Invitation to participate in a research study:
Young onset breast cancer decision tool for informed surgical choice
A brief introduction
Breast cancer is the most common type of cancer diagnosed in pre-menopausal women. Most women will present with potentially curable cancer. Most will have a choice between mastectomy or breast conserving surgery. Understanding all the facts surrounding the types of surgery that might be available in order to fully participate in the decision about surgery may be overwhelming. Information that is aimed specifically at the needs of younger women at the time of making a treatment decision may be not easily available. This is an area that has been identified recently by patients as a priority for research in breast cancer.
Who we are
We are a group of researchers from the University of Southampton and the University Hospital Southampton NHS Foundation Trust. As part of a research study from the Research for Patient Benefit programme, we are developing an Internet decision tool that provides relevant information aimed at supporting young women facing breast cancer treatment choices. It has been created with the help of young women who have been through a breast cancer diagnosis and treatment. Now that the first version of the decision tool is ready, it is important to learn how user friendly and useful this supportive decision tool really is for young women and make improvements to the design based on user testing.
How can you help us
If you were diagnosed with breast cancer under 41 years and would like to help us evaluate and refine the decision tool, please email Alex a.recio-saucedo@soton.ac.uk Your participation will take place by email, the Internet and telephone only.
Thank you.
Research for Patient Benefit Programme
This study is funded by the National Institute for Health Research
under its Research for Patient Benefit programme. The views
expressed are those of the authors and not necessarily those
of the NHS, the NIHR or the Department of Health.