Moy is coming to stay with us for 3 nights so got to go to The Wirral on Christmas Eve after work to fetch her. Then the rest of the family is coming over on the 27th so really looking forward to seeing them all and having a few laughs.
Just wanted to wish all you fantastic flutterbies a very Merry Christmas and a Happy New Year
Love
Jane xx