ive seen ur post i have similar multiple bilateral lumps, when i first found them 6 months ago they put it as birads 3 probably benign, 6 month later only one lump grew a bit in diameter and they requested biopsy for it. Waiting for that to be done. Did any oof ur lumps grow a bit in size or change at all?
I am 23 years old and have been going to the Hospital about my Fibrodenomas for about 4 years now. 2 years ago an ultrasound showed that I had atleast 12 Fibrodenomas on each breast that kept growing therefore my consultant at the Royal Marsden booked me in for an operation to remove some of them. The surgeon removed 8 in total 5 from my right breast and 3 from my left 7/8 were Fibrodenomas and 1 was a Phylloid Tumor.
Last year i went back to do the yearly scan in which they found 20 between both breast, 6 months I went back as I had found a new lump that is causing me a lot of pain, bearing in mind that my lumps are constantly growing the nurse doing the scan only scanned the new lump as there was too many. At the beginning of this month I had another appointment, my consultant told me that she did not see the need to do a whole scan again as i had been scanned 6 months ago, i insisted that i wanted to be scanned as 6 months ago they only scanned that one lump.
After the scan we saw that there are multiple new ones growing as well, the consultant wants to consider Tamoxifen or Danazol treatment, but as a 23 year old i do not see these as 2 options as Tamoxifen will give me menopause like symptoms and Danazol will have exccessive hair growth, voice changes, breasts reducing in size.
Sorry for the long story, but I was wondering if anyone would be able to help me should i get a 2nd opinion? Should i go private?
Hi everyone, I am new to this site although I did write a post on another thread and then realised there was a thread specifically for benign breast diseases so here I am lol!!
In May, I was having pain in my left breast and found a new lump next to an old lump that has been there since 2001. I was referred to the breast clinic where I was diagnosed via USS as having around 20 fibroadenomas across both breasts. This was a complete shock to me and the sonographer said that there were so many lumps he wasn't sure how they were going to manage me. Once i'd got back to the Nurse for a discussion, she advised an MRI to determine whether any of the lumps looked as if they needed a biopsy and 3 weeks later the MRI confirmed that they are all benign. One of the lumps however has a couple of lobules and so they want to monitor this one with another MRI in January.
My main worry is that for those who have one, two, maybe three fibroadenomas, standard practice is to remove them but because I have so many, the consultant has said that to remove them all would require a double mastectomy. My initial reaction was to have them all removed because the thought of leaving all those lumps there scares the hell out of me and I am struggling to concentrate on my university degree because of them, but having a double mastectomy scares me too. I'm 37 years old and I notice from reading the available research that not only is it rare to get them at my age, it's also rare to get so many and this scares me too.
I really don't know what to do for the best. I know they are benign, but what if that changes over time. Can I really carry this worry with me for the rest of my life or do I just go for the double mastectomy and be free from all of this. I'm currently on medication for my anxiety.
Hello....I had the marina coil and developed breast cancer and had a lumpectomy, chemo and radiotherapy. My work colleague also had the coil and aslo developed breast cancer. We are comvinced there is a link. When she told them she had ot inserted they removed it straight away. When my doctors at my sugery realosed I had it in still they conta ted my on oncologist and had me back the next day to have it removed. I feel information is being with held and if so this is wrong. I feel I want to sue the company for this but cannot get any firm proof.
Hi Somer from Summer! 😉
Thanks for your message. The ultrasound was quite clear, it revealed 2 black circles which is the normal signs of fibroadenomas. Just the pain, i know sometimes they say pain is a good sign but it did push me to get in checked otherwise i would have left it which is never a good idea! Sorry to hear you have experienced the same, are there different types when you say complex? I cant seem to get much information out of my consultant.
The consultant thought it was a regrowth, but then checked my notes which confirmed both lumps are in the different place - directly behind my nipple. I have 2 scars, a big one under my breast and another around half my nipple - unfortunately not scar tissue 😞
This i where i should have asked more questions, he tried to drain it and it was decreasing in size on the US but didn't drain the whole thing? He said he would remove both lumps in my op later this month and gather the results then? I did look at the sample he drained but again i didn't ask the questions, just nothing to worry about he said. I don't like to worry and just try and get on with things but these lumps (not sure which one) have grown a bit since my consultation - maybe even after the draining?
Apparently I am just one of those people that unfortunately grow quite a few of these lumps! No really reassuring from my side, i have done some research but never feel like i know much about it. At the rate they keep appearing i worry i won't have much breast left, i am only a B cup!
I did find that the first one grew rapidly after having my daughter but i have to say, i cant explain the sudden growth of these 2. I did ask if birth control contributed to their growth and this apparently wasn't a contributing factor so it has thrown me. Did you see the results of your biopsy that confirmed your fibroadenoma or were they able to confirm straight away from looking at the US? It is always best to have them removed, how did you find the procedure? - did you wait long?
Will definitely push for the biopsy results of this lump!
Hi Summer and welcome to the BCC forums
I am posting a link to the BCC publication about fibroadenomas which you may find useful and it contains our helpline details so please feel free to call to talk your concerns over:
Hi from one Sommer to another Summer.
I will tell you what I know about ultrasound, they are very good at diagnosing fibroadenomas, due to the shape of the FA and the colour. Many people say, that fibroadenomas are painless, alas mine was not painless,it was what took me to the doctor in the first place as I presented with a complex one in January.
Given your history of these funny little PITA tumours, which is what they are, I would be pushing for a biopsy, on this latest lump. Your lump could be scar tissue.
The causes for fibroadenomas, are not known, although they are thought to be oestrogen receptive, hence their common presence in younger women. I too was thrown by this, given I presented with one at 43, but likely something that I have had for a long time. I opted for a removal, given my age, and prevention of screening later on down the line.
When they tried draining the cyst, did it not aspirate?
Is the pain and new lump, near to the incision where the last ones were removed?
Hope everyone is well!
I am new to the board and wanted to seek some advice about multiple Fibroadenomas, I am awaiting treatment for number 5 and 6!
Just a bit of history, i was diagnosed with my first Fibroadenoma in my late teenage years. This was left as I was told they can come and go, however after the birth of my daughter I noticed it had grew significantly. It grew to around 5cm in length and I had a lumpectomy 2 years ago to remove it - also removing another 3 that were smaller in size and found at the same time. All tests confirmed they were Fibroadenomas.
Just under a year ago I found another lump in the same breast and I had it checked by my local doctor. They didn't seem bothered and didn't refer me back to the breast clinic. I left it and left it until I felt a bit concerned and went back asking to be referred a few months ago. This time the lump was quite painful, different from my others.
My appointment last month confirmed my suspicions that I indeed have another lump which they said is a breast cyst, however this cyst was hiding another giant fibroademoma. I was abit shocked, been told they need to be removed and await my second lumpectomy on the 28th May. I didn't have the fine needle aspiration this time, just a needle to double check the first was a cyst (they tried draining it). Has anyone that has or had breast cysts experienced any pain? Are ultrasounds reliable in determining that this other mass is definitely another fibroadenoma?
Also I wondered if anyone has had multiple Fibroadenomas and what the causes are? I am just told that they are common in younger women?
Thanks for reading and appreciate any info! 🙂