Well ct scan all done. 3 attempts at vein though for contrast. Results 3/4 weeks . Think I’ve got so used to results now …I’m not going to fret too much!
Hello Melinda
Hope your scan went OK last night …mine wasent too bad as I had 2 x brain and 1 x body. …about 20 minutes once the cannula was in !
Apparently they took 1000 images. .so that’s why it takes so.long for results. .aagh .
Hello Melinda
No I don’t mind sharing the brain mets thing. The ct scan missed them in March when I started getting a numb face …in July I had a mri brain scan and that’s where they were found. I declined whole brain rads as with oncologist it was decided that it wasn’t good odds. …oncologist is hoping that cape will hold things. I got a paralysed left side of face …no pain just hard to talk. I get a bit dizzy and balance problems but I can still keep up with conversation and online shopping !
Hope this helps
???
Hiya Melinda
Gosh didn’t realise u had brain mets too …how long ago? And did u have treatment ? Apparently mine are quite rare. .only affect 5% …trust me to get them.
Hiya Melinda
Phew you have been through the mill with wbr …they do say its tough. My oncologist says that cape works well on liver /lungs but does take longer to hit the brain …and there is about only 20% of it doing that much . Very few chemo do break through the brain lining though.
Peachy pills crusaders …keep taking them .
Oh Ramade
You have the same symptoms exactly as I do…obviously you haven’t had the wbr treatment either.
They did say that cape takes a lot longer to work on the brain than liver and lungs .so fingers crossed that it does it magic soon.
I’m a week in on first round of peachy pills and apart from feeling slightly nauseous in the morning, I’ve not been too bad. Liver pain has started to ease off as oramorph kicks in. Nurse said to maintain pain relief not try too get on top of it once too bad, so at the moment that’s what I’m trying to do.
still waiting for biopsy result.
Is this normal, whatever is normal, start to cape. I’m not sure what to expect!
good luck to all and stay well. X
Hello Ramade
Yes same symptoms. Apples are out. …I do eat bananas but otherwise it’s a nightmare eating with a dead face. I mainly eat cuppa soup and tinned rice pudding for ease ! I don’t get headaches or any pain though. Just fuzziness and a bit confused …can’t believe I finish chemo pills Saturday again for a week. .the 2 weeks regime goes so quickly .
I’m still black and blue in my arms from hunt the vein for contrast on the ct scan last week. Hope she finds a good vein for blood test next week.
Not sure when I get scan results …
Well think I have Xmas pressys sorted …just a few money wallets to make up …not much food needed as out for Xmas dinner so won’t be one of the many pushing 2 trollies round Sainsburys. .do they eat all that food or does it end up in the wheely bins?
Hi All
i often read that ladies have problems with needles, bloods taken etc, , which is what I had for several years, however earlier this year I had a port a cath fitted, its brilliant and I don’t get problems at all.
A lot of hospitals don’t offer the option unless you asked, which I did and they arranged to have fitted quite quick. (I only learnt about it from a fellow chemotherapy patient)
Contrast for scans go in, bloods out and chemo in. Once used a small plaster on and off I go.
over the summer I as able to swim etc as all that’s visible is a small bump on my chest and no external tubes.
The last straw for me was when they had to take bloods from my feet, very painful and slow and bruises horrendous.
im sorry if you already know about this but I didn’t so thought might be worth a mention here and help someone else having similar problems that I had.
good health to all. X
Thanks bJr .very sensible having the port fitted …when I had primary I had a picc line but it was so uncomfy. .think these new ones are more comfy and designed for long term use.
Think hunt the vein is the worst bit of scans etc.
Hope u doing OK with your treatment too …xxxx
Hi, I am on day 11 of my first cycle of capecitabne. All was good until yesterday and now suddenly all the side effects have kicked in. I woke up last night with diarrhoea which has now settled, have sore hands and mouth ulcers. Anyone else had a similar experience? My oncologist told me to phone the chemo helpline if I had severe diarrhoea and they would probably advise me to stop but instead I have reduced the dose for the last few days to see if that works. Just wondering if anyone else has had a similar experience?
Hello Ramade
For the first time after 6 cycles. .I had an “explosion” yesterday. .so I was glad to be at home and near the loo ! I have imodium and allow 3 visits then if it doesn’t stop pop the pill. I’m off the peachy pills to Sunday. .seeing oncologist Wednesday so hope my platelettes and bloods are good …for another cycle .
I find these pills really good …no sore feet or hands either. Did feel a bit sicky but I ate too much !
Hello …scan results were in today …ssme as 3 months ago …no change so happy with that as platelettes still low and therefore peachy pills dosage reduced. Only on 1200 x 2 daily now …would prefer the stronger dosage but platelettes won’t allow. Just had yet another lunch out so feeling like porky pig in my chair …oink oink ??
Hello Melinda
I have never had tumour markers so don’t really know much about them … yours sound quite low though but I’m not a doctor !
At least scan and results out the way now for Xmas. …I shall probably treat myself to a gin and tonic or baileys on Xmas day …just the one !??
Morning Melinda
Just thought I would reply to your question about tumour markers. When I first started to get tumour markers done in 2009 I was told upto 30 was the norm. People who don’t have cancer can show up
markers. 63 is still low though.
Good result regarding scans.
Linda
So pleased for you, Carolyn! Stable is great so have a lovely Christmas, when else can we overindulge just a bit? I’m not medical but have read lots of forums, Cape seems to be effective at lower doses and my hospital does 1 week on/ 1 off. They say they get the same result.
Just had my 3 monthly scan result, I’m stable Mabel too, phew! My trial has worked since April 2016 so I’m feeling blessed x
Hi still here
Great news long may it continue.
Linda
Hello still here
Lovely to hear from you …been quiet ! Yes I was disappointed to have to reduce cape as I was getting no side effects but platelettes dominating dosage at moment. I have blood spots all over arms and legs but no one seems bothered and they don’t itch or hurt so apart from.vanity ( at 66 not bothered) .
Well just got 2 pressys to wrap and finished for Xmas. …got a kindle case that hasent arrived online yet but not bothered. .think it’s coming from ching ching land !!
Happy Xmas ladies …have a good one and try to forget the secondaries and let the peachy pills do their job. Just back on mine after a weeks break.
So back on choc muffins at 8 ish mornings to compliment the pills. .
Just watching a Xmas film munching on a cheese scone. .yum …seem to eat more savouries these days! ??
Hello Lynn
You are at the same stage as me with cape. I restarted them last Sunday after the week break.feeling a big sicky after taking them morning but don’t want to get in the anti sickness pill routine either as I take enough pills. Find tin rice pudding quire good for settling down a iffy tum. My platelettes are still low so still on small dosage too.
Keep in there with the peachy pills ladies if you can.