Thank you Jobey68 🙂
I have stopped googling now so that's helping. I couldn't find another explanation for peau d'orange, insect-bite like marks and redness online and that wasn't helping but I'm not a medical professional so there might be a really obvious explanation!
I have a problem with uncertainty anyway but then I guess most people do!
Your not silly at all, once the doubt creeps in you can't think of anything else. I can't tell you for certain that you don't have breast cancer but I do know it's the least likely explanation for your symptoms.
So many ladies pass through the forum with the classic signs but return to tell us all was well, in the grand scheme of things it's a small percentage who are actually diagnosed.
Its even less likely to have BC in both breasts from the off, of course it does happen but rarely which would lead me to think your issues are caused by something else. Xx
Thank you Jobey, that's really helpful to hear.
For all I know at the moment I might not have BC. I have symptoms on both breasts but they might be better explained by something else.
I'm really sorry if my post was silly! xx
I know a lady who had IBC, she had no spread anywhere. Mastectomy 3 years ago and remains clear and healthy. Google has its place but not in this instance, you will always cling on to the worst case scenario that you come across.
I know how hard it is and I'm not dismissing your fear but you know nothing yet so try adopting the innocent until proven otherwise theory and hopefully you will be skipping out of the clinic on Wednesday with a clean bill of health! Xx
Thank you Charys for empathising - it does completely feel like I've been rocked to the core!
Thanks for letting me know that treatments are more effective and that if there is anything wrong I just have to listen to my consultant and not google!
I'm so glad the NHS has a two-week wait policy but it still feels like such a long time!
What a horrible time you are having, to say the least, feeling so uncertain about things and rocked to the core.
Please don't google things anymore, it really won't help (you can see you've scare yourself silly!) and it certainly won't give any answers. Its not long to wait now, and even IF (and lets not jump the gun on it) you have a diagnosis of IBC made you really need to take your cues from the medical professionals around you. They will have much more up-to-date information, and give better guidance on the situation than all these (generally) out of date reports and things on the www. I did some reading on IBC the other day, and apparently there have been some very recent major treatment changes which have drastically pushed up the effectiveness of treatment in leaps and bounds. Things really may not be, and I don't believe they would be, as awful as you are imagining right now.
Everybody's situation is different, even if they do get a diagnosis, and hearing the horror stories on the internet will be really unhelpful for you right now.
I have my fingers really firmly crossed for you for Wednesday, and do keep posting here over the net few days, or ring the helpling number if you feel you just have to get some of the worry out of your system,
Just that really- I have my one-stop clinic referral (under normal 2-week referral) on Wednesday.
I'm 30 and have symptoms that may indicate 'Inflammatory breast cancer' and I have scared myself silly by googling my symptoms and finding out facts I didn't want to know (e.g. that IBC is only ever diagnosed once it's spread to either lymph nodes or more distally).
I really wanted to start my own family and that seems uncertain at the moment, as does the future more generally.