I bet you've been thinking about that Bon jovi line for sometime now?!
I've put this on other threads...but worth sharing here.....when I was having radiotherapy the radio is on in the background. One day I was lying there, and Frankie goes to Hollywood came on with 'Relax' and Hit me with your laser beam'!!! I thought someone's having a laugh!!
hi all hope everyone is coping. Day 8 and still in my pyjamas but starting to eat a bit better and the dreaded constipation seems to have resolved. I now find myself obsessing over the size of my lump and I'm convinced after 2 cycles it's bigger not smaller. Having all this time to dwell and worry is no good I need to find my positive pants again xx
Melly I had palpitations after this cycle they seem to have subsided now. x
((hugs everyone)) x
I am having 6 cycles -3 x fec then 3x t. Had first cycle 11th August, followed by 2nd cycle on 1st Sept. I can stand blood and guts no problem but absolutely hate sickness. Needless to say, the nausea is my biggest problem. First cycle made me very sickly for about 6 days before I started to improve. Hair started falling around 17. Had signed up for Macmillan Brave the Shave but ended up having to have it shaved off a week earlier. Up to yet, raised around £700. Second cycle, sickness lasted round 8 days. Feeling much better now. Just hoping that the nausea doesn't last longer each time.
I have bloods taken the day before I am due the chemo by the district nurse. She comes round every Thursday to flush and change my picc. Round 3 due on 22nd...I will be half way through then. Should finish in time for Christmas but then having radiotherapy afterwards (probably in January-lovely birthday present, eh?).
Looking forward to my 'good week' now... x
The fatigue was the hardest thing for me to deal with. I didn't leave the house for a week on each and every cycle.
Sue, do you not get weighed before the start of each cycle? At my hospital, it was standard...blood, weight and consultant app. If not, then you definitely need to talk to them about it.
Sending all hugs.
Hope you're all doing OK after your latest rounds of Chemo and not suffering not badly from the side effects. I'm now Day 9 after the second round and recovering from the 'chemical hangover' and finally the dizziness is going. Suffering more with fatigue this time round but probably because I keep overdoing it, so just trying to rest as much as possible.
Interesting about not taking paracetamol in case it lowers your temperature - the nurses said it was fine to take it, and I have been taking it for headaches, but I'm thinking I should maybe take ibuprofen instead...
Helen - I asked the Chemo nurses last week about having a flu jab as I was told I should have one in Sept - they told me the best time for it to be the most effective is the day before treatment or the day after. Not sure if that's the advice other people have been given?? I've also been told to book in all my family, just in case...
Good luck with your Cycle 3, Sib - you're nearly half way through! And to anyone else who has treatment this week.
Hugs to you all and keep strong, we're getting there... xx
I would assume the third week, seeing as the first week you really don't want to do anything and the second week your immune system is low. However, its not something I did, so please check with your chemo team.
Whilst we struggle with SE we think it's never going to get better, and so after 12 days of cycle 2 I am so pleased to say that I feel a bit more like myself today. Tiredness has been overwhelming this time but I've managed to get a few things done this morning without feeling completely whacked.
Onwards and upwards to all August ladies I hope you all turn the corner soon too. In the meantime lots of hugs. Xx
oh bless everyone and all these rubbish side effects and anxieties, hope your all coping as well as you can. I'm having a nightmare with the constipation at the minute. It's so hard but we can do this 👊🏻 X
Fairy so sorry you're in pain. Do you have a team you can call over the weekend? Do ask for help they will be able to make you feel better. Hoping you get sorted soon. Xx
Thanks Claire, feeling a bit better today as I actually had a decent night sleep woohoo 👏 Had a short walk, but not much energy so came back feeling weary. Still, an improvement however small is good and reminds us that we will all start to feel better as the cycle goes on.
Trying to think positive thoughts, that the chemo is doing its stuff and giving me the best chance.
Hope you're all having a good/better day today too. Xx
Not sure if I've put this on the thread before, but worth repeating.......I was advised not to take paracetamol because it could mask a potential fever. However it is OK to take ibroprofen. So maybe stick to those if you can.
Hi all hope your feeling okay. I am starting to emerge from the chemical hangover after getting my second cycle Weds. Drank loads, took paracetamol but no shifting the headaches. Indigestion seems worse this time but I'm on the omeprazole. I can't really sleep much so sitting up has helped. Anyone else get a bright red face? I looked in the mirror this morning and with my new hairstyle and big red face looked very much like Friar Tuck!
Ali S. I asked my chemo nurse about my regime and why its eight cycles, she wasn't sure as said it's a new regime. My onc lead me to believe it was started for tnbc. Maybe just the new standard for my hospital. I'm sure everyones treatment is tailored to their own needs. My tumour is also quite large so maybe I need an extra dose! 🤢
Hugs ladies x
Hi Ladies, thought I'd dealt with cycle 2 quite well, but then yesterday felt rubbish, day 7. Stomach not happy with pills, so have returned to omeprazole and anti nausea and am beginning to feel a bit more normal again. Would really like a decent night sleep though. My tumour been grumbling too, maybe means something's working, got an untrasound booked for next week to see if there's been any shrinkage before cycle 3.
Hope you other ladies are managing with your medications to keep the SE at bay, and get a good night sleep when you get there. Xx
Just wanted to pop in and say hi. How are we all doing? Hope your 2nd cycles are going OK. Is the 2nd one easier? In terms of you know what's coming?
Ali, I think we all have those days, especially when we're feeling tired and having to deal with everything.
Horrible time having to deal with hair loss too. All I can say is that after the initial loss, you sort of resign yourself to it.
Sending you all a hug.
Hi ladies, day 6 cycle 2 EC for me, only a quarter through, as have 4 of this and then 4 T, plus Herceptin and Pertuzamab. But 1/4 is a start! Haven't had the muzzy head this time round, but feeling extremely weary today which I didn't have before. Nothing much to do though so have been kind to myself and just rested.
Hope the cold cap does the job for those of you using it. Having gone for the shave, I'm all stubbly which continues to fall out but is not so traumatic as when it was longer. Don't like the smell though of, what I guess is, the hairs dieing off sort of a singeing smell, weird and upsetting. Sorry if that's tmi 🙈 Xx