Hi ladies, just been cleared for 6/8 DTP on Thursday with Port fitting day before woohoo! Think I must be one of the last to finish as my final one is the first week of the New Year - what a way to start 2018. Then it should be surgery and a decision made over how to treat my sternum. Will either be high dose radiotherapy or surgery resection - unusual but do-able. Having spoken to the doctor who gave me the news 3 weeks ago, I feel they are going to throw everything they can at me (!) to keep the little blighters at bay. Not sure I like the uncertainty of it all but going to have to find a way of dealing with it.
Good luck to you all having treatment or dealing with SE this week, I’m going to enjoy a hospital free day tomorrow! Hugs xx
Ali, great you've had your last Chemo - those words sound so good! Hope you're doing OK and good that you've got a date now for your surgery. Whose next to finish - Fairy and HelenP, your last ones must be soon?
Sib, glad you've got through your next round OK, such a long day for you, hopefully the weekly treatments are easier for you to tolerate. Like you, I realised my last Chemo was originally planned for today and that's a bit hard to take, but much better to have the drugs safely even if it's over a longer time - what's a few more weeks in the scheme of things? When's your last one Sib? Mine's the end of Dec, I think just after you'll be finished.
I'm Day 7 of the 2nd docetaxel and those dreaded joint and bone pains hit over the weekend as I expected - almost forgetten how horrible they are from the last round. Just riding it out and telling myself that the pains mean the drugs are doing what they should be. Keep feeling so emotional and down, I don't know if that's another effect of this drug - but it feels a bit like this is never-ending at the moment, realised that I'll have had treatment for nearly a year by the time it finishes - diagnosed in March and 4 lots of surgery to eventually remove the tumour, 5 months of Chemo then Radiotherapy. Hopefully I'll be feeling more positive soon, just need to remember that it's whatever it takes to get well again and that's the most important thing. We're all strong, Ladies, going through this and we just have to keep going!
Hope Chemo goes OK on Thursday Cathysid and for anyone having another round soon... Big hugs to all August Ladies xxx
2 more now. Day 9 of 4th and Herceptin and feeling 'normal' Pains have eased and sleeping through. Just slight sore throat and dry mouth and tigly feet.
Good luck next Tuesday. Was treated to a lovely lunch today, picked up and driven back. Felt like a princess. So going to relax now.xx
Thanks Cathy, Day 15 and I don’t feel too bad! Seems to take me a bit longer than some to bounce back..but at least I get there!
It’s a challenge for us all to avoid infections at this time of year..find myself wearing my scarf a little higher when people get too close! So far so good though.
Hope everyone is doing ok and has a good day. Hugs xx
Morning Ladies! How are we all doing today - hope the side effects are bearable this week?
Good luck for today Ali - Last Chemo sounds amazing! Light at the end of end of the tunnel for you, for this stage of the treatment. Fairy, MAHJfarn, CK, Sue and Helen, you must be almost there too... And belated Happy Birthday, Helen - welcome to the 50's Club! Hope you can celebrate properly after Chemo is over. Sorry to hear of your allergic reaction Sib, hope you're doing OK now and are tolerating your new drug OK. And Butterfly, so sorry to hear your news, keeping everything crossed for you... Hope your ear infection is improving too, Mishy.
Sounds like lots of us are finding it so hard emotionally now we're nearing the end of the treatment - it just makes us think of what's next round the corner, if this treatment really worked and the worry that this dreaded disease brings. I worry about my boys too, even though they're now 22, 19 and 18 - I think we always will...
Finally had relief from those horrific SEs from my first T, felt so much better at the weekend, so it was a relief to hear that my neutrophils were OK for my 5th round to go ahead on Tues. Also good to know that even though it's taken longer to bounce back and these SEs have been much worse, I've had more energy when I've finally got there - you hold onto any bit of positivity don't you? Feeling the usual Chemo fuzz and chemical hangover so far but dreading the weekend in case those horrible joint and bone pains kick-in again, but what will be will be, will take it one day at a time. Epsom salts for soothing baths at the ready...
At least I've found out my 7th and last Chemo has been moved from Boxing Day to the day after so hopefully I should be OK for Christmas and will be finished by the end of the year, assuming no more delays.
Virtual hugs to you all! Take care and good luck for the next treatments. xx
Wow, can't believe some of us are now getting to our LAST CHEMO!
I still have 2 to go but I'm starting to feel as if the end is in sight. I have finally lost most of my leg hair, but was thinking I'd been lucky and was keeping my eyebrows and lashes - looks like chemo 5 might see them off though. Oh well, better start drawing my eyebrows daily as they suggested at LGFB so I can draw them in the right place when they pop off.
Have you all been offered the Breast Cance Care"Moving forward" course? I was offered it at diagnosis(a bit premature). It's about getting on with your life after treatment stops. It's offered all over the country. Here is the link:
Hoping you are all doing well,
with THP after day 8/9 you should be in the clear until the next round(apart from a few residual mouth/taste and digestive issues, and maybe a bit of a sore nose) so try and enjoy it and stay out of infections way!
Hope you are all doing ok,
Bloody hell! 12 days til my last chemo and my eyebrows have decided to leave me NOW!!!! You're having a laugh! Why can't you just lose all body hair in the first cycle and get it over with??? lol! Am slightly celebrating as the horrible chemical hangover seems to have lifted overnight so feeling better today at last.
CT scan tomorrow as prep for radiotherapy, and a lifelong marker tattoo (?!), anxious but got to be done.
So pleased you’re feeling better this cycle Sue. And that you have had a good result from cold capping - worth the brrr!
Happy Birthday Helen - hope you can have a backdated knees-up further down the line.
I am having a good day today woohoo! Day 13 of first THP - this has been a different sort of brutal from EC. Can’t say I’ve had a fuzzy head, but have had the upset stomach - wow the cramps - no appetite, or taste - although it’s slowly coming back, and mouth is now feeling better. Had horrific aches and pains - not sure how much from TCP and how much from 7 days of GCSF.
Had my tearful moments like us all; find it hard that everyone outside seems to be moving on and making plans...Unfortunately I already know I have spread so that doesn’t help with the emotions.
Being the first of the new regime I have no idea what the next week will hold for me, before I start again!? Any clues?
Hope youre all having an ok day ladies. Love and hugs. Xx
Oh ladies, we're all suffering with the emotional side this week more than ever aren't we?? I hit the big '50' on Friday, but because it was day 5, cycle 5 I couldn't think about popping open a bottle or going for a slap up meal, let alone celebrating with a lovely weekend away as I'd planned more than 6 months ago before my diagnosis. My lovely family were so great, trying to make it a lovely day, it was upsetting me more!!!! I've had a terrible weekend of side effects, totally feel toxic, with a pulsating head, yucky mouth, bad tummy and tears. I have a CT scan scheduled for Thurs as prep for radiotherapy in Dec and am struggling to remain positive.
Thank goodness we all share how we're feeling because I know I'm not alone in this...we're all feeling the same and we know we'll have better days than this. Chin up ladies, it'll pass and we'll turn the corner soon.x
Sorry I haven't been in touch for quite a while. Lots of side effects and additional problems...
Had to see gynae several times due to extremely heavy bleeding for over 12 weeks... further tests showed cysts, fibroids and thickened lining but he doesn't want to do invasive treatment until cancer treatment finished.
This didn't help bloods...severely anaemia so had to agree to overnight stay in hospital and blood transfusions (or chemotherapy couldn't go ahead...levels were very much border line).
Week later, district nurse wasn't happy about chest pain I was experiencing...go came, rang 999 and I had a ride in an ambulance.... diagnosed with blot clot in lung...so now on daily blood-thinning injections for 6 months.
I thought the FEC was bad enough... but T is by far worse....seem to have all side effects going....nail pain, eye sight deteriorating, awful taste in mouth, ulcers, headaches, sickness, constipation for a few days after treatment followed by diarrhoea, piles (very sore due to diarrhoea.Sorry!)etc...
And the bone pain is awful....worse and lasting longer than last time... on morphine liquid -takes a while to stop/ease the pain but then it returns after only 40 minutes. Up until this week I have always tried to be really positive but this week has been so bad...I have questioned whether I can actually continue like this...and now I have oral thrush!
My last cycle is on 24th November( hopefully)... and I am dreading it!
Radiotherapy to follow
Also, read on another site that if you are on thinners for clot, they won't do reconstruction...Had left mastectomy before chem started so lopsided still... any one heard that on here?
Hi ladies, just to let you know that my plan hasn’t changed for the moment so 3 more THP and then surgery, at which point there’ll be further discussion about treatment to my sternum. Feeling a lot calmer.
I think the psychological side of this journey is as hard to deal with as the physical. It seems to creep up on you when least expecting. I’m surprised I have any eyelashes left the amount of crying I’ve been doing 😂 Support is so important, I hope we all find what we need, when we need it.
Mishy hope you feel better soon.
Hugs to all the lovely August ladies, hope you have good days and be kind to yourselves, you deserve it. Xx
Hi Meesh73. I too am having FECx6. I've just recently had number 4. I have my treatment on the Wednesday. I am finding that my bad days (which are not terrible, just feel queasy all the time) are the Saturday through to the following Tues/Weds. I am finding that I am having a couple more days off work as I have more treatment which my Oncologist said could happen. I find that my taste buds are all over the place. I'm usually quite the wine drinker but not as the treatment progresses. And I'm off coffee!!?? I wake up several times a night no matter what I do or what time I go to bed. Hopefully, if all goes to plan my last cycle will be on the 13th December and then Radiotherapy sometime in the new year, probably February. How are you getting on?