I have been having the same symptoms and treatments for about 9 months now.
Every single. Time it settles it flares again. Longest I've been okay is 3 and a half weeks.
I've just quit smoking this week. Hoping it will go away now I've quit.
I know it won't. Just want to be smoke free so they will consider surgery. My breast is so scarred from being drained and lanced and cut. I have had enough. I can't work. Some days can't even pick up my kid from school I feel so ill all the time.
One of the only things I have found relieves the pain and helps it settle quicker is having a hot water bottle on my breast when it is flared. It seems to help bring out the puss.
Wishing you the best of luck with all this
Thank you Jill . That's very kind of you to reply . It really helps to speak to others in the same situation - hopefully someone will reply. These forums are brilliant for the support they give xxx
Sounds absolutely miserable for you .Im sorry I haven't any relevant experience to share but hopefully someone else will - I can understand you considering more radical surgery - these things really wear you down .Jill
Are any of you lovely ladies out there?
I have really come to the end of my tether with this. It started about 2 years ago and I had a surgery to remove the ducts. The surgery site got terribly infected and I got really sick and had about 5 lots of antibiotics to get better and in the process lost my job. Approximately each month - I do feel this is cycle related I get another infection behind my nipple or this month it is on my scar line of the previous operation. I often feel I have the flu and try desperately try and fight this with Vit c , Zinc etc. Sometimes I get away with it but most of the times the treatment is just antibiotics.
I have a seen private consultants and approx. 5 consultants at my local breast clinic. One surgeon wants to go in again but another says there is no point as they can never get all the ducts and all he suggests is antibiotics.
I am getting to the point when I just want the breast removed. Has any one done this? I am 52 years old still having periods. Has anyone gone through the menopause and it just stopped. My other issue is I have a really sensitive stomach and suffer from acid reflux which is made worse by antibiotics. Feeling really fed up .
Please can someone give me hope about how they treated this, what to do or that it goes away.
I totally feel you. I'm going through that same issue now. It's been around 4 years, progressively worse. I had surgery last January but after several months of my right breast being ok, it's come back with a vengeance.
It seems the periductal masititis has gone deeper into my breast and is no longer able to break off the skin on it's own so I had a choice of getting it lanced or opening it up to get it scraped and cleaned. I opted for the latter with the hopes of it getting better and not recurring anymore. Could you please tell me what happened to your case? I do hope you are better and have found something to make it stop. I used to be a light smoker but have stopped even before getting this so I agree with you that it's more linked to my period.
Thanks for posting!
Hi all. It's been a while since I've posted in this topic but I have been back to the hospital since. I went on the 10th/Sept, where I was examined once more and talked to someone who looked like an 'expert'. Thing is, she's told me there's 'no indication' that it's anything 'serious' and that duct estasia would 'most likely' be found in about 50% of women if they were scanned, so it's "common" but also that it doesn't present pain.
Obviously, this perplexed me, having been in pain for months and suffering other symptoms such as hair loss. I asked her why I had pain and she sort of shrugged (!) and said I think it's due to hormones/stress/anxiety as to why I have breast pain. I was like, is it normal to have it for 6/7 months? She didn't seem to think it raised any red flags but I'm still getting discomfort. She also advised me not to take the pill as it could make the pain worse. Funny since one doctor put me on them to 'help' me level out my hormones but this didn't help at all!
Very frustrating to be told different things but she said there was no other tests that can be done. Nothing to biopsy, no physical indications as to suggest it's malignant. Just 'hormonal' and that I needed to work on my anxiety. She's basically told me it's in my head. Yet, I'm still in discomfort and losing hair, not to mention stomach aches every other day. I'm not denying I have anxiety issues but to suggest that's why I've been in pain? I didn't buy it then and I still don't but she was very adamant that nothing more can be done and that I wasn't getting a biopsy and absolutely not to getting my ducts out.
So I'm at a loss. I've been trying to relax, eat well, lose weight, sleep well since then but it's hard because I don't know what's happening to me. It's hard to put your trust into a doctor because they don't know what I'm feeling and I'm concerned that those symptoms aren' going to go away and are actually malignant. But I can't count how many times I've been checked now, so they must not think it to be urgent or malignant? It's very confusing since I feel discomfort/pain, nipple reddening and mastitis symptoms myself and I've also been suffering with like..hot flushes, sometimes I am very hot but she said it was my hormones?!
Confused. Kat x
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