I use E45 lotion which comes in a pump dispenser. My skin is normaly quite dry but I was having to shake all the skin out of my trousers when I took them off and brush off the bed in the morning yuk!! I have used E45 for quite a while but being lazy only put it on the bits that show but now put it every where. I have sensitive skin but can even use it on my face and bald head where alot of ordinary face cream would make my skin erupt. I’m sure it has helped with the wrinkles to so cann’t be bad!!
Hi…as some of you are probably aware I’ve had an issue of breathlessness and fatigue for last few months and after reading your posts about having the same I’m pretty sure it must be the Cape. I started taking it at beginning of july and i can’t remember being like that on holiday in greece in june.
I also have a decreased appetite. I feel hungry but then find i can only eat half of what’s on my plate.
Was worried that these were all due to the cancer and therefore not a good sign. But feel more reassured now.
Hope it gets easier for you ladies who are suffering at the minute.
Love bev xxx
Morning all…helen its my week off too after Wednesday. Your scan must be due around the same time as mine on 4th nov.
Does anyone else feel like me and get excited when the little silver foil packets of cape get less and less in the box??
I find I can’t wait to take them when there’s only a few days left just to see them reduce even more lol! Its the eager anticipation of knowing my week off is approaching!
Kaye…your markers have reduced dramatically! That’s got to be good news.
Hope everyone’s ok here today.
Love to all…bev xxx
Hi Kaye yes i am at velindre. You may be under the same Onc as me. Not sure if we’re allowed to mention the names on here (admin?) But his initials are SW and he’s a bit quirky lol!! We may have even been there at the same time…you never know! Xxx
Oh thanks helen …yes didnt think of that! xxx
Hi katherine. Ive lost my appetite a bit too since starting Cape. The last 2 months its been more noticeable. I seem to feel hungry but then find i can only eat a few mouthfuls. My onc said to try eating smaller meals more often even if its just crackers and cheese or small salad. Think it must be the Cape because when onc was asking me at last clinic visit about side effects she asked how my appetite was. Sounded as though she was expecting me to say it had diminished.
Trouble is i dont seem to be losing any weight!!
Dont worry too much about it…try and eat small amounts.
Love bev xxxx
Hi Kaye, helen and barton. Yes I’m feeling much better thanks and this cycle has prob been the easiest! On my week off now and I’ve had 6 cycles so scan next tuesday. More chemo then at clinic next wed all being well.
Only downside is ive lost all the skin off top of my thumb. Its raw! Covered it up now with lint dressing. Its very sore xxxxx
Hi ladies, just read the last few pages of threads and so happy to know i’m not the only one who dreads the pill packet twice a day and gets excited when i i see there are only a few left. How true when you say Oncs really dont have any idea what its like. I get so down knowing i’m taking these things but wont be better at the end of it…i am really grateful that such drugs exist , of course but nevertheless really struggle with everything. Reassurring to know i’m not the only one who is wiped out all the time…also now struggling with stomach gripes/runs and the dreaded sore fingertips. Can cope with that at the moment…what i am really struggling with is the taste change issues…i havent lost my appetite but find it difficult to eat when nothing tastes as it should and very difficult to eat when i dont want to simply because i have to take the tablets. i was hoping this was down to the dotaxol rather than cape but seems not. Just had 5th cycle…roll on Sunday…no more tabs for 11 days!! Best wishes to all. x
Well its strange but my cracked and peeling left foot has totally healed since using the vaseline! Silky smooth again…just a shame about my thumb tip…ouch! xxx
Hi all on third cycle as well as been on lapatanib 1 week and funny question…is this making anyone’s feet stink?! I have no feet soreness or peeling but my slippers reek after only a few hours! In addition do people have constantly watery eyes and any tips on this as im a heavy make up wearer to try and hide the mess that is my steroid fat face and bloody mascara and eyeliner keeps coming off!!! Hope you gals are doing ok and don’t have feet like mine!!! X
Morning helen and rest of Cap gang! Week off helen…great stuff! I’m in middle of my week off too. Sure its the cape causing the breathlessness…doesn’t seem as bad on week off…does yours?
Lovely sunny morning here and been a very warm night. Had to throw the duvet off! How strange for November!
Think I’ll make my xmas cake this weekend…love to smell it cooking.
Should be a nice night for the fireworks display at the castle tonight!
Hope you all enjoy the weekend and not suffering too much from the dreaded s/e’s
Love bev xxx
Hi! Helen and bev in particular it’s my week off too from 3rd cycle and I’ve too found this one more se’s incl. breathlessness started fortnight ago but I also then started on lapatanib then with poss more se’s.moving/talking makes chest tight, hurt, breathless and windpipe and lungs feel so inflamed and hot like massive chest infection for hours, goes with rest. Do you get it this bad?mets are in my lungs for one thing though so could be the tumours. Do you feel vulnerable in week off Cape?I do worry it’s when tumours start to regrow especially if aggressive fast growing but hoping it still does some sort of work in that week off! Hugs to all hope you have a better week without the pills!!! Ps my feet bloody stink lol x
Hello, Hilsy, Bev, Kaye, Helen and all the rest of the Cap gang. Hilsy, I have to say my feet or other extremities don’t stink. Have you thought it might be the latanib (?) that is making your feet stink, rather than the Cap? My extremities aren’t sore at the moment either, thank heavens, although my thumbs are a bit tender. Just started cycle 6 on Thursday evening and already the breathlessness is getting worse. Had a really good day Thursday, though (compared to others recently, anyway). Hope everyone keeps well. Barton.x
Kaye, so sorry to hear everything so sore. I comiserate! Hope the extra week off helps, but also hope you get cycle 4 tablets as scheduled. Best wishes. Barton.x
Hello quality-st, thanks very much for the useful info.re.bamboo socks! Wow, would never have thought something like that would be soft! Will have to check them out. I have a very handy TKMaxx not far from where I live (previously a 10 minute walk, but now, with the breathlessness and legs that don’t seem to work, more like a half hour slogl!). Thanks, and good luck with your second go at Cap. Barton.x
Hi all again so Soz to jump in with another question I don’t know where to ask, are any of you on lapatanib/tykerb as well as the above? I’ve been on 2 weeks and my face and eyelids are getting more and more puffy especially this last week and eyes real real watery now (but watering could be the mirtazapine I started a week ago).
Katherine you poor thing I recommend mirtazapine anti depressant. My Macmillan nurse put me on you take at night it helps you relax and sleep and you feel much happier the next day? Worth looking into trying out. I too worry that on Cape week off tumours start regrowing faster and feel unprotected but just think when we restart again our bodies are a little stronger to help the fight again xxx
Glad the vaseline is working well for you helen! Still working for me too.
I’m back on the peachy pills on Wednesday too …if bloods are all ok xxx
Helen…dont know about my red blood cells. Ive never asked. Will ask though on Wednesday. Theyll give me the result from 3 weeks before so will it be difficult to tell? They always just say my bloods are fine…ive only ever asked about my tumour markers.
Bev xx
Thanks daisy…its really good of you to post this info for us especially as you’re not feeling too well.
I started cape on 1st july and was only slightly out of breath on exertion then but its got worse since August. So was wondering if it was the Cape or not. Seems it could be a mixture of chemo and blood counts though as youve said, considering how many other ladies get the same. This week has been my week off cape and breathing’s not half as bad.
Hope you feel better soon. Love bev xx
Hi capecitabiners! (waves hand with slight cracks in 2 fingers)
Yep, bloods can be affected by cape - my haemoglobin is low (platelets normal though) and oncs have been talking possible blood transfusion, tho not necessary yet. Tired (but not as bad as fatigue I had when on eribulin chemo last year) and I admit to huffing and puffing a bit, not gasping for breath so I’m not sure if it counts as breathlessness.
Yes again, big toes can turn nasty after a long time on cape - I had this problem after about a year, but this time it’s ok so far.
Thanks for tip on bamboo socks, I’ll give them a try - make a change from Body Shop cotton socks. I wear these in bed, inside out so the seams don’t cause discomfort. Socks come off and I have fun hunting for them the next morning!