Xeloda / Capecitabine - Your Top Tips, please?

Blood counts fine so chemo going ahead. Start of cycle 7 tomorrow and have first dose reduction from 2000mg x 2 per day to 1800 x 2 per day, so hope this helps with SEs and blood counts.

Gail - you’re little - 1800 is still a high dose for you! I started on 2500 (if you remember I’m a large lady!) and after cycle 1 was cut to 1950, which has been fine and reduced my tiredness, and the chemo nurse tells me there’s room to go lower yet if need be.
Good news from me - after 3 cycles my bone scan shows no differenmces to August’s, so Stable Mabel I am!! Thrilled - I was convinced I was progressing.
Like LG, my next is Vin … - but can keeop that in reserve!!
Sorry Laura it’s not working for you - keep posting tho - I love your avatar, it cheers me up!
Nina

Hi Nina - great news on your bone scan. I think I’m a bit less tired so far but only on day 3 so too early to tell.

I got the results of my CT scan last week. Thankfully, the onc said the results are encouraging. The bones are showing signs of healing. The liver spots have not got any bigger, except one - but he explained that he thought this was a sign of healing, as it shows up as a bigger denser area. Sounds odd to me but I am happy to go along with his opinion! I am so relieved!!! Started Cycle 5 last Tuesday. Getting rather tired.

Gail - I am pleased that you have been able to restart and hope that your SEs lessen. Your dose does seem high. From your photo, you look slim. I am on 1650 x 2 but I am on the thin side.
I am getting slightly numb fingertips. Does anyone else have this? Onc thought it unusual (as well as my nail problems being unusual). I also get irritated eyes in the evening which result in sticky ones in the morning. Presumably, conjunctivitis. I shall mention it next time.

Laura - Good luck with your next treatment.

Hope everyone else is doing ok.

Ann - my fingertips feel like they are a bit numb. I think it’s fairly common as the chemo causes oedema in the fingers. It wsa one of the reasons for my chemo break as it makes it difficult to do anything fiddly (like cleaning contact lenses). Not sure how much is true but have heard it can cause problems with fingerprints and there was actually an episode in the current series of CSI Miami that mentioned it as the victim was on Cap and they couldn’t do fingerprints for identification.
Hope you can get some eyedrops to help but see GP sooner if it’s a problem.

Gail - I don’t seem to have oedema in the fingers, just slight numbness at the tips. As you say, it makes it difficult doing fiddly things.

Mmm - safe breaking with immunity - roll on no fingerprints!
I think I have a weird body - just been to GP practice for diabetic clinic and to get bloods done for cycle 4. Both nurses independently tell me they haven’t seen me looking so good for ages!! So I put poison down my throat twice a day and my body thrives on it - mmm, maybe this is where I’ve been going wrong all these years - no poison!!
Sorry - feeling frivolous - so happy about being stable!!
Nina

anyone else feel worse on the week off?

i am on cap for 2 weeks then 1 week off, and the last few cycles i have felt really off on my week off
same things upset stomach, scabby nose, tired, just generally off if you know what i mean

Hi Homer,

Yes my last week off was miserable - fatigue was awful, previous week’s off I have woken up with cold sore around my mouth, Eyes/nose streaming if I do any activities and added to the usual side effects. My chemo nurse have said it because its accumulative cold comfort I suppose.

Re finger tips I had problems getting into New York as I’d been to Chicago a few years previous and they didn’t match up so lots of twoing and froing they finally allowed me into the country. Quite bizarre but diificult to explain.

Broomstcklady = congratulations on being a stable mable fanastic news.

Laura - I’m so sorry that Caoectibine isn’t working for you wishing you good luck with your next chemo.

I’m due for a ct scan, bone scan and mammagram all in three days next week. so lots of anxiety to face, its funny but I’m fine until I have a scan and waiting for the results is a nightmare as sI’m thinking about them constantly.
Take care ladies
Love and hugs
Chris xx

Homer - yes I’m the same always worse on the week off, only benefit is I can be more fliexible about mealtimes.
Chris - good luck with the scans. I also tend not to think about them until I’m waiting for results, except with the skin mets I can see and feel them anyway.

I am worse on my week off as well, particularly my digestive system.

Thanks girls so I’m not alone on that then x

Chris - can i worry about results with you?
i have a CT scan, MRI, Bone scan & Echo-cardiogram all over two days next week.
i hate waiting for my results and it gets worse every time for me.
I get scared …if they show more spread what happens next???

kimi x

Hi Homer,

Yes I think we can worry together and hold each other hands very tightly. CT scan tomorrow, bone scan Tuesday and mammagram Wednesday its the worse weeek for me so far. I don’t get my results until the 11th December which seems such a long time to wait and I know they are having problems getting the reports back :frowning:

Take care hun
Love
Chris xxx

Homer & Chris - good luck for your scans. Waiting for results is so stressful.

Chris,
I’m holding your hand already xx
i have CT & MRI on Wednesday followed by a echo cardiogram & bone scan on Friday
i see my oncologist on 10th December for the results so we are running close together on this.

kimi x

My next oncology appt is also 10 December, but not expecting to have any scans. Am slightly concerned that there may have been slight progression on my small chemo break last cycle. Dildn’t think skin mets would start up again so quickly so was a bit worried about resistance developing, but I might just be imagining things as they seem stable again, although no longer shrinking as they were on previous cycles.

Xeloda failed for me starting new treatment in a couple off weeks , I think it’s going to be the red devil. Will still keep in touch with you all .
x

Hi everyone, I am heading off tot he hospital soon. I was going to have an increased dose of Capecitabine as my TMs were rising but when I saw my Consultant a couple of weeks ago she suggested I start Taxol. I asked her if I could remain on it until the New year then review things and then I could start Taxol.
But I have had a long hard think since then and spoke to her today and I am going to start on Taxol as soon as they can fit me in to have the treatment. I will be having it weekly for 4/5 months and will have the chemo by infusion every week. I am now fine with this. But not looking forward to any side effects that come along!
The reason I wanted to wait was because I am having my family here over Christmas and my elder daughter is flying up from Bordeaux. This wil be the first Xmas she has been here in 7 years. But it wll also be the first Xmas without Mum. I thought we all had enough to deal with. Also did not want to bed in bed unwell while she was over.
However I have done some reading. Looking at other sites and talking to ladies on here and on Fb who have had Taxol.
I also need yet another blood transfusion. The ward witl take a samle for cross matching but they cannot fit me in today. I am hoping that they can fit me in tomorrow. I have been feeling quite tired and easily worn out. I have not been posting much on here for that very reason. Will stil pop in to see how you are all doing though. Not sure if the peachy pills can be tried again for me at a later date as I have been on and off them for years with great success. Hope they still keep working for you. Love Val

Hi Scottish lass , sorry to hear that the peachy pills stopped working, I am the same but mine was just after 4 months , I am starting epirubicin , so will see what that beings. I am not sure whether to start after christmas or before.

Oh dear - I came on to post and say that altho only cycle 4, I’m now taking peachy pills with seemingly no side effects - in fact I feel better than I have for about a year. Was at a dinner dance on Saturday - no dancing with walking stick tho - but ended up in tears cos everyone kept coming up and telling me how well I looked, and the diabetic nurse and phlebotomist at the surgery said the same thing last week. Am beginning to think I have a very warped body that likes being poisoned - thats what I’ve done wrong all these years - no poison!!
But then I read Pinklou and Val are failing and feel so sorry about that - Val good luck with your transfusion - hope it is a bit quicker than last one which I recall was delayed. Your right about the first Xmas without your Mum - it is hard, I actually went away for mine so it was different, but once you’ve done all the ‘first’ anniversaries of birthdays mothers day et all it will get easier - I know everyone says that and you don’t believe it but it’s true in retrospect.
Epirubcin - that’s the E of FEC isn’t it, which gives you red pee? I remember that baby so well!!
Hugs to all peachy ladies out there
Nina