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Shocked and scared

14 REPLIES 14
Hope213
Member

Re: Shocked and scared

Awwww, thank you for your lovely thoughtful message to us all. We are with you every step of the way and together we will get through this. Sending lots of positive vibes and happy new year wishes to you.

xxx

Evie-S
Community Champion

Re: Shocked and scared

Hi PeonyRose9 - thank you for your wonderfully kind message and wishes for us all, I’d also like to wish you all the best as you start treatment and get rid of the cancer. We are right here for you, keep in touch and do ask any questions at all - or just chat, whatever you need. Will be thinking of you on Monday. Big hugs, Evie xx

PeonyRose9
Member

Re: Shocked and scared

I just wanted to say a huge thank you to you and the other incredible ladies who responded to my post. Your hope, strength, courage, experience, wisdom and encouragement has been of great comfort, which is difficult to hold on to after diagnosis and all the uncertainty surrounding it. I had my CT scan yesterday ( 30/12) and my bc nurse is calling Monday with the results and hopefully the date for my surgery.    Wishing you all a blessed 2021... May it bring you everything that you wish for yourselves xx

Evie-S
Community Champion

Re: Shocked and scared

Hi PeonyRose9 - I am sorry to read your news, so sending you strength and hugs. Hope213 and BluebellTime have given you some wise advice. Very good idea to try to park the diagnosis if you can, and remember we are all right here with you so come on any time you have questions or need support.

I had chemo, mastectomy and reconstruction, then radiotherapy - and Tamoxifen as ER positive like you. I’m also happy to answer any questions if I can.

Evie xx

BluebellTime
Member

Re: Shocked and scared

Hi peony rose,  so sorry you find yourself here but, as others have said, you are not alone,  lots of us have been through it and out the other side and there is lots of support for you. Waiting is horrid, but it's good  you are getting a plan in place. Try and keep busy and be kind to yourself while you wait for the op. I've had bc 3 times, mastectomy, lumpectomy and, 2 years ago a full node clearance. There will be lots of advice and info on here and the nurses are brilliant if you want to talk to someone who knows. I had chemo just after the last one and it was hard but doable, also had radiotherapy after the second and that was boring but pretty easy. It's fairly routine I think to have a ct scan, I've had 3 of those, and as you say, they were just checking but not expecting to find anything. Most likely those lymph nodes have done their job and caught any nasties and after the op the cancer will be gone. Sorry I've gone on so long but I feel for you and lots of people may be busy with Christmas so I did not want to pass by. I am fine now and just pop on now and then to share experience, I hope it helps. Ask away if you have any questions but remember we are all different and your team will do what is best for you. Love Mo xx

Hope213
Member

Re: Shocked and scared

I’m sorry to hear you have the diagnosis you have... but from your message everything seems positive that you will beat this! I really hope you have a lovely Christmas and manage to ‘park’ your worries for now. I’m just waiting for results which will determine my treatment path following my mastectomy in November so I’m trying to ‘park’ my worries too 🙂

Take care and the best of luck with everything.

PeonyRose9
Member

Re: Shocked and scared

Results day,

Well as expected, I have

Invasive lobular breast cancer in my right breast and some evidence within my lymph nodes. It is not considered aggressive and hopefully totally treatable albeit a challenging road ahead.

estrogen positive

Her2 Negative

Grade 2

CT Scan next Wednesday 30th as part of the proceedings but hopefully won’t find anything sinister.

Surgery in 4 weeks for compete mastectomy and removal of lymph nodes.

Current outlook is positive, albeit not relishing any aspect of what’s happening . If the cancer is localised to just my breast and lymph nodes then my treatment plan is looking to be very effective at getting rid of the cancer completely. Radiotherapy and possibly chemotherapy. I will know more after the operation.

Thank you for everyone’s encouragement, support and kind words at this awful time.

Best wishes moving forward in all our journeys 🙏🏼

If anyone has any experience, advice, tips etc.. I’m all ears.

Thanks again

Hope213
Member

Re: Shocked and scared

Thinking of you on your results day, sending big hugs x

PeonyRose9
Member

Re: Shocked and scared

Thank you for your warm welcome and support. Yes, Dr Google has not been helpful and if anything ramped up the anxieties. Talking to Macmillan, being here, praying  and reaching out to others has given me the most strength. 
Best wishes Evie. I hope all is going well for you xx

Evie-S
Community Champion

Re: Shocked and scared

Hi PeonyRose9 - a big hug from me and welcome to the forum, I hope we can all help get you through this horrible waiting time. The only thing I would add to the other lovely messages you have already had - do try to stay away from Dr Google, come and chat on here instead. In fact anytime you just want to chat or offload, please do. 🤗 Evie xx

Shi
Community Champion
Community Champion

Re: Shocked and scared

❤️👭❤️ bcn and all of us are here, you won’t ever be alone ❤️ do phone the number on here and speak to someone also ask away on here 👭👭👭👭 always ❤️and support and step by step you will get through ❤️💕💕Shi xx

Hope213
Member

Re: Shocked and scared

Yes how life can be so unpredictable! I'm so pleased I was able to help. This forum is so supportive and we will all be with you every step of the way. Sending you lots of positive vibes. Xxxx

PeonyRose9
Member

Re: Shocked and scared

Thank you for your reply. It gave me comfort not feeling so alone ( I could currently be in a room full of people yet feel alone!) I didn’t think a week ago I’d be posting on a breast cancer forum. How life happens to us.  In any case I’m here and whatever my experience brings I’m sure along the way it could benefit another. Like you did today, so thank you x

Hope213
Member

Re: Shocked and scared

Hello,

I can totally relate to how shocked and scared you are feeling right now. It’s is such an uncertain time and the waiting is agony. But please do try and stay positive and make sure you pull on any support you can from your family and friends. I had a quick referral from the GP with 1 tiny lump in my chest. At my first hospital appointment I ended up having endless mammograms, ultrasounds and biopsies. Then went back for a breast MRI scan. I too left very scared and didn’t ask any questions. The consultant did say there could be other explanations and not to worry. To cut a long story short, they had found 3 lumps in my left side and 1 in my right. I was filled with dread each time when waiting for results. I did have cancer on my left side but the right side was a fibrodenoma thankfully. So there is always hope that it might not be cancer for you. I am now almost 4 weeks post op and it’s great to know that those tumours have now been removed. The specialists are amazing and have supported me every step of the way. I will be keeping everything crossed for you to get positive results.  Try to relax if you can and be kind to yourself. 
Take care x

PeonyRose9
Member

Shocked and scared

Hello, I am really struggling. I was referred to a breast clinic after an emergency referral from the doctor. I felt a large lump in my right breast about 7 weeks ago after what seemed like an inflammation and tenderness. I passed it off as a possible infection but on this Monday 7th, I ended up with a triple assessment including 5 biopsies ( 2 from breast and 3 in lymph nodes) the radiologist said she could see ‘thickening’ in my lymph nodes, I was not expecting that! The ‘lump’ is 4cm and feels smooth and round, behind my nipple. It felt really angry and painful during the examinations, like a searing heat, but otherwise it’s quite calm.. When the consultant saw me after she said they didn’t want to see what they saw on my scans and that I’ll need to have surgery on my breast and on lymph nodes. She also said about my treatment being ‘managed’. I left without asking a single question as I was completely shocked.  All in all I’m absolutely convinced I have breast cancer... it seems a long shot that they don’t know what they’re experts in. Has anyone here had a similar experience and it turned out benign? Can cancer be extremely likely without biopsy results? The uncertainty and wait is awful. My results are scheduled for December 23rd @10.30am.