I was dx in Aug 07 grade 3 8cm tumour, chemo first and 7 out of 15 nodes effected after chemo with lots of vascular invasion.
I have recently had a few scares all of which have fortunately turned out to be nothing suspicious. However i started before xmas with a very painful lower back. The physio i have been seeing for my arm recons my sacroilliac joint and pelvis is inflamed and asked the gp to prescribe short course of dicflonac which he did. They helped while on them but it is as bad as ever. It’s really uncomfortable at night and i cant lie on my back as it aches, my bottom is also really sore (bizarre i know)
Sorry for rambling the reason for the post is has anyone else had these symptoms and is it an area where you can get mets. I last had a bone scan at dx but have had chest and abdo ct more recently. I am due to see the onc in a couple of months and don’t want to rush to see him yet again if i can avoid it.
It just seems that it has been one thing after another and that i’m never going to get back to some kind of normal.
I would definitely get that checked out asap - I really hope it’s just another scare which turns out to be nothing but I thought my ‘bad back’ was just a bad back and turned out to be secondaries to the spine and ribs. I really hope yours turns out to be nothing to worry about though.
Fuzzy
You need to get it checked out, you wont have peace of mind unitl it gos away or you check it out, its been going for a few weeks so its perfectly reasonable to ask your onc about it, expecially if you are on diclofenic and have been through the GP. You can pretty much get bone mets anywhere and the symptoms vary alot,
Sorry to hear your news. i would definately get it checked out. Bone mets can be anywgere and they give people different symptoms so the only way to find out is to have further investigaations - preferably bone scan or mri rather than an xray as secondaries have to be quite sizeable to show on xray.
Hope it is all a false alarm.
kate
Sorry to hear this. I know firsthand that sacroiliac injuries are really painful and can take a long while to heal. And yes, you get a pain in the middle of your butt cheek! Nevertheless, I think it’s still worth having a scan for your own peace of mind.
Hi fuzzyface - from another one with a sore butt!!! But I know that mine is secondaries. I developed extensive bone mets in 2002 and they have ‘behaved’ reasonably well all this time on bisphosphonates. However I have had more problem with the sacroiliac/pelvis/hip over the past 10 months and had endless x-rays and scans to check if there is progression or compression of the spine but all the checks show the disease is stable. Yet i get odd sensations through my butt, and hip and thigh. Sometimes a freezing sensation, sometimes very tender (almost like it has been scalded). I also get a lot of pins & needles and pain in lower back and thigh. I have had radiotherapy to the lower spine and hip, but if anything it has made matters worse. They do make a lot remarks like - degenerative disease etc. At the moment I am on amitriptyline in a low dose for nerve pain and diclofenac and these have eased it quite a bit. But you really should get it checked out - there are so many things it could be besides 2ndaries.
Dawn - how do you take the biphosphonates? I ahve Zometa IV atm when I have chemo but I have had the last planned for the mo and wonder if I can have my line out - or will I need it for continuing Zometa.
seeing onc on Friday tp doscuss, but alway good to know what other people do
Thanks to everyone for your comments. It makes me feel rather humble when some of you have much more to be dealing with than replying to me. I
'm 42 so I hope the wear and tear isn’t too bad but who knows. I think i knew the answer before i posted but i have been struggling a bit more with things since i finnished RADS and have had to start taking happy pills. Hopefully it might be the tamoxifen or zoladex thats effecting my joints. I will wait till next week and if there is no change i’ll phone the bcn.