Hi all hope y all ok I’m on num 5 my feet are getting a little notice they are a little uncomfy when walk fingertips are v dry and skin looks like peeling I’ve got lots dif cream any tips be great off to hos next wk didn’t really want to reduce dose unless major as working well many thanks laura
joining you on here xx
I have just started cycle 2, I’m on a trial called cerebel
its capectabine 500mg tablets 3 tablets 3 times a day
and lapatinib 250mg 5 tablets once a day.
I was struggling on cycle 1 with my pain,
but last week i saw my onc who gave me lyrica,its a nerve pain tablet
and so far so good, its really helped with my pain.
I have 3 areas on my spine,and 1 of them has trapped a nerve, thats
causing pain in my right leg.
I am using udderly cream and so far my hands & feet are OK,
they do tingle a little every now & again.
I’ve felt a little nauseous but not been sick,
and the last couple of days i have had a grumbling tummy,
i am not sure if its the chemo or i have picked up a bug?
I dont feel like i am even on chemo!
The chemo nurses sort of told me last week to look after myself,
This is my 4th recurrence and 3rd time on chemo
I will be following this thread for tips
Hi all
have just started on xeloda/cap on monday. 4000mg cap (2000 x 2)daily, 2 weeks on and one week off.
Had 3 x tax but it didnt shrink tumour in lung so onc decided to stop it and put me on this. I had lots of s/e’s from tax so hope I will be better on this regime, so far ok, but v tired. Have read up on all your mixed s/e’s so waiting for something to ‘happen’ !!!. Creaming hands and feet b4 bed just incase. Anyone else finding it difficult to talk since lung mets. The cancer is pushing on a nerve which affects my voice and I have a husky voice now as if I have a v bad cold. Nothing that can be done about it.
Lets hope this chemo works where the tax didnt. Had tax for bc so onc said cancer had probably managed to remember tax and protect itself from it… shame my body hadnt. !!
Chris x
Hi Homer and dipstick,
Welcome to the Xeloda thread - its a great board full of useful information.
Homer the stomach ‘cramos’ are a unfortinately se from the cap I have it on cycle 3 and seen the chemo nurse who prescribed Mebeverine which helped all most immediately.
Chris I hope your se aren’t as bad and I knmow frm when I had tax they are no where near as bad as the se from that chemo. I have the foot/hand syndram and had to have my chemo reduced after cycle 2 to 1650 twice daily but it’s still working.
Nice to ‘meet’ you ladies
take care and very best wishes for good results
Chris xx
Hi Ladies - Just to let you know there is a delay in me joining you. I was due to start Cap. last Monday, but there is a non chemo trial at the Marsden I might be OK for (Abiraterone / Androgen Receptor). So, Im down there on Friday to find out more. Fingers crossed!
Hugs to all
Sadie Xx Xx
I’m on my 3rd cycle of cap…very mixed bag of side effects…cycle 1 was lots of stomach cramping, cycle 2 I had a stinking cold through it all and I was basically away with the fairies, this cycle (I’m on Day 8) is bad fatigue.
I still get the odd cramp but I’m trying to eat little and often and avoid big meals, seems to be kinder on my digestive system. I only take immodium if the cramping gets severe. I also find digestive biscuits and soup (not together, mind) are my safe foods.
So far, okay with hands and feet, they get tingly and at worse itchy (Piriton helps) plus regular creaming (Udderly smooth) especially after a bath. Also been lucky with mouth, just yukky metallic taste, so I tend to drink fruit juice to cut through the crap.
I’m on 2000mg twice a day. One more cycle after this current one and then a scan to see if it’s doing any thing.
I have a regional recurrence, a lump under my arm, with no evidence of spread.
Lots of hugs to the cap girls,
Amanda
Hi Ladies
Started my Herceptin last Thrusday follwed by Capecitabine Friday (1800 x 2 daily) Was okay until Tuesday when I developed what looks like cold sores on the end of my nose!! been to drs and said it could be or impetigo so now got more antibiotics. Apart from this small thing and feeling tired I am ok.
Also sent me for a bone scan and phoned up for results today and breast care nurse says there is slight marking on ribs 8 and 10 on one side and rib 8 on the other and she has to refer to onc now to se if further tests required. I am not being funy but if there is any doubt about what it is I need them to do further tests. I need to know one way or the other what this is.
Waiting for her to get back to me later today. Hope it is good news I could do with some.
Take care
Karen xx
Hi Karen,
Just a thought - I’m sure on another Xeloda thread (I think the one about Xeloda and the week off) people were mentioning sore noses, so your cold sores could be a capecitabine side effect. It may be worth mentioning to your oncologist next time you see them.
Hope you get some answers re the scan this afternoon - my understanding is that the bone scan highlights areas, but is not good at determining what the causes of any suspicious areas may be, and you are right that if they are concerned, they will probably follow up with a different scan.
Good luck, and best wishes,
Julie x
bumping up for 19white62
Is anyone as shattered on this stuff as I am?? Am only on my first round and today have spend all day in bed. Am struggling to eat anything. Its wednesday of my 2nd week. I will ask onc to reduce meds by 25% as I cannot live like this. I have no appetite at all and cannot face eating much if anything.Back to bed, Chris xx
Oh Chris that sounds no fun at all! I hope someone replies to you soon.
Ladies - I will not be joining you, at least for a while. Ive been accepted onto a non chemo trial at the Marsden and so will be giving that a go. Best wishes and hugs to you all.
Sadie Xx Xx
hi dipstick i am the same, low this is my 2nd round i am only on day 2 of it,going 2 stick at it low,hope you feel better soon,i will let you know how i go .take care 19white62
I’ve been really tired on my 3rd cycle…now in the non-med week and still shattered 
Hi all
just got tomorrows tabs to go then a week off, one whole cycle done. Am still really tired. Have struggled to sleep though, will take a sleeping tab tonight. No appetite, partner and step-mum have been in kitchen this afternoon making up some high calorie meals to freeze that are meant to be easy to eat (hmmm) if only my stomache would want them. I dont even like the smell of food much. What a wuss!!! Must go and get a bath, not really worth getting dressed today is it??? soon be bedtime!!! xxx
Hi Chris, I was so unwell on Cape, that I was taken off it after 2 cycles. It even gave me inflamation of the bowel. I had 5 weeks off and now have just gone back on it on 50% dose and am actually feeling not to bad. I do get an unsettled digestive system some days, but that is all. I am actually managing to have quality of life, whereas before I just went bed to sofa and back again.
Tell your oncologist like it is and ask about the options. I know from what my Onc said, that there are numerous variations available for taking this drug.
Take care
Jane x
Hi Chris,
Not sure if I’ve posted about this earlier on this thread, but as Jane says, there are lots of options re adjusting the dose on Xeloda. I had quite severe hand/foot problems, and the solution for me has been to reduce the dose by 1/3, but take it continuously, i.e. no week off. That way I get the same total dose, but less each day, and it seems to be working for me.
Hope your onc can help you find a good solution,
Julie x
so far so good,
i am on my week off of cycle 2.
side effects so far are fine luckily for me,
i feel a little sicky but i have not been sick,
i get tingly feet & hands but i am using udderly cream & so far so good.
The main thing that as upset me is my hair, its thinning
my onc did tell me it might happen but its still made me cry.
hopefully it wont all go & maybe this week my week off it might grow!
my belly is a little strange gurgling & bloats up,
but i guess that is because i seem to have gone to opposite to most and instead of diarrhea i get constipated!
i cant cope with big meals now either and when eating out i order kids meals!
my pain is now under control my onc gave me Lyrica 50mg,
i take it 3 times a day.
1st thing when i wake up the pain is awfull & i am glad when i can take it, i have to wait 1/2 hour as i now take a daily bone strengthening tablet Bondronat 50mg.
Hi girls
Well I have just had my first cycle of xeloda and am now having my week off, except the lapatanib of course which is continuous. My side effects have been mostly diarrhoea which I have had most days despite trying to control it with immodium. My hands and feet have become a little more delicate during the fortnight and the numbness from my taxotere last year which hadnt all gone, has slightly worsened. I also feel my mouth is about to burst with ulcers, I can feel them all under the skin but hopefully carrying on with the mouthwash this week will keep them at bay.
I am going away with my OH for a couple of days break this week and my daughter’s taking me away next weekend for my recent birthday so I cant wait to get away, even if its raining! Its been a hard slog for the last couple of months since I found another lump and I only finished herceptin in February, and found the lump about 2 weeks afterwards. I think waiting for results has been the most difficult to cope with, and of course the diagnosis of spread of cells to my lymph nodes, lung and liver. At least thereis treatment to try and slow the spread.
This thread has been so helpful with info on treatment and side effects, keep them coming…
Anne
Hi all I’m on cycle 7 not had any se but today have noticed my feet are really red hot and the skin very tight like sun burn any tips be great hope all is doing ok Laura
Hi Xeloda Queens - just popped in to say I’ve been trying a new foot cream on my very sore (8-years-worth-of) Xeloda feet, and I think it’s really helping. It’s Scholl Cracked Heel Repair Cream with ACTIVE REPAIR K+ (I know . . . what on earth is that??). It has urea in it, but there’s no info about what percentage, unlike Eucerin & Flexitol, which give more precise info. The Scoll cream seems to stick to my feet, rather than rubbing off on my socks like some of the other creams so it’s likely to have a much longer “treatment time” when used at night, i.e. when you’re not walking around. Might be worth putting on the list of possibles, if the cream you’re using isn’t doing as much as you’d like. xx