I've not had a good one either 🙄 Stuffing totally knocked out of me after a good weekend. Day 6 so not unexpected I suppose. Glad I can just rest up and take it as it comes.
Hoping for all August ladies to have a good night. Xx
I may have been a little too hasty. Not had a good night last night, or day today. Bald head is cold and clammy, shivers and bone pain in Lower legs. Not felt like eating...which is so unlike me-I love my food.
Hoping tonight and tomorrow I start to improve. X
Day 4, cycle 4 EC for me. Halfway through 👏 Switch to Docetaxal, Herceptin and Pertuzamab for the next 4.
Tiredness kicking in tonight, taste went yesterday - sweet better than savoury which doesn't taste of anything. But it didn't last long last cycle so hoping the same again this time. Anti nausea pills doing their amazing job again, I've been very lucky.
Hair still weirdly bristly, and eyebrows thinning rapidly! Elsewhere very patchy 🙈
Have repeat scan in the next 3 weeks, CT for lung nodes; a bit of a scary one that - are they secondaries or just scars?, ECG for heart before change of drugs, and ultrasound to confirm tumour reducing in size.
Hoping we all stay well this cycle. Hugs to everyone. Xx
Hi. Firstly an update. No pain in chest and finding it much easier to breath. Heparin injections for 3-6 months but hey-ho.
Not sure if I mentioned last time but I have my mri scan in November on right boon to check for changes in 'dodgy looking area' on last scan. Surgeon did bring up double mx last time we spoke.
Had first cycle of T yesterday and the sickness hasn't been nearly as bad as with the FEC, thankfully. I had taken just 2 anti sickness pills...just in case but fingers crossed, I seem to be ok. Taste has gone off quicker though compared with the FEC.
No other side effects at present. Hope everyone has a better week/cycle this this time. X
Oh my goodness bless us all on this **bleep**e chemo journey. I know in a few months we will all be looking back saying wow it was tough but we did it!
I now have painful piles to add to my list, bloody constipation. How's everyone on taxols coping now with the aches and pains? I'm getting the best relief from ibuprofen gel and heat pads at the moment, trouble is I get my pads in position then I have a horrendous hot flush and everything gets chucked on the floor. I have noticed also my ankles are very puffy, I imagine the inactivity doesn't help, anyone else a bit puffy?
i so hope everyone can feel a bit better this weekend.
Just popping in.... .
Sib so sorry to read that you will need further surgery. You must feel like its never ending. But they are doing everything for you to beat this horrible disease.
Sending each and everyone of you a massive hug
So sorry to hear that you're in hospital, Ali, hope they're looking after you and sort out your infection - feel better soon... And MAHjfarn20, seems like you're having a hard time too, hope you're doing ok. Fairy, you too, hope you're out of hospital by now and are recovering well. And Sib, Cookiesim, Xena75, Sue58, Butterfly, HelenP, Soworridl and any other August Ladies - hope you're all doing well - it seems like lots of us are having rough times recently. It's quite reassuring in a way that we're all going through these tough times together and are able to support each other - I so appreciate reading everyone's comments, it helps get through when you're feeling rotten and emotionally down...
Sorry I've been silent for a bit, I've been feeling pretty rubbish since my last Chemo, now Day 11 after round 3. My immunity finally recovered slightly, only just enough to have Chemo thankfully so no more delays, even so it was touch and go if they'd go ahead as they were worried if I had a blood clot in my PICC line, but all OK in the end. So I'm not sure if it was because I was only just over the white blood cell threshold before the treatment, but this time it's completely wiped me out - I saw some of you also found the third treatment the hardest so far. They've reduced my EC drugs to 80% to see if I can tolerate them better this time - so I was hoping for less side effects because of this, wishful thinking!
Have had the usual 'chemical' hangover but also have been suffering from those horrible bone aches this time which I know several of us have had - although I'm not sure why I'm having them already with my last EC, thought they were only supposed to happen when you have T? I've never had pain like it, and paracetamol/nurofen doesn't seem to touch the surface - seem to have spent most of last week sofa-bound, it's so frustrating and really gets you down that you just can't do anything, doesn't it? Thanks for the advice of Epsom Salts, have ordered some... Just starting to feel a bit more human now so hoping that's the worst of it over until the next onslaught - just hoping my immunity doesn't plummit again...
We're all getting there Ladies, there's light at the end of the tunnel and only a few more cycles for us all to get through. Big hugs to you all and take care xxxx
Yet another rubbish week. Woke up last Thursday with excruciating pain in left side of chest and difficulty breathing in...so painful. Tried relaxing and shallow breathing. Waited for district nurse to flush picc line. She was worried about temperature and called for go to visit. GP came and rang 999, querying pneumonia, leukocyte sepsis or pulmonary embolism. Spent rest of day and evening in hospital. Xrays and bloods done and to stop the tranexamic acid as it causes clots-after almost 12 weeks of bleeding, I stopped 6 days ago (Hooray). CT scan to be arranged. Sent home with more injections to thin blood... just in case. Had CT scan this morning. Confirmed it is a blood clot on my lung and told to inject heparin for 3 months. Just worried now that I will start bleeding again because I have stopped taking tranexamic acid.
So I've read through all the posts and come to write and completely forgotten what everyone has written 😂 This chemo brain is a problem for me.
I hope everyone is doing well as they can.
Today I had my 2nd taxol on the weekly regime. Side effects from the T so far seems to be the aches and pains. I'm using wheat bags which I am finding helpful. Also some tingling, mild numbness in hands, guess this is the neuropathy?
Other side effects are present but mild & intermittent (headache, constipation, nausea, sore throat, dry skin)
so far it's easier for me than the dreaded EC and all the problems I had with that
Anyway ladies we have come along way from our August start. Ups and downs but all staying strong 💪 keep up the good work 💋
Soworried - sorry for delay in replying. The heart problems I had were a heavy crushing type pain mid chest through to my back on and off through day 3 or 4 both first and second cycle.
My trop result (marker in your blood which shows heart distress) showed slightly raised levels. All tests apart from this came back good and heart OK. (I had ct scan, heart echo, ecgs, 24hr monitoring and angiogram) but still they regard this as chemo challenged the heart both times and the heart said no thank you, so they have decided they can't risk doing so again.
Butterfly!y I hope you feel better soon, its good to let it out sometimes, be kind to yourself x.
Fairy, hope you are well and home soon x
Thank you so much Sib, Ali and Sue..you made me cry but in a good way! I'm feeling brighter this morning, long may it last. It's so helpful, although sad, that we all feel the same..thank you for sharing Sue. It's crazy what we look forward to now! I have a flu jab Monday, oncologist Tuesday and chemo Wednesday - last EC before switching.
Hope we all have a calm and better Sunday, love and hugs to you all. Xx