Hiya Chris,
I hope you’re doing ok and they’ve got your pain under control. I’m having my first Taxol this Wednesday, so managed to fit in a quick holiday before starting! That’s why I haven’t been posting lately.
It’s nearly 3 weeks since my last dose of Cape and I’m feeling back to normal again… Just in time for them to start poisoning me all over again!!! Oh, the joy of chemo! I don’t know why, but I’m feeling quite nervous about this one. Maybe because I’ve already done Taxotere and the onc has warned me I’m at higher risk of an allergic reaction as a result… Still, just have to suck it and see!
Good luck to all of us! xx
Hi af gd luck for wed I hate I’ve chemo makes me so sick isn’t it funny I’ve had taxote and taxol but no mention of any reaction I did have it with carboplatin though maybe that’s why it worked for me but as sn as stopped grew within 5 months hope it works well for u Laura
Thanks, Laura! Hope you’re well on the Cape. Take care xx
Hi, please can I join the Xeloda gang? Only finished Docetaxel in January, (liver and bone mets) was ‘happily’ trundling along on Letrozole, but was called into clinic this week as my markers had gone sky high (don’t even want to mention the figure on here as it’s really scary!) However, onc said not to focus too much on the actual number, it’s just giving an indication that the letrozole wasn’t working. Still terrifying though.
So, started on Cape/Xeloda on Tuesday and it just has to work!!Have already been rubbing Udderly Smooth cream into hands and feet, have had a tip from a friend that coconut oil is also really good so will be investing in some of that as well. Had a hideous time on Docetaxel so hoping this is much kinder to me.
Lesley x
Hi ladies,
Angelafalls how did your cheno go on Wednesday? If you’re going to have any adverse effects then you should know by noe. Really hoping this tax is good to you on the se front.
Welcome Lesley -There are loads of great tips on this site and I think I’m one of the unlucky one with regards to the side effects my hand/feet have been a real pain and I had to have a dose reduction after cycle 2 - it’s bearable now but I can tell you every month has brought different se affects my oncologist thinks I unusual too!!!
I seen oncologist yesterday and I’m having a month’s break from chemo as I had a holiday booked and she thinks as it accumaltive I could do with the break anyway.
She quite concerned that the chemo has beaten me about - you never know I was on chemo and everyone tells me how well I look oh even they even knew. Anyway she ask me if I wanted to stop and put me on another inhibitor. I said that I’d rather carry on as I’m coping with the se and as long as its working. She want to do another 3 cycle scan me and then put me on the inhibitor. I asked about a manintainence dose and she was not very keen. I get the impression that she doesn’t like her patients to always been on chemo. So I will have to see how things pan out.
The inhibitor she mentioned was Faslodex has anyone gone down this path and what have been the effects. Changing treatment are always scary when you don’t know the outcomes.
Thanks for reading and I hope all the Xeloda Queen and Princess are doing well.
Take care everyone.
Love
Chris xxxxx
Hiya Chris,
Thanks for the message! I’m doing ok after Wednesday’s Taxol - no nasties to speak of yet, very mild SEs so far. Let’s hope it stays that way!
A month’s break from chemo sounds like great news, not just because you get a break from the peachy pills, but also because your onc must be feeling confident that you can take this break. In fact, there was some research reported on an American site recently which found that taking treatment breaks can help as it means your body doesn’t become so resistant to the drugs… Or something like that! Anyway, have a wonderful time on holidays!!!
And best of luck to all Xeloda princesses and queens, new and long-term (can’t say “old”, can I?!!!), current and former. Enjoy the weekend sunshine!
Take care, Angelfalls xx
Hi, girls,
Can’t leave the Xeloda club without saying a proper goodbye:-(
Unfortunately, we discovered extensive bone mets progression from the last scan and my onc has taken me off both Xeloda and IV Zometa. I’m currently on a chemo break awaiting a spinal surgery to help strengthen my partially collapsed C7. Then I’ll be switching to another chemo and bone strengthener.
After 10 cycles - nearly 8 months in the Xeloda club! I really enjoyed your company and may Xeloda continue to work for you.
M xx
Hello M,
Sorry to hear about your progression and that you’re also leaving the Xeloda Club. I really hope your surgery goes well and that the next chemo and bone strengthener will be gentle on you, but get those mets under control quickly and for a looooooooong time.
Take care, Angelfalls xx
Hi M1yu,
I sorry to hear your leaving and cap isn’t working.
I hope your surgery goes well and that the next chemo works well for you and the se are kind to you.
Enjoy your break and do all th lovely things you want to before your treatment starts again.
Take care
Love
Chris xxxx
Hi Ladies - pls can i jump aboad!!! Ive just had a chemo break, but bone and lung mets having a party - so, trying X / Cap. Im starting on 16th so a few days to do my research. The various threads have been of great help. Just wanted to introduce myself and say Hi!! Im trip neg, like Laura. Right…off to order the creams from Amazon!! One questions, do you get NHS choropody or pay for it?
Sadie Xx Xx
Welcome sadie I’ve had my feet looked at but was referred by gp but that was got I’ve a toenail inf I don’t think they will deal with everyday feet probs hopefully someone will have the answers gd luck for 16th Laura
Hi Sadie,
Before you order creams its worth asking if you can get them on prescription - I get Flexitol and Cavilon from my GP and Udderly Smooth from the hospital.
Julie
Hi girls
From what I can gather, if you have feet problems as a result of Capecitabine, then you can get chiropody on the NHS.
Also you can get Udderly on prescription.
Jane
Hi all I’ve got a few creams my gp won’t give me uddley sd they can’t do it on prescription I might ask hos
I have found Aveeno cream to be very good, on my 11th cycle and not too many problems with hands and feet.
I think we should get free dental treatment, the various cancer treatments I have had over the years have caused me real problems in that department.
My Cap regime is 2 weeks on and 2 weeks off, I did 2 on and 1 off for 4 cycles but struggled a bit. Awaiting an appointment for another scan so fingers crossed its still working.
Jan
Thank you Ladies for my welcome. I will ask my team before ordering creams. You might’ve saved me some money!!! I like that!!
I agree about the dental treatment - people in prison and those who have just come out get free treatment for two years!!! So, we certainly should!!
Hugs to all,
Sadie Xx Xx
Totally agree with having free dental treatment. I’m on Cape at the moment and struggling with it. My mouth is absolutely awful, I cant taste anyting properly, cant eat things I used to like.
I am forever cleaning my mouth, because food just sticks to my teeth. I go to the dentist regularly as I’m scared to death of ending up with false teeth and it costs me a fortune, as I’ve been going to the hygienist as well, just to make sure my teeth are at their best.
As well as people in prison, the armed forces get free dental treatment as well.
I think our free prescription card should cover dental and optician free care.
Jane x
Hi girls
great thread liking all the tips. Didn’t realise you could get urea cream on prescription, especially udderley smooth! Have bought 2 pots but it goes nowhere and at £8 a pop, it certainly should be available to us on prescription, after all it’s to deal with chemo se’s! Will ask at my onc appt on tues.
As for teeth… I posted yestrday as mine have become sooo sensitive. The last chemo I had (eribulin) really stained + wore away my teeth. Thankfully I ha ent suffered from mouth sores etc on any chemo as yet.
I’m half way thru my ‘week off’ and I’m feeling awful. Whether it’s xeloda related or I’ve got a bit of a bug I don’t know. Tum is really upset, cramps + seveal dashes thru night + this morn. Back is aching (got spine mets) feel Weak+ shaky, legs like lead etc.Must be rough as can’t even look at an Easter egg! Been at our caravan + forgot my thermometer so I’m hoping it’s not serious. Decided to head home rather than staying til tmoro as planned.
Have found the 1st cycle easy until the week off, have definately felt sig better in terms of my wheezing + breathlessness so I’m hoping that’s s good sign it’s helping.
Good luck to everyone + happy Easter all 
tina x
Hi all
Seems so variable how we all respond to xeloda. I’m hAving with avastin and had 2 cycles but finding very tough, much worse than taxol or carboplatin. First cycle I had loads pain at met sites and couldn’t control pain.
Second cycle was stopped on day 12 due to side effects. I developed hand foot syndrome and couldn’t walk with burning red swollen soles of feet. My whole mouth, gums, roof and throat ulcerated and is so painful.
I am now day 19 and still can’t eat except yogurt and soup . Ive. Never suffered with mouth on chemo b4.
My onc is reducing dose by 150 to 1500 2 x day so hope enough as don’t want another mouth ulcer experience as they haven’t healed yet.
Has anyone been on more than 6 months ?
Thx
Jo x