Hi Helenp and Cookiesim, sorry to hear your second Chemo has been delayed as well, it seems to have happened to a few of us now. So frustrating isn't it, just when you're ready to get on with the next stage. I'm trying again this Saturday, hopefully the white blood cell count will be higher so it can go ahead. Don't know what happens if it's not at a safer level this time. I've been trying to recoup my strength this week, taking it easy and have eaten so many fruit and vegetables I'm getting a bit fed up of them - no idea if it'll make any difference but I'm giving it a go!
And that's a great mantra to have, Helenp - one day at a time and keep positive! We'll get through this...
Hope everyone is doing well and hello to the new August ladies. xx
Although I was dreading my second chemo today ( can't control the anxiety) I was actually disappointed when they wouldn't go ahead. Bloods were okay but I have a urinary infection that seems to improve and then symptoms flare up again . Advised to defere for another week and revisit GP for review. I had it all so neatly planned on my calendar. 8 cycles due to finish in the year! I guess it may not be as straightforward forward as I'd hoped but at least we have started the journeys ladies.
Thanks Claire. Bloods all good, and doctor wasn't surprised by my reaction to chemo. Meds all the same, and hoping for a better result this time. They didn't think there should be any reason for me to get another infection but said I did the right thing last time getting it checked out. So all set for round 2 tomorrow! Good luck to you and all the other ladies for the next cycle. Xx
Hope you're all doing OK.
Just wanted to say hi and welcome to Claire and her Mum.
Please ask if you have any questions and I will do my best! Are you going too Claire? It's a good idea for someone to be with your mum, even if its just to get a cup of tea! Best wishes.
For ladies who are going through hair loss right now......... it's really ***** !!
I think it was one of the occasionally times when I got upset. However, you do get used to it and it does grow back, I promise!
Sending hugs to all.
Hi cathysid, yes I've read it to my 6 yr old, the 4yr old wasn't remotely interested! I've spoken too the head at the end of last term as requested a meeting ahead of school starting again, so I will find out what can be put in place for alternative drop off and pick ups. Hes been really helpful so far. This is certainly not how I thought my little ones first day at school would be like.
Hi Catlady, glad to hear you're doing well after your first cycle. Bloods and doctor today in readiness for number 2 tomorrow, had 2 days of feeling well! Hoping for more next time round. Bit worried bloods won't be right, but there's nothing I can do about it if they aren't.
My hair starting falling out on day 19, and is leaving at a rapid rate now. Found the lint rollers really useful for getting the loose ones off my pillow! No bald patches that I can see, yet, but got hairdresser on standby to do the shave when I do. Hopefully the new scarves and hats I ordered will be here by the time I get home from the hospital. Have a good day ladies. Xx
Hi Claire137 and mum. Hope today goes well for you, are yoiu going too Claire?. I found the nurses amazing when i had my first lot.
Hi everyone, gosh you all sound like your pretty much taking it all in your stride. Second rounds having started for some. Sorry some of you haven't got your second cycles when expected, this must be so frustrating...just want to get it all over and done with.
Im now day 11 after first cycle. No hairloss yet, but waiting for it to start, am prepped with scarf and hat from big c shop. Keep reminding my children (4&6) that my hair is going to fall out.
i feel I've escaped too many side effects this cycle, taste buds affected, tingly tongue, space cadet head, bit tired, no sickness, very little nausea, one morning of funny tummy and a 24hr period of terribly painful heartburn, BUT as on docetaxel I'm awaiting the arrival of joint pain, tightly crossing fingers not too many extra side effects will add on though. Nervous for the next cycle to be honest, trying not to think about it. I have realised today that my little one starts first day of school right in the middle of the crappy first week of the next cycle though...hope I will be ok to take her.
I had my first chemo last Thursday, surgery is planned for afterwards.
So far SE have been minimal, nausea, fatigue, and constipation. I have had pain and discomfort around my tumour and lymph nodes. My BCN said this was not unusual.
This is a great place to ask questions and get support from fellow fighters!
Hugs to all
Thanks to everyone for reassuring advice, my second chemo didn't happen today as it's the bank holiday and my picc moved anyway so once that's reinserted tomorrow I will have the second cycle Wednesday. I. Still on antibiotics but hope it doesn't get delayed. Hoping to cope a Little better now I know what to expect and my symptoms are similar to others. Fear of the unknown with each new treatment. It's really helped finding this group and reading about everyone's experiences. X
Because you had an infection, it would have taken you longer to recover, so hopefully next time it will be much quicker.
Morning ladies, quick update from me! Day 19 and the first day I feel almost normal after first cycle, complicated by infection needing a/b that has given me prolonged diarrhoea tmi sorry!
Hair thinning rapidly now, wig collected but needs my hairdresser to make it more me first. Am considering having hair shaved if I start to get bald patches, It's short anyway, so would show more I think.
Have kept a diary, and made a list of SE for next appointment on weds, really want to avoid another infection - have no idea where this one came from or whether a SE of EC. And beginning to worry that my bloods won't be good enough for the next cycle.
Is anyone else, who is having chemo before surgery, aware of their tumour/lymph nodes? They can be quite "grumbly" particularly the lymph node.
Sue you did promise me I would feel better at some point, and you were right thank you! Just didn't think it would take this long, hoping for a better result next time. Xx
Hope you're all OK?
Mellylew welcome. So sorry you've had a bad start. The fatigue is worse in the first week, so hopefully you will start to feel better. Once you get through the first cycle, you will know what to expect for the rest. There tends to be a pattern. It's a good idea to keep a diary and then you can work out when your good days will be.
Hi Mary Kate
Sorry your chemo has been delayed and glad your son is OK.
They tend to leave it a week and then try again. The only thing that you can really do is eat plenty of fruit and veg.
Thanks so much Sib and Ali - it's been a tough day, but feeling better about it all now. I really wasn't prepared to hear that my immunity was low as I've not been feeling too bad for the last 2 weeks, just the last couple of days have been a bit run down. Didn't realise your's was lower too, Sib - reassuring that they refer it to your Oncologist, much better to be safe than sorry, and even if as in my case it does mean a delay in treatment...
Ali - shame you're feeling a bit worse the second time round and so sorry to hear your family news this week. Life carries on doesn't it and throws all sorts of things that we have to deal with alongside what we're going through - and just when you least expect it. Hope you're doing OK...
Take care Ladies, rest well and hugs to all xxx
Hello ladies, so a rubbish start to the day today. Went in for my second Chemo only to find out my immunity is too low for me to have it. So frustrating, as you say, Cath. They can't even give me an appointment yet as they're fully booked! Maybe that's why I haven't been feeling too good the last couple of days, light-headed, very exhausted and headachy - and hair is falling out by the handful now! Anybody know of anything you can do to boost your immune system? Chemo nurse just said as long as I've had all the injections, which I had before, it should just happen naturally.
Quite hard when you've psyched yourself up for the treatment, only to be told it can't go ahead... Also not helped by the worry of finding out that our son had a serious car accident during the night, a hit and run as well. Thankfully he & his friend have been discharged from hospital this morning with minor injuries, so lucky, seeing the state of the car... But the stress of that on top of all this has not been great.
Sorry - not having the best of days today.... Hopefully tomorrow will be better - just now taking it easy to try and re-boost my immune system!
Hope all August Chemo ladies are doing OK. Ali and Sib hope you're feeling ok after your second cycle. Good luck to anyone having their treatments this week xx
Glad you're doing OK.
Yes the first couple of days are quite tough in terms if nausea, fatigue and generally feeling not quite right. I found the first one probably the toughest, as there is an element of your body getting used to it.
Take things really easy over the next couple of days. Drink plenty of water and let others look after you.
Let us know how you're doing.
Hi Cookie and welcome.
I'm sure these symptoms are not uncommon unfortunately.
Let the chemo team know for next time, as there maybe something they can give you. All I would suggest is to make sure you drink plenty of water especially in the first couple of days as it helps flush the chemo through your body and will help with the headaches too.
Hi Cookie Day 15 for me on EC cycle 1, haven't been dizzy so to say, but have been light headed and spaced out. Headaches off and on. I too had an infection, and still on a/b - finish them tomorrow. Hope I don't get another one. I'm now not sure whether what I felt in week 1 was due to infection or chemo, guess it won't be too long until I find out! I'm going to go to my next clinic appointment with a note of how I've felt to let the doctors know and see if any of it can be prevented next time. When's your next cycle start? Xx
Hi I started my chemo this month, this is week 3. Very up and down and I am being treated for a second infection already and I though I was so careful. I had severe dizzy spells straight after my treatment for about 2 days. Lasted longer but became infrequent. I am on EC. I have also had headaches. Anyone else troubled with these symptoms?
Great news Sib, keep taking the pills! Have got an appointment to collect my wig tomorrow although still can't see much loss so far. I too am trying to think in small steps, huge milestone for you well done. Be kind to yourself and take care. Xx