The research will be into self confidence and how people feel when they are spending time in public when affected by lymphoedema and people’s reaction to them.
It will be carried out by Dr. Jacqueline Todd, of Wharfedale Hospital, Otley, West Yorks.
The research is due to start in January 2010.
You can register your interest now.
I’m really not sure if I can post either the complete address or e-mail here, but full details are available on:
uklymph.com/forums/index.php?topic=931.0
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I was very interested to see your post Bahons2 , as this is the hospital that I will be going to for its Lymphoedema clinic .
Perhaps I will learn more from them when I go next week…although my problem is in the breast and not my arm .
Will let you know if I find out more…
Hugs, Jill
Hi Jill
That’s very interesting. (And encouraging from your point of view - you seem to have an appt at one of the very few UK centres of excellence for treating lymphoedema - is that right?)
I think the research is looking for anyone who has any kind of lymphoedema following cancer treatment - and there are some pretty nasty kinds around…lymphoedema of the genitals, head, legs, etc as well as arms, trunk and breast.
Do let us know if you find out more - that would be great! Thanks.
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I don’t know much about the actual clinic yet Bahons2 , but the hospital is brand new, and attached to St James in Leeds where I had my Rads treatment.
Hope it is a centre of excellence…that will make up for being referred to a clinic that didn’t exist …and waiting since May to be seen !!!
Will ask about the research on Tuesday…and report back .
Hugs,
Jill
Hi there, I fired off my interest to the doc but she is on hols at the mo.
Sandra x
Hi there
There is more info’ about this research project in the quarterly edition of ‘Lymphline’, which has just come out.
One of the ways to participate will be a postal survey, so no worries if you can’t travel at all.
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The clinic at Otley was very impressive and I had a very positive experince there…but with everything that was happening, I forgot to ask about the research project … ooops !! Will try to remember at my next appointment.
Hugs,
Jill
No worries, Jill
It’s so difficult to remember, and sometimes get through, all the questions that come up during an appt, isn’t it?
(Saw my onc today and completely forgot to ask him about the genetic research programme I’m supposed to be participating in. Goldfish brain, me!)
BTW, I’ve been accepted onto the programme, too, even tho’ I now live in France.
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Hi Bahons,
I’ve just been excepted into this programme too, starts in new year. Thanks for the link.
Take care x
Your’re welcome, Lynni
It sounds as tho’ she’s getting a good response, doesn’t it? And nice that she’s letting people know straightaway whether they can participate or not.
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