Hi, I'm copying the reply I gave to Jules on the other thread - and getting angry that this isn't more commonly known!
I was exactly in that position a few weeks ago!
I noticed a lump on my neck a couple of weeks after getting the vaccine, told my nurse, got sent to the breast clinic, the nurse found not only 1 but 2 lumps! I did an ultrasound, which was inconclusive, and so they did a biopsy there and then, and for 2.5 weeks I alternated between getting super scared and being more resigned.
It finally came back clear, and they told me that they'd seen a huge increase in ladies with enlarged lymph nodes after getting the vaccine!
I know it's there in the potential side effects leaflet that they give you, but it's in the "less than 1%" category - I was talking with my cancer counsellor the other day, and she'd also been seeing many in this situation, and we assumed that the "less than 1%" was in the general population, and if they'd checked just the category of "women", and "women who've had breast cancer", that might actually be a really consistent side effect.
Also, whenever you google "covid vaccine and lymph nodes" the articles always mention "armpit lymph nodes", never the neck ones, so I was even more worried.
So I can't tell you for sure that you're going to be ok, but be a little bit reassured from someone who's been there and heard a lot of comments about it too...
Oh, I forgot to say that it's been 6 weeks since I got the vaccine and I can still feel the lumps, although smaller than before, so it's takes quite a long time to disappear.
Please let me know how u got on. I am going through the same thing. Covid jab last Friday large lymph nodes swollen in collarbone. I am waiting to be re referred to the breast clinic. So scared its come back but wonder I its a reaction to the vaccine. I had BC in 2014 and had mastectomy, chemo, radiotherapy tamoxifen for 6 years and not on letrozole.
Thanks so much for the hug! Really kind of you to reply.
I have done some research and think it could possibly be due to my recent covid vaccine? I had my vaccine 3 weeks ago on the same side, according to the internet this can cause raised lymph nodes. Fingers crossed that's the explanation. I will still be attending my appointment though.
I cannot answer you but just wanted to reach out and give you a virtual hug while you are waiting for a response from someone who may be better placed to reply.
I totally understand you saying 1st April seems like forever away....it isn't but I get it....I was diagnosed in 2014, oestrogen positive, so not the same, but did have a near miss 'highly suspicious' secondary scare a few years later, which took what felt like ages to get clarity on (multiple scans and big gaps being during a summer when machines kept breaking down and staff on hols (yes an alien world of hols)! Turned out be be fractured ribs...I hadn't realised I'd ever fractured them and didn't know I'd aggravated such an old injury. So I totally understand your feeling during the waiting period.
I hope you can manage to distract yourself a tad till your appointment and results of any tests. In the meanwhile it sounds like it might be worth you ringing the BCN nurses on the no at the top right hand side of the screen to have a chat about it? They might be able to clarify any other possible causes of a lump in that location on your collar bone as well as general support?
Really hope it's not a recurrence.
Sending you a big virtual hug,
I was diagnosed with triple neg breast cancer in October 2009, I had chemo and a mastectomy. I then had my other breast removed 12 months later, mum is currently on her 3rd bc, so it was preventative.
I have just found a small lump on my collar bone, affected side, I have an appointment with breast unit on 1st April, which feels like for ever.
Anyone any similar experience? Its such a long time since first diagnosis, although mums 3rd was 10 years later and was a local recurrence.