Hi, I’m sure this has been answered loads of times so sorry to be a pest but couldnt find a recent post. Best cream for hands and feet when on Cape? Due to start it in a couple of weeks after discovering that my current chemo isnt really working and want to get stocks in. I’m triple neg, anybody had good results?
Abi
Hi
When I was on Cape I used udderly cream, totally smothered my feet and hands in the cream and then put cotton gloves and cotton socks on them over night… My feet and hands were the softest they have ever been…
Udderly cream is expensive on Amazon, but your doc or oncologist will prescribe this for you at the Hosp/surgery - so pls don’t waste your money…
C xx
Oh thank you ladies, Udderly cream and night socks it is!
x
Good morning all. I am a returner to BCC forums in that I was diagnosed with IBC 10 years ago - discharged 2 years ago only to discover a recent cough and breathlessness has resulted in mets in both lungs. Waiting for results on bones, but so far not showing in liver.
I have started cape and have just finished round two. After reading all your posts on here I have kitted myself out with udderly and so far my hands and feet are ok - I am permanently living in flip flops to keep them as cool as possible (onc told me to do that).
However, I have a very sensitive mouth. It feels like my tongue has been burnt with a hot drink and the roof of my mouth is really tender. I am using Difflam mouthwash as often as I can, which relieves it for a short time.
After round one my onc was going to increase my cape dose (currently on 3600 per day), but as my mouth was tender, he wouldn’t increase and left it at the same. I am concerned he might reduce it tomorrow at my apt. This worries me as I am told that cape is the only treatment that is available for me and we are hoping that I can stay on it for the long term. I need to be around for a long time yet as I have two young children that I want to be here for.
Reading all your posts on here fills me with hope and I feel that if I can contribute to the forum in any way and help others, then it might be of some help to someone else.
I wish you all the best ladies (and gents). If anyone has any receommendations for my mouth (apart from keeping it quiet 
), I would be very grateful.
Huge thanks
FI
I got very breathless on Cape but after a chest X-ray they found pleural effusion, which was drained and solved the problem. Might be worth asking for an xray
Hi All, I have not been on here for a while! I have just been put on Cape and after first round toes are cracking and blistering, after reading on here I should have been moisturising hands and feet from the start. My Onc has reduced dose from 4000mg to 3000mg per day which I think is a huge reduction and am worried it will not be killing the evil cells, does this sound like a big reduction, has anyone else had a reduction? Any comments would be appreciated ? xx
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I haven’t been on the forum for a while, I was dreading my scan results yesterday because Oncs had said that the Cape had stopped working and I’d have to change treatments.
Anyway my results were good enough to stay on Cape for at least another 2 months!! Yay! I’ve already been on it for over 2 years and its been a great chemo for me, quite doable.
I hope that other Cape ladies have the same success xx
Well done, Barton!! That’s great news! Hormone therapies are great, I’ve also been on exemestane and had a symptom free time. Hope it lasts a long time for you xx
Hello Charlotte
Sorry no-one seems to come onto this thread anymore and yet I have found it so useful in making my mind up of choosing Capecitabine. There are so many ladies who I admire on this thread although they have now moved onto other treatments sadly there are some who are no longer with us and I found that upsetting.
I am only a beginner after 16month on e/e combo it stopped working. My second primary was dx jan 2013 first 1996. I have a tumour on my chest wall a met in the breast one on my sacrum in the spine and loads off skin mets that keep growing. My first treatment this time was Letrozole which did nothing for me but now hormone treatments are no longer any good for me. To top all this I have a slip disc in the spine and MS so knowing what pain belongs to which is sometimes confusing.
I really didn’t want to see this thread disappear onto page 2 so love to all reading this xxx
Well here I am at the end of my first cape tablets I really have felt better than I have felt for ages my nails look and feel better. The only downer I now am getting constipated which I didn’t before. I know it will not last but it’s great while it lasts. Don’t like having to work out 10-12hrs between food and tablets even to setting alarm clock in a morning. But I am ready for it.
Hi Marirose - on my brief spell with Capecitabine I had really bad constipation like never before. I was getting pretty desperate when I was prescribed Movicol. I now swear by it. It’s so kind and effective. Thought I’d mention it in case, like me, nothing else was working for it.
X
Thanks DBNO
You have reminded me of movical my MS nurse once prescribed it for me so I shall be looking into getting some
Love Rose xxx
Hi everyone just bumping up for newbies like me. I am on my week rest before I start my 3rd cycle so far so good.
Merry Christmas and Happy New Year xxx
Hi Waffles I am on my 3rd cycle very little se I haven’t had any trouble food wise very little nausea finger tips feel funny but I think it has continued since finning e/e combo nails got back to normal now starting to split again l suppose they will turn black again. I am starting to eat more and putting weight back on.I lost alot before everyone comments on how well I look so let’s hope it works. HAPPY NEW YEAR xxx
Hi Marirose, Glad to hear you aren’t being troubled too badly with side effects.
I’m on my third day of second cycle and, although very early days, so far no nausea or loss of appetite like I had in the last cycle from the start. This time I was prescribed Zofran 5mg anti sickness pills and I also read to leave 20-30 mins after food before taking Cape tablets. Fingers crossed this continues to help. I’m eating like a horse anyway which is great as I was losing quite a bit of weight. Happy New Year when it comes. x
Hi Waffles sunny here in France should have snow but nothing on ski slopes. Glad you are having an easy time with cape my hands seem to be changing a little but nothing bad I am on my 2nd week of tabs before rest week then 3rd cycle over. Best wishes x
Hi Marirose, Skin on my right foot starting to feel a little bit odd but looks fine. Forgot to mention I had big problems with constipation on my last course but Movicol has sorted that out very painlessly! It is really helpful to compare notes with someone going through the same treatment. Hope the weather stays good for you in France
Best wishes x
Hi Waffles
Constipation is my problem too I am on Movacol as well. But otherwise cape seems to be ok my walking is bad and that is letting me down but I am happy to be with grandchildren Igo back to England on Tuesday morning. Love Rose xxx
Hi Waffles
Hope you are ok I have my free week from today. Every thing going well apart from fingers getting patchy red and finger tips getting puffy sometimes my feet feel puffy but I moisturise morning and evening for feet and through the day for hands. I can see what others say about cracks appearing thankfully I haven’t got them.
We arrived home today and we put Christmas trimmings away and I felt as others have said will I see them again. Of cause I will.
Best wishes xxx
Hi Marirose, I’ve had no side effects this cycle other than feeling a bit tired. I’ve been a bit troubled by pain between shoulders. I did have a small met there last scan so I just hope the disease isn’t progressing again. I’ll ask onc about it. Glad your side effects are still manageable. This was my first xmas since mets diagnosed and it wasn’t easy. Hopefully, it will be easier next year.xxx