Hi
Had my app on Tues, mammo and scan they had some concerns so they did biops, now its a waiting game i am worried about the results not sleeping or eating much, i have been given a date to go back but will they call me if all is ok and dont need the follow up app…
tina
Hi Tina, the waiting is the worse part - I went on 20th Jan for an ultrasound and they ended up doing a mammogram and needle biopsy at the same time and I then had to go back 27th Jan for my results. Unfortunately (and please, please this is not being said to worry you) but I did have breast cancer, however please bear in mind 90% of the lumps are not cancerous, I have just been unlucky. I’m going in on Mon for the lump to be removed together with tissue and node then back to the waiting game again for me…Its hard to say try not to worry cos I know its very hard, I’m like you not sleeping, eating etc. Keep your chin up and I’v got everything crossed for you - please be sure to let us know how you get on. I’ve only just joined this group and have found it to be a tremendous help. Take care. X
Hi Knoxybabes
Thankyou so much and will try to bear in mind, Hope all is ok on Monday. This is my first day on the forum my app is not until 14th so i have a while yet but fingers crossed for you please let me know how you get on. Take care
tina x
Hello Tina,
Sorry to hear that you have to play the waiting game. How long will it be until your appt to get the results? I hope it’s not too long as this really is the worst part. In the meantime, keep breathing and putting one foot in front of the other. I hope the time passes quickly for you and that you’ll get that magic phone call very soon to say you don’t need to go back. But if you do, you know where we are to help you through it. Fingers and everything else crossed for you. Stay strong, Angelfalls xx
Hi Angelfalls
Get the results on the 14th but hoping i get a call before, It’s all been so quick up to now went to the doc’s last thurs got home 3.15 by 3.30 had app for Tues now the wait, back to work on sat that might help. Thank you so much. It might be my first day on forum but it helps to know that its normal to worry i dont know i don’t feel so alone.
Thank you again
tina x
Hi Tina, many thanks for your lovely message - I’ve only joined the forum this week and to be honest its been a godsend - learnt so much in just a few days and feel more positive - its the waiting for the results thats the worst, after my op on Monday I get to know if its spread on Friday 17th - how I will cope is beyong me!! Take care hun and good luck. X
Hi,
Just popping in to say hello and agreeing with you that waiting is awful. Your mind goes into overdrive and no matter how hard you try to forget about results etc, you just can’t.
Try and keep busy, and do keep posting because someone on here will always come and help.
All the best for your appointments girls, fingers crossed and lots of hugs xx
Tina, I am so sorry you are going through the waiting phase. It really is the worst time somehow. Hopefully all will be well for you, but if you do need surgery you will find these forums and BCC invaluable. Try to out and about as much as possible, remembering there is nothing worse than trying to pre guess what the outcome will be. You need lots of hugs and cuddles.
Everything crossed for you.
Cackles
Hi all
Just wanted to thank you all for your comments they have really helped, hope you don’t mind but can i ask if the news was not great does (still got fingers and toes crossed)do you think that that it’s a good idea to write down some questions and if so any idea’s, It’s silly but i know im going to go completely blank and i want to be prepared in a way so that i don’t miss anything that i need.
Tina123
It is difficult to give you questions to ask but I will try a few.
Is there a breast care nurse who will be my primary contact.
What treatment option did the Multidisciplinary team think would be in my best interest.
What Grade was it.
Is it hormone receptor pos. or neg.
What surgery would give me the best cosmetic result.
If there is a need for mastectomy can I have immediate or delayed reconstruction.
Do you think any lymph nodes are involved. Will I have sentinel node biopsy.
Will I need chemotherapy to shrink the lump first, before surgery.
What screening tests do I need.
When will I be having my surgery.
Will I need Radiotherapy.
Your best option will be to download the BCC publication " Treating Breast Cancer"
Hopefully you will need none of this, just the leaflet on fibroadenoma which is a benign condition
Cackles
Hi Tina
So sorry to hear that you are going through this tough time. I have just been diagnosed with BC after finding a lump. The waiting for results is definitely the hardest time. I have just had a sentinel node biopsy and will get the results from this on Saturday.
Regarding questions, I found that my consultant was incredibly clear - she told me that I would definitely have to have a mastectomy as I have two different sites in one breast. She is not sure yet about chemo and really won’t know until after the results of my SNB are back and probably not until after surgery. I was assigned a breast care nurse who is fantastic and answers any questions that I have. I know how difficult it is though because you always think of the questions when its too late and your mind ends up so confused. Wishing you the best of luck xx
Hi to you all
sorry to hear that some of you have been diagnosed and others are waiting for important results. I got diagnosed through screening on 14th jan after excision and am now awaitng results Wed after wide local excision and sentinel nodes on 25th
Coming on the forums reassures me that crying not sleeping and being terrified seem to be the way people cope
When I got my diagnosis the breast care nurse offered to write the diagnosis down in the back of one of the books i was given i found this helpful it is sometimes only possible for you to be given info in stages as for example pathology results may come in stages with receptors only coming after diagnosis
Take care and survive this journey in any way that works for you
for those awaiting surgery feel free to ask questions as everyone is very open on here
Love Poppy D
Tina, Cackles has summed up the most significant questions, but there is still lots of hope that you won’t need any of them. That said, doing something - anything! - that helps you to take control, so preparing for the worst even if you don’t need it can be very therapeutic.
Other advice includes not indulging in uncontrolled googling. take a look at the ublications part of this site at the early pubs.
The Waiting Room really is the worst place but so many people do leave via the All Clear door, figers crossed for you too.
I agree with choccie muffin Dont google I did before last surgery and was then worried about some stuff that was fine.
Love Poppy x
Hi all
All advice given is amazing, Cackles WOW! thank you, i can answer one of the questions i have already been introduced to my nurse.
poppyDand and chocciemuffin i promise i won’t.
Woolsty thank you.
I hope you all know how this site is helping me and others i am someone who needs to prepare and i don’t feel so alone on this site, Hubs is taking it hard won’t even talk about it so you guy’s are my sanaty.
Still have my fingers crossed.
tina123
Tina
Thats not uncommon I guess they need to find their way of coping too and they are nor good at being honest with their emotions. its 3 weeks since my diagnosis and yesterday my husband read the book for partners which they gave him. It helped him understand that I needed reassurance that our relationship is the same even if we are faced with the physical and psychological changes that this horrible time brings. Everyone handles it differently but hopefully he will be ready to talk soon
Thinking of you
Love Poppy
Hi I was diagnosed on the 24th jan, they also found another lump on the other side but said that the needle biopsy was not clear enough. I went back a week later to have another biopsy, and I am now waiting for the results. I was told I would get a call today with the results but no one has been in touch. I feel so down and feel I carnt face anything right now. consultant said at the time was that it was small and that she would remove it and some glands also. My daughters are really worried. One of them seems frightened about me loosing my hair, I have tried to explain that this does not always happen. I wish it was all over, just want to get on with life. Sorry to sound so down, dont seem to be able to tell my family how i really feel.
Tina I am sorry your poor Husband is finding all the waiting for results hard. We so often forget they are almost part of us and feel so useless at this time, just as we do. if your biopsies do turn out to be Breast Cancer don’t forget there is also Peer Support for husbands and partners as well as us. The Helpline could arrange it for him or he could phone directly. The helpline would also answer any queries he has and they are invaluable at times of “meltdown”. There is also a Booklet for partners which you could download. My husband has a Peer supporter and he found the chats of great value when I was having chemotherapy. Men also post on the Forums.
The waiting is such a rotten time. I do feel for you both.
All the best and my fingers are still crossed for you
Cackles
Hi Libby
This must be a difficult time for you, as others say the waiting is in some respects the worse part. As we said earlier its better not too google it doesn’t always help. I was diagnosed on the 16th and had a wide excision and sentinel nodes on25th. I never thought i would have the courage to go through both ops but I have, and I and am awaiting results wed
Can you confide in anyone, I found that by telling a couple of Friends they have been brilliant and supported me they often seem to be able to pick up on how i feel no matter how many times i say i feel fine.
are your children young Libby
Thinking of you
Love Poppy x
Hi Guys
Day off work today! nightmare i have completely stressed out so i decided to make the call to my breast care nurse explained that i did not need hubs to take time off if its ok, yes i know i would still need to go in to discuss taking it out to be safe. She is realy nice but told me she didn’t have the results yet but would advise that i bring hubs or close freind/family so that they can take in what is being said in case i miss anything.
I don’t know, i wish i knew just so that i can prepare myself if anything.
Oh well my rant is over, Hope you are all ok and Libby i hope that you have had that call.
Tina123