Hi Barton,
such a shame…I love maltesers myself, but cant have too much chocolate as it plays havoc with my bladder due to the caffeine. Unfortunately am being absolutely forced to eat turkish delight this afternoon( love it) now that wont break a tooth!
thought of you again last night, actually I think of you now every night when im skipping round the ‘lumps’
your tip has really made a difference xx
Moijanxx
hi.im just finishing my first cycle on capecitabine.2 weeks on 1 weekoff .palliative chemo for breast cancer ive been fighting since october 2015.Ive been taking 1800mg twice a day now the first week spent wondering and worrying what my side effects (of which there are many )would be like Day 7 i started to feel very tired no energy at all (fatigue set in )eating not too bad gone off coffee i seem to like lucozade am drinking gallons !!!.Hoping my energy will now pick up for a while.will my side effects get worse the more cycles i do ?Am on cape indefinately depending as to whether it seems to be workoing see oncologist next week .
Hi Barton thank you for your reply. The fatigue is really hard got so low.also taste not good don’t enjoy my food. Hands and feet ok at moment as I moisturize a lot. Was on fec chemo in December 2016 for 6 sessions that was worse as I lost all my hair etc was told this time I won’t which is good
Hi Angela
Welcome to the Cape thread. I started Cape 6 months ago and have found it to be a very effective chemo so far. Like you, I suffered with fatigue during the first cycle; I remember it well. However, as Barton says everyone is different, this did subside. I was on the full dose for 6 cycles after which my Onc reduced the dose to 2x 1650 which suited me much better as I was suffering with a dodgy tummy and sore hands and feet-these were not debilitating, more irritating as, everywhere I went, my good friend Loperamide came with me. It is always an anxious time when we start a new chemo, waiting to see what the effect will be. I was very anxious this morning as I had an appointment with my oncologist to see if TMs had continued to go down on the reduced dose; they had. Anyway, good luck with this new treatment. I do hope the fatigue subsides for you. Let us know how you get on.
Hi to all the other Cape Crusaders. Hope all going well with everyone.
George x
Hi Barton,
Thanks for thinking of me. Yes, it was such a relief to hear that TMs continue to fall, especially as I had convinced myself that the reduced dose wouldn’t be as effective. In this instance, it felt so good to be proved wrong. Oncologist has stopped chemo due to op and I will be on Tamoxifen for a few weeks, starting next week. However, I will have to stop two weeks before op which all depends on next week’s scans. 2 in the same day (lots of breathing in and out that day!). Seeing liver consultant 17th Feb to get scan / MDT results and find out if they can still go ahead with op. Fingers crossed. Never a dull moment.
Hope things are still good with you and TMs continue to fall
George x
Hi Nicky, yes just a matter of waiting now to see what scans reveal. Fingers crossed all stable and I can go ahead with op. Thanks for cyber grapes idea-sounds good.?
How are you doing?
George x
Hi Nicky/Barton
Glad things going well for you both. Good news on your TMS, Barton. Hope you got the answers you wanted at Marsden, Nicky. I live in the Midlands, but know that hospital has an excellent reputation. Have you got liver mets?
Yes, getting ready for scans on Weds. Practising my breathing ?. I have asked BCN to give me results as I am not seeing liver consultant until 17th Feb. Fingers crossed there is no progression.
Have a good weekend all; it is going to be a cold one 
George x
Hi there everyone…had to search for this thread! Hope everyone is doing well?
Moijanxx
Hi everyone especially Barton. Usually post on bone mets thread but started cap . Had a week off as affecting platelets so having one week on and one week off to see what happens. Restarted on Thursday and steroids been reduced one a day. Cap dose is two x twice a day but half strength. Just can’t stop eating at monand so thirsty . A bit moody as well that is what my family are telling me lol ! Just feel tired and no motivation which doesn’t work with my three active kids.
Go for review on Thursday luckily no transfusions at mo for this week. Any advice /info would be great .
At least it is slowly getting darker later. Just need some sunny nice weather. Think it does not help .
Take care everyone xx
Thanks Barton. Think you are right about being under stress at mo. Hubby is working extra shifts to cover the time he has had off with me. So he is grumpy and tired. Weekend home with kids as well and my hip keeps licking so don’t want to go anywhere.
Hopefully things will settle down again. Keeping everything crossed.
Hugs to you and everyone xx
Thank you George. Everyone has made me feel more positive. I need to take each day at a time and not let my mind runaway. Trying to . I am coming off steroids at the moment so don’t know whether that is not helping.
The youngest has gone to a Birthday Party so a couple of quiet hours. A Mum at the party has offered to drop Him off at home so that has helped.
I will keep posted and info is helpful. I tend to google things and get worked up which I should not.?I can post on here now which will benefit me and everyone.
Enjoy the weekend everyone and hugs to everyone xx
Hi racer
Easier said than done, I know, but try to avoid Google. The stats are often out of date and we are all different. I have been tempted to Google many times but have stopped as info is often depressing, not what we want to hear. We all have our down days, but one thing that stuck in my mind from a Penny Brohn course was try to concentrate on the ‘what is, not what ifs’. Again, easier said than done. I also create a photo book about every 3 months of good things I have done so when I look back life isn’t just about hospital appointments. If nothing else, it always cheers me up.
Glad you had a relaxing afternoon. Hope you can book some more ‘me’ time on soon
George x
Hi George, know what you mean about down days and thinking "what if ’ I do lot of that what if I’d gone to doctor soon what if I’d had had mastectomy instead of lumpectomy, the list goes on. Also all I think about is how I feel, hospital appointments blood test appointments I can’t think ahead it all revolves round them.i can’t think about going away for a weekend or whatever in case I don’t feel well. It’s all what if!!!
Hi Angela, I know what you mean. Husband wants us to go away for a short holiday at the end of the month and I keep stressing about what happens if I am ill abroad. However, unless consultant says otherwise, going to “feel the fear and do it anyway” - it is only Portugal so not too far away and will give me something to look forward to on these grey January days. Don’t beat yourself up with the ‘what ifs.’ I had a mastectomy and my cancer came back. Sounds simplistic, I know, but surgeon said it was just bad luck. What treatment are you on? Hope SEs are not too bad.
Have a good week.
George x
Thanks everyone I will behave myself and not google lol. Yes George I have been on a waiting list with Penny Brohn as they do courses in my local area and thought it would help with relaxation etc. I was having some counselling at a Hospice that my son was accessing but that stopped as he is better. So trying to link with Macmillan to see what there is available. It did help me because I felt ai could just pour everything out and stopped me feeling too down .
Feel still tired today and tried to tidy up. Thinking if I can start motivating myself. Things took longer and had to do School run as well. Tea is on so time to just sit for a bit .
I don’t know whether I mentioned but cannot get rid of this yucky taste in my mouth. Any suggestions ?
I know what you mean about holidays as you darent plan anything just in case and has to be last minute. I asked my Oncologist for February as kids are off for a week . Told me I can’t leave the country but can holiday in U.K. As long as I can get back. He said he could do me a letter if I needed the Hospital. We had to do this with my youngest when he was having Chemo just as a back up. I have said to the Hubby that we will book something for a couple of nights and it is something positive to focus on. Hope you all can have a hol it makes you feel better and being away from Hospital etc .
Hugs to everyone xxx
Just following on from moijan posting …eleven years after my primary …I got hip pain and as I was busy moving house and working full time etc etc …I just took painkillers and put it down to old age !! I went doc’s …he said it was arthritus ( in my family) I went chiropractioner and dx with sciatica …anyway a whole year went by until I got the dx of bone Mets hips, femur and pelvis …I look back now and feel huge regrets I didn’t push for xray/ scan etc but I have to look forward and not back now !!
What is …is .
Carolyn xxx
Hi Carolyn it’s hard not to look back, I know I do.what if I’d gone to docs sooner, I should have asked for mammogramme,I should have had mastectomy instead of lumpectomy!!! I also find it hard to look forward more than a week or so thinking about when I next start cape again what are my side effects going to be like etc.my husband wants to go away in July for our anniversary but I can’t think that far ahead, the what ifs etc. It’s flipping hard physically and mentally xxx
Hiya Angela
Read in paper yesterday that they now say lumpectomy and rads is the better option for many ladies now …I had lumpectomy too so u would have probably chosen the best option. Either way it’s the rogue little cancer cell that escapes the original site that is the culprit …even after ten/ twenty years !!!
Trouble is until they start causing pain …we don’t know about them !!
Carolyn xxx
Anyone had problems with anger, I feel so guilty because after a very thoughtless comment from a relative I snapped in a big way.sime people dint understand how it all affects you physically and mentally.my first cycle of Cape got fatigue really bad haven’t been out in 2 weeks. Just had blood test and see oncologist tomorrow and start my 2 nd cycle of 2 weeks on and 1 week off. 1800mg twice a day unless oncologist reduces my dose.the person I argued with isn’t speaking to me now it just doesn’t sink in with them I can’t help it I get so frustrated xx
Hello Angela
Sorry I can’t answer your anger question as although I’m posting here …I actually am not a cape crusader yet !
I know other ladies will reply but I guess as it does hit the brain …it could affect your mood maybe .
People just don’t understand secondary dx …they think a few pills and we are all ok again .hence why this forum is so helpful as we are real people with the same thing in common …cancer !!
Carolyn xxx