Hi everyone,
I am just going on this clinical trial (just found out I have liver mets) has anyone been on it or heard of it. I am not sure what Arm I will be but will find out soon. Just going to hosp today for head scan, ecg etc. I am really worried about all the side effects, like everyone just want to get on with my life.
I have been reading some of the comments on Xeloda but still really scared about taking it.
Take care
Love Debs
Hi
I am also on this trial, are you triple negative because the trial I am on is only for triple negative patients. I’m sure it’s the same trial however i refer to the other drug is Sutent not Sunitnib(just easier to say)
The Sutent is a lot more toxic to take that the Xeloda, the Xeloda is fine once they get your dose right. The Sutent turns you a yellow colour and gives you stripy hair(circular not up and down)
I am on the Xeloda and have been since July last year and touch wood it continues to work. let me know which one you are chosen for and how you are coping with it.
Love
Diane xx
Hi Diane,
No I am not triple negative, but I am am HER2 negative (i think). Anyway found out today from nurse that I will only be taking Xeloda - I am not sure whether this is a good thing or bad. What do you reckon?
By the sound of it you are only on Xeloda as well, or did I read it wrong. Anyway going to hosp Thursday to and start taking it as from then. I just want to live a reasonably normal life, do you think it is possible on this drug?
Thanks for replying to my post by the way and hope you continue to benefit from Xeloda
Take care
Love Debsx
Hi Debs,
I was on xeloda for 2 years and had good shrinkage I also found it the easiest chemo so far. The only problem I had was the very dry skin on my feet and because I did not deal with it srtaight away I had blisters after walking on them for too long, the problem was solved by my very patient husband rubbing my feet with e45 cream he still does it and I have beautiful soft feet. I was on 2300 twice a day 2 weeks on one week off. It was really good because we were able to sort out nice things to do on the week off as family live up north we managed plenty of visits.
Good luck with the trial.
Love Debxxx
Thank you girls for the info. I’m Her2 but not negative. The Herceptin seems to be working on the body bit but I;ve just been diagnosed with Brain Mets. So I am trying to find out anything that may shrink the tumors. I’ve found out about Xeloda but not sure if my Oncologist will give to me. Not sure if this is a North South Divide time will tell.
They never told me there was a Brain Body Block and the Chemo and Herceptin may not get through. So if you get any bad headaches with your Herceptin make sure you get a Brain Scan from them. I only got picked up by my own Doctor.