I’ve just been diagnosed with bilateral BC. I know I’ll be losing the right breast and do want some reconstruction - flap of some kind. I also need at least a lumpectomy on the left. But they seemed to think I would need breast reduction on the left if I am lucky and it can be partially saved. Whilst I know without reduction I’ll be incredibly wonky I would rather have something that worked and was wonky, rather than lose all sensation and be perfectly matched.
I just don’t know how to make this clear. I’m talking to the plastic surgeon tomorrow. I think there is an assumption we want our boobs to just look perfect, but that really isn’t the case for me. I don’t wear dresses at all or low cut tops as it’s just not my style.
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I suppose I should add to this - one of the biggest issues for me is I assume I will never have/want to have sex again due to lack of sensation. This is made doubly bad that my wife (I’m not sure how many gay/queer women are on here) has also had an elective double mastectomy due to BRCA2. I just assume my sexual identity has now gone forever due to the proposed surgery. Mostly they just keep talking to me about what it looks like and not what it does. I really can’t understand that.
I would say contact your BCN but you may not get hold of them in time but I would advise speaking to the Nurses on the helpline here on 0808 800 6000 open 9am to 4pm weekdays and 9am to 1om on Saturdays . They may be able to tell you if there are other reasons aside from cosmetic to do breast reduction and if not help you to get your point across tomorrow . So sorry that you find yourself in this situation xx
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Such a long time ago I wrote this - feels like forever. If anyone comes across it again I did have the reduction and I have kept/regained feeling in my nipple. In some ways it is more sensitive than before!
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