So sorry you are still in limbo, and having to wait another two weeks, wish I could help you, you must this is looking after yourself and taking one day at a time, however good news about the ultrasound.
Keep busy, easy to say. Thinking of you and wishing well
hugs Tili 🌈🙏🌈🙏
Keep in touch
Thanks so much Tili, the appointment was a bit inconclusive, which hasn't helped my anxiety. The doctor I saw didn't know anything about IBC (which was the main concern) so has booked me in to see a different doctor in two weeks time... 🙄 She did an ultrasound, which came back fine (but it often does in IBC), said they can't do a mammogram because I am under 40. The redness, rash, swelling, hardness in my tissue, and itching weren't addressed because she didn't know what tests to do for it. So I feel like I am still a bit in limbo. At least I will see another doctor next time and hopefully they will know more. I was surprised that a breast clinic doctor could know so little, though. At least the ultrasound was clear.
Will be thinking about you, lots of love brave lady. Keep posting and let us know what the outcome is
Pleased to hear you have made notes etc. well done with so much going on.
biggest hug Tili xx
Appointment tomorrow. My rash is looking more and more like shingles, which is great (! genuinely), but the hardness and lumps are still quite worrisome. I will let you know what happens tomorrow. It's an early start, but that's probably a good thing so that I'm not sat around worrying about it. Have written down the timeline of symptoms and drawn a picture of my breast and what has appeared where, just so that I can easily communicate (often freeze up when asked to verbalise or show symptoms). Bit nervous, but mostly just relieved to be seeing someone about it. We're lucky to have the NHS.
don't worry at all - it's really easy to misread things! I hope your insomnia improves soon x
Apology. I really shouldn’t be online when insomnia has me in its clutches. Please ignore my post. I do hope it’s all resolved quickly x
Thanks @Tili, I'll keep it in mind for next week. This is a wonderful site to have nurse support etc.
Hi @Jaybro, I think you misread my post - it's only the right breast, not both. My worry is inflammatory best cancer which does come on quicker, but I am hoping it's something completely benign. I already meditate twice a day. It's getting harder to do because I'm uncomfortable, but I'm still doing it anyway.
My heart goes out to you, all this waiting around is not good, maybe today will be a better one for you, for a little more reassurance before your appointment why not give the nurses on this site a call, they are always so caring.
Wishing you lots of luck for next Tuesday, let’s hope for a good outcome
with love Tili 🙏🌈🙏🌈
Writing because I have some anxiety about breast symptoms that are getting fairly rapidly worse..
I have an appointment at the breast clinic on tuesday next week but they are going to ring earlier if there are any cancellations.
I have a very hard large area on my right breast in the upper right quadrant, with a lump to the bottom of that area, near my nipple. I also have another hard area under my right breast, again with a lump near to my nipple on the other side. I also have an intensely itchy breast and a rash on my breast (and an on and off itchy patch on my back, too) and occasional shooting pains of the kind I've never felt. My right areola has got bigger. My breast is not hot and I have no fever, so they aren't suspecting an infection. Part of me wonders if I have shingles or something - because of the rash (though no blisters, like is usual with shingles) - but again, no fever/headache etc., and it doesn't explain the rest. This all came on quite quickly. I first had itching about ten days ago, and that's when I noticed the hardness and lumps.
I am quite worried and have been trying to distract myself with coursework (I'm an OU student part-time), but have handed that in now, which leaves a lot of worry time. I think I might just walk up to my allotment this afternoon to keep my mind occupied, but it's so difficult to not just think about it all the time. I am 35 and I live alone with my cat - I have a partner, but not living with me. Lots of my friends are moving away from the area in the next couple of months, so I am nervous that I am not going to have a good support network, and I have a bad feeling about it all. Fingers crossed for atypical/mild shingles and a benignly lumpy breast!