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Mammogram recall

149 REPLIES 149
Shefgirl
Member

Re: Mammogram recall

Thanks Patriciamay

 

I have managed to get myself a bit more toghether over the last few days and have thrown myself into work so I am not thinking about it all the time.

 

You are so right - it does feel so much worse this time knowing what might be ahead of me - again! 

 

I've also found that I don't want to committ to doing anything socially until Thursday is out the way - again very much how I felt when first diagnosed.  

 

If it has come back, I know that I will be in good hands so I'll put myself back in the care of the NHS for now.

 

Thanks for your support - really appreciate it. Will let you know how I get on xx

Patriciamay
Member

Re: Mammogram recall

Hi Shefgirl.  I wish I could have a magic wand for us all.  I am not going to dress it up, I found it very very dificult with this re-call, even worse than first time round.  I think it is because we know the impact, and the what ifs etc.

 

I did reflect afterwards and think  "you cant control this", there is absolutely nothing you can do, so just go with what you have to do.  It didnt help that the re-call is all in the same unit, so you see people just on the start of their diagnosis and people receiving diagnosis.

 

I have asked for next years mammo to happen within the normal population screening which is in a different hospital, and they have done this.  I dont know if this will help.

 

I hope you can find something to keep your mind off things.  Let us know how you get on. xxx

Shefgirl
Member

Re: Mammogram recall

Thanks for replying Patriciamay x They used the words possibile abnormality in the wording of the letter used to call be back.  It has really shaken me as I was expecting to get the all clear.  Cancer just messes with your head so much.  I am trying to stay positive but it is really difficult

Patriciamay
Member

Re: Mammogram recall

Hi shefgirl.  Yes I had this quite recently at year two though, it really freaked me out.  I would say a numbe4 if things:  They are ultra cautious with us, so we get called back for any change.  Did someone use the “ word “abnormality?”, as that would be unusual? in my experience anyway.

 

 I rang the BC nurse to try and understand why I was being called back.  Usual stuff, however they did say it was likely to be nothing, And I got the understanding that they thought it was just “different”.  Anyway, it was all clear, normal glandular tissue.

 

Its a real downside this close monitoring.  Fingers crossed for you.


@Shefgirl wrote:

I finished bc treatment in February (lumpectomy and rads) on right breast.  Had my first year mammogram on 24th October and been asked to come back in this Thursday as scan has shown possible abnormality!  Absolutely terrified the cancer is back! Anyone else experienced this? 


 

Shefgirl
Member

Re: Mammogram recall

I finished bc treatment in February (lumpectomy and rads) on right breast.  Had my first year mammogram on 24th October and been asked to come back in this Thursday as scan has shown possible abnormality!  Absolutely terrified the cancer is back! Anyone else experienced this? 

Lin wales
Member

Re: Mammogram recall

18 July 😐
Lin wales
Member

Re: Mammogram recall

Waiting nervously for my op - worried about outcome x Emotions all over the place
Lin wales
Member

Re: Mammogram recall

Thank you so much - it's good to know everyone is so helpful. Xxxxxxx
ladybowler
Community Champion

Re: Mammogram recall

Lin Wales

 

As ann says it has been caught and is pre cancerous so that is really positive.  Once you give yourself a few days to get over the shock you will be ok, you have your wonderful holiday to look forward and all that vit D will set you up well for your op and recovery.

 

We are all here for you to help and support you whenever you need it.

 

Sending you loads of squidgy hugs

 

Helena xxx

Lin wales
Member

Re: Mammogram recall

Yes the Consultant was amazing told me to have my holiday and see me when I'm back, he has made appointment and all arrangements have been made. Thank goodness for BTW I would never have noticed it!! Just wish I could start feeling more positive ... Thank you so much for your reply it really does help xxxx
ann-m
Community Champion

Re: Mammogram recall

Hi Lin,

Well, thank goodness it has been picked & can now be dealt with, it sounds like it has been caught as early as it could be.

As you say it’s pre-malignant, it will be very straightforward to treat, however, it is a shock & it takes a while to process it all.

Other ladies here have had holidays when diagnosed & normally teams are happy to work around this, so see what they say about it. 

It will all be ok

ann x

Lin wales
Member

Re: Mammogram recall

Went last Weds to be told pre malignant cells, low grade but need to be removed - op on 19 Jul!!! Was a shock as I wasn't expecting that x Feeling low and sorry for myself but can't seem to pull my self out of it!! We'd arranged last year for a hol which is 1 July xxxxxx
ladybowler
Community Champion

Re: Mammogram recall

Lin Wales

 

Oh mate sorry to read that you are having to have surgery, what have they said about that.

 

You appear to be using teh forum correctly as your posts are appearing.

 

Sending you hugs

 

Helena xxx

Lin wales
Member

Re: Mammogram recall

Don't know if I'm using this forum correctly .......
Lin wales
Member

Re: Mammogram recall

Trying to be positive but so hard. x
Lin wales
Member

Re: Mammogram recall

Hi all well I am a quivering wreck, turns out after having another mammogram, ultrasound and biopsy I now have to have surgery!!
ladybowler
Community Champion

Re: Mammogram recall

Lin Wales

 

Well we will all be tehre in your pockets.

 

ANd as you can see from Jo's post it does not have to be bc.

 

Helena xxx

Lin wales
Member

Re: Mammogram recall

Thankyou it is a worrying time for everyone xxx
Jobey68
Member

Re: Mammogram recall

Hi Lin, Recalls can be for so many things other than cancer, I know 3 people since my diagnosis who had them and all turned out to be well.

My sisters was just an unclear image and when re done at the clinic all was fine, My cousin had a biopsy but was benign fibrosystic changes due to her age and my friend who again had a biopsy had scar tissue, all different reasons but all benign. Two of them have recently had their routine mammogram again and all was fine 😊

 

 

Lin wales
Member

Re: Mammogram recall

Weds 9am. Thanks for your reply x
ladybowler
Community Champion

Re: Mammogram recall

Lin wales

 

Hello and welcome to the forum.

 

Well the good thing is that you are being checked out.  The recall can be for a lot of other reasons and does not necessarily mean that it is bc.  It could be that the mammogram you had was not clear so they want to do another one, or even if they have seen something on there it does not mean that it is bc, it could be a cyst or something benign but it is best to get it checked out.

 

When is your appointment?

 

Helena xxx

Lin wales
Member

Re: Mammogram recall

Need a lot of re-assurance - had bc 24 yrs ago!
Lin wales
Member

Re: Mammogram recall

My first time here just receives recall am petrified!
primadiagnostic
Member

Re: Mammogram recall

Hello everyone, got to know a lot about mammography.

I am a specialist, I work in the Diagnostics center in India, Bangalore- Prima Diagnostics.

 

EllieLily
Member

Re: Mammogram recall

New to site, I am 65 and I have just had the recall letter to my mammagram. I had a complete hysterectomy when i was  37 because of cystic ovaries but all was benign.  I asked for a mammagram just after my op and although I was told I didnt need one they did let me have one.  It came back I had a 5mm Cyst but nothing to be worried about.   When I began the automatic over 50 scans my second one  I have had a call back (11 year ago now) and had a biopsy but all was fine.   So  I have had 3 clear mammagrams.  I am petrified, as I am currently caring for my son who has Non-hodgkins.   Can anyone tell me if the hospital would still have the details of my recall and history all those years ago to compare this one to, or do they just look at the previous one.  I think I may be clutching at straws but I am so scared I cannot afford to be ill with my son needing me.

 

It is so good to read your posts you all seem so brave.

Charys
Community Champion

Re: Mammogram recall

How did it go Rozzy?

 

"that if the news is bad there are survivors."

 

I can tell you even better news than that, if the news is bad, statistically the vast majority of women get through it fine with individual effective treatment.

Gerri1963
Member

Re: Mammogram recall

This site is great. I had my first mammogram last year and thought it would be fine but I got recall but thankfully all was well and now just need to go back for the routine check up every three years.

 

. I was reassured by this site that even if I had a problem I knew it was going to be detected early. To say I was stressed is an understatement.

 

Thankfully I only had 2 days to wait for my appointment. The staff were so kind and reassuring even though I broke down at reception! 

 

It will be on your mind until the appointment but try to relax and what worked for me was a large (very large) box of chocolates! 

 

I hope it all goes well x

ann-m
Community Champion

Re: Mammogram recall

Welcome to the forum, Rozzy.

Please be assured if it turns out to be bc, there are many of us who have been through it & are now back to life as normal, most of us do make a full recovery.

If this is not your first mammo, then if it is bc, the mammo would have done it’s job in detecting it early when treatment is at its most straightforward. This happened to me, was diagnosed following my 2nd recall, had no symptoms, treated & back to life as normal within a few months. I now feel lucky about the whole thing. 

Hopefully all’s well, it usually is, but if not, then thank goodness it’s been picked up as it will be dealt with. 

If you want to, let us know how you get on. 

ann x

Rozzy
Member

Re: Mammogram recall

Good morning,

 

this is my first time on the forum. I have had a recall letter from a 3yearly mammogram and I have been terrified since I received it last week. This has never happened before and I have been through every emotion possible from being positive to thinking the worst.

 

I have no symptoms that I am aware of and that seems to make me feel even more terrified.  However, reading all of your posts has given me some reassurance that if the news is bad there are survivors.

 

My hospital appointment is today so fingers crossed all will be well.

mumgonemad
Member

Re: Mammogram recall

Hi Cazlag, yes I went to a routine mammogram thinking nothing of it. I was rather shocked when I was asked to go to breast test Wales for further tests. I also hadn't felt any lumps and had no concerns. (Thank God I turned 50 last year)
I had 12 core biopsies & fine needle from lymph nodes.
The waiting for those results makes your imagination run riot. Your just in limbo.
I was extremely shocked to be told i had 3 lumps & an effected lymph node ~ stage 1 breast cancer.
When will you get your results ?
Ladies on here are fantastic. Good luck
Lin
Niklam
Member

Re: Mammogram recall

Thank you, this forum has been a godsend the past day or so x

ann-m
Community Champion

Re: Mammogram recall

...and breathe, Niklam. Being recalled from a mammo is not unusual & normally turns out not to be bc. It’s more common to be recalled after the first one, because there is no comparison.
Although the anxiety when waiting is the pits, thankfully, something has been picked up which needs a closer look.
I had a recall after my second mammo, it did turn out to be an early & very treatable bc & back to life as normal quite quickly. Most of us go on to make a full recovery, but chances are, it may well not even come to that.
BC, especially screening detected, is very treatable as it tends to be picked up early. I had no symptoms at diagnosis, as the lump was too small to feel.
In hindsight, I’m so glad I went for that mammo, as I very nearly didn’t.
The appointment time is quite usual, these things are under national guidelines & appointments are usually within 2 weeks, so don’t read anything into it. It is also quite usual for clinics to call with short notice appointments as there are key performance indicators to meet.
I f you want to, do let us know how you get on.
ann x
Niklam
Member

Re: Mammogram recall

I’m 52 years old and have received a recall after my first mammogram 😔 I had a lumpectomy nearly 30 years ago (benign) Does anyone know if I might be more at risk of BC with my history? Absolutely beside myself with worry after receiving the letter on Tuesday. My appointment is next Tuesday at 3.15pm which feels quite late for investigations to be carried out or is it the norm to have evening appointments? I’ve already got myself diagnosed and ready to hear the worst, stupid I know but cancelled a hair appointment as I want to keep it as long as I can 🙈 Checking my boobs everyday, suddenly feeling all kinds of everything and feeling sick with worry. Sorry to go on and on but I’m freakin scared out of my whits 😌

ann-m
Community Champion

Re: Mammogram recall

Fab news El!  Thank you & all the very best,

ann x

Elfarmerswife
Member

Re: Mammogram recall

Hi Ann

All clear!  I am so relieved and happy!  Thank you again for your reassuring words.  

Best wishes and keep well.

El x

Elfarmerswife
Member

Re: Mammogram recall

Thank you so much Ann your kind reply means a lot! X
ann-m
Community Champion

Re: Mammogram recall

Hi Elf,

Sorry to hear about your mum & of course it's quite usual to feel the way you do. 

You are right, mostly recalls turn out not to be bc, but thankfully something has been picked up which needs a closer look & this is more common for the first mammo.

Even on the off chance it is, then bc is very treatable now & unlike what your mum's going through, tends to get picked up much earlier with some of the best outcomes out there.

There are many of us here whose bc was picked up early by mammo, in my case, treatment was quite straightforward- minor surgery & radiotherapy, followed by tamoxifen, so even if treatment is required, it's not necessarily that arduous.

If you want to, do let us know how you get on.  

ann x

Elfarmerswife
Member

Re: Mammogram recall

Hi

First mamogram, I got my recall letter on Satuday and go to the clinic on Thursday, I am beside myself with worry, my Mum has Ovarian Cancer and I am nursing her, I want to be with her every day at the moment as this is unfortunately the final chapter of her life, I cannot bear the thought of being ill myself and not being able to support her!  Having read the posts I now understand a recall is not unusual for a first mamogram and I feel slightly calmer.  It is also good to know that tears are normal too as I feel I am biting them back all the time at the moment. 

thistle66
Member

Re: Mammogram recall

Hi all, Just an update, I went to my recall appointment today and I had to have a core biopsy, they found microcalsification in my left breast about 2-3mm, I will get my results on 5th july, they said it is very small and i wouldnt know it was there, i am very sore at the moment so resting. X

Gerri1963
Member

Re: Mammogram recall

Please read my post I posted earlier in the year. Hopefully that will reassure you slightly. Of course you are going to be worried but at least you are getting it resolved. It could be that like me they had nothing to compare it to as it was your first one.  I know geting a letter out of the blue asking you to return is a nightmare and so stressful but we are all here supporting you.  Good luck.x

ann-m
Community Champion

Re: Mammogram recall

Hi Thistle,

It's not unusual to get a recall for your first mammogram, as there is nothing to compare it with, so chances are it may well be all ok.

Although it doesn't feel like it, the mammogram has done it's job in picking up something that needs a closer look.  If on the off chance it is bc, then please be assured it's very treatable these days, with most of us going onto make a full recovery.

What usually happens is you will see the dr who will do a breast examination & an ultrasound & repeat mammo may also be done, you may get the all clear at this point. If it's not clear what it is, then a needle biopsy maybe done, with the results taking another week or two, but this still doesn't necessarily mean it's bc.

Inevitably anxiety goes with the territory, we've all been there!, but it can help to carry on as normal & distract yourself if you can.  

ann x

 

thistle66
Member

Re: Mammogram recall

Hi all, I turned 50 in December and got my first mammogram 3 weeks ago, just got a letter today saying the results are unclear, so worried now, as i have an appointment this wednesday 14th June, i am aslo going on holiday on Monday so as you know i am stressed beyond words.

Nancynoodles
Member

Re: Mammogram recall

Thank you Ann for the reassurance. I will let you know how I get on but it will be a very long weekend.

ann-m
Community Champion

Re: Mammogram recall

hi Nancy,
Yes, it certainly can be a false positive, but the mammo has done its job in picking up something that needs a closer look.
Even IF it is a bc & it's your 2nd mammo, then it is likely to be an early diagnosis & easily treatable as I now realise, having gone through it. Outcomes are very good now, with most of us going onto make a full recovery.
ann x
Nancynoodles
Member

Re: Mammogram recall

I'm terrified too. Just had a recall letter following my 2nd mammogram for an appointment on Monday. I am pretty sure it is my left breast as I saw the radiologists face change. Is it less likely to be a false positive if it is my second mammo? I am so scared x
Optimissy64
Member

Re: Mammogram recall

Hi Raddy

I understand your concern regarding a recall letter, but as you would have read on these posts, most recalls turn out to be due to a non-cancer benign condition. I'm not sure if your letter was a response to a first-ever mammo or to a routine one? If it was your first ever mammogram it is not unusual to be recalled, as I was 15 years ago after my first one, as the radiographers have nothing to compare it with. There wasn't a problem then, and only 15 years later (last year) did a very early stage cancer appear which is now all treated and sorted and life is normal. IF it does turn out to be cancer, be assured that the mammogram has done its job and picked something up early that you wouldn't have known about without it. Fear is natural, but not necessary - breast cancer is very treatable as all the folk on here can testify. Don't get your hopes up that you will know for sure tomorrow though - it can take a week or so to get the results from the diagnostic tests so be prepared for a bit more worry when you are waiting. But try not to worry (easier said than done!) and don't do any Googling apart from on this site and the Macmillan one, as a lot of the information out there is out of date or inaccurate. Hope you got a bit of sleep after all. All the best. xxx

Raddy
Member

Re: Mammogram recall

I am sitting here washed out with worry after receiving a recall letter Friday night after work got appointment for 10:30 in morning can't believe I've only just read this blog I'm not a person who joins forums but I feel that scared right now and can't sleep I've search for it. Can I say thank you for all your comments especially the ladies who were fine but took the time to log bac in and say so hope I'm one of them tomorrow night x

Gerri1963
Member

Re: Mammogram recall

Hi

 

I had a similar thing happen to me a few weeks ago.  I had gone for my first mammogram and thought it would be fine.  Then just over a week later got the standard recall letter.  I too was v worried as assumed it was all fine.  I only had 2 days to wait for the appointment but it seemed like 2 years.  You do go through all types of emotions and at a time like this only a large family size bar of chocolate will work.

 

Bottom line is that the recall was due to it being my first mammogram so they had nothing to compare it to and it was fine.  They took another mamogram on the day (which being honest did hurt!) and then I was seen by the doctor (who already had got a 2nd opinion) and then they did an ultrasound and all was good.   This may sound odd but boy do I appreciate life better now!

 

I did breakdown when I arrived at the hospital though but they are used to that!

 

The chances are that you are one of the 10% who are recalled after the first mammogram and thankfully 3-4 recalls are false alarms.

 

I am not going to say do not worry as we all worry

 

I hope it will all be OK and please let us know how you get on.

 

 

Patriciamay
Member

Re: Mammogram recall

Hi Ollybobs

 

Welcome, so to speak, firstly just to say you can see on this forum you are not alone, there is always someone around who will have had an experience to share etc.  

 

I am assuming as as you say this is your first mammo this is part of the national screening programmme, and not for any other reason?  If this is the case my understanding is it is not in-common for a re-call as the radiographer has nothing to refer to, sometimes they do re-call as the image isn't good.  

 

I know exactly what you mean about the speed of the letter.  I wouldn't read anything in to that, despite the constant maligning of the NHS the breast screening service, is as a rule extremely efficient in England, which is great, but does freak us all out.

 

This is a rotten time, but mostly it turns out to be all ok.  Mammograms do pick up lots of things, for instance I have a "radial scar" which I can't feel but is benign.  Hope you can have a reasonable anxiety feee weekend.  Do post the outcome, as it helps others what ever it is.  Xxx

 

 

ollybobs
Member

Re: Mammogram recall

Hi All

 

I have just signed up today.

 

I had my first mammogram on Friday 21st April, I was shocked to receive a recall letter on Friday 28th April, does it mean anything as it arrived so quickly?

 

I did see my GP in January as I felt a lump, on examination he said it was nothing sinister and was dense fatty tissue (did use another word as well but cannot remember what it was).  Would this have shown up on the mammogram?

 

Worried lady here, any support appreciated.

 

Many thanks.