Oh Ali, this chemo is just so awful. What a blow, you really don’t need that. I hope you don’t suffer too much and it doesn’t interfere with your recovery. Sending you gentle hugs. Xx
Wow CK what a long day with a load of hassle mixed in. Glad the op went smoothly and you’re back home resting. Well done. Hope you take it easy and recovery is more smooth.
I had good results today, scan showed chemo has done its job and there are no active cancer cells showing in either the breast or the sternum. Almost makes it worth feeling so rubbish for the last 6 months. Haven’t had good news before on this journey 😂 so has taken a bit of getting used to today!
So no surgery on the sternum, just a blast of radiotherapy after breast surgery in a couple of weeks. And it’ll depend on the pathology results whether I’m able to continue with both Herceptin and Pertuzumab for the full 12 months. Am a bit miffed that they might drop the P, as with known spread I’d have hoped they’d continue to throw everything at me. Maybe I’ll ask their reasoning next time?
Next decision is lumpectomy or mastectomy..I think I will be too anxious to leave any tissue behind so am thinking the latter. Need to plan my argument for when I see the surgeon next week.
Hugs to everyone. Xx
Well done on your op, hope you recover well and fingers crossed that your results are clear. Thank you for giving me hope re my toenails! My eye is less sore but still swollen. Think it’s a stye so while the ointment won’t sort it hopefully it’ll prevent any further infection.
Spent the morning writing out my lists of questions for the doctors on Tuesday. Big day as will be told my PET scan results which for me will determine what surgery I have and then what treatment and management plan they have decided for the lesion on my sternum. Still half hoping they got the diagnosis off the CT wrong and there is no spread after all. Here’s hoping.
Hope everyone else is doing ok and managing their fatigue. It’s weird how the brain thinks I’ll do this..and the rest of me says “you reckon!” Managed a walk yesterday, but had to let my 83 year old Dad go ahead as I was too slow for him! Crazy times. Xx
Day 13 of final T. Still got 💩 issues despite the regular use of Imodium 🙈 but otherwise don’t feel too bad. Toenails on my feet hurt, especially at night. Doesn’t look like there’s any bruising but am worried they are going to drop off 😳 And then just as I thought I’d had all the SE going, woken up with a really swollen eyelid, so painful. Been given ointment to use so hopefully that’ll sort it out. No idea if it’s caused by the lack of eyelashes or just an unlucky infection. As others have said before..chemo the gift that keeps on giving..Xx
Helen, it was a different book that Shi recommended. I'm having chemo today 😞 but when I get a chance I'll look through the thread and find it for you xx
Helen, Shi mentioned a book on the Oct thread, so I don't if it's the one you're looking for. It might be worth asking her. She's TN and so am I. At the moment I'm still having chemo (5th one tomorrow) so feel ok at the moment, but like you, feel anxious about when treatment is finished and on my own xx
Thank you for your experience of radiotherapy Helen, some definite positives in there. 2 more and you’re done - well done for reaching the finishing line 👏 I hope you manage to have your break in Iceland, sounds a perfect way to celebrate.
Cathy thank you for the reassurance about Herceptin, that is such good news! Good luck with your op tomorrow. And Jo hope you are recovering well from yours.
Hugs to all the August ladies, hope you are all doing ok. Xx
Hi August ladies!
Am nearly at the finish line, two more radiotherapy sessions and I'm done on Thursday. I'm Triple Negative so no more drugs or treatments which scares me a lot! Feel quite helpless, so much so that I burst into tears in the radiotherapy waiting room yesterday, mortified! The regular contact with practitioners over the last few months has been like a crutch, it makes you feel that your burden is being shared, which is so comforting. Just yearly mammograms from now on...scary.
Radiotherapy has been so much easier than I expected. The fatigue never hit me really and at my review appt yesterday at session 17 the radiographer said it may be because I've experienced chemo and that I've become accustomed to being generally tired, this is a good thing as I expected to be wiped out but I haven't been at all. Physically, I'm experiencing what I'd say is a moderate case of prickly heat just below my neck on my right side and under my bra line and the rest of my boob feels like it has heat like sunburn. I've been recommended to take anti-histamines to help with the incessant itching the rash is giving me and it's worse at night but really isn't half as bad as I'd expected. I asked how long it will take for this to settle after I finish on Thurs and they said it may get worse for a couple of weeks then slowly improve. Hope I'll be ok for a little escape to Iceland (the country!!) in a couple of weeks, I want to try out the hot springs!
Am pleased that my hair is clearly growing back, when I feel my head now I feel hair rather than skin!!! Am truly fed up of the wig and headscarf thing now but will be sticking it out til Easter I think, I'm not brave enough.
I have a question...who was reading a book on diet for breast cancer a couple of months ago?? I made a mental note to read it once I'd finished treatment and now can't find the post. Need the title of the book please in anyone remembers it.
Keep going ladies, one day at a time x
Ali, I’m sorry you have to have another op but hope the moving on course has helped you in some way. Good luck for next week.
Mary-Kate these side effects are just so awful. I too haven’t had a good week but have woken feeling a bit brighter, just hoping the rest of me follows! Have had days when I’ve hardly been able to put one foot in front of the other. And am so fed up that my taste has gone again - no pleasure in eating. Really hoping that is the D and nothing to do with the HP as I’m continuing with them for 9 months.
Hope everyone else is doing ok, recovering from surgery and radiotherapy. I’m sure we’ll cross each other on other threads. What a brilliant find this forum was and continues to be. Hugs to all. Xx
Hi August Ladies
I'm now a couple of weeks after finishing Chemo - such a great feeling now it's over, but last week was pretty horrendous with the worst bout of side effects I've had so far. But this week I've bounced back, got a bit of energy back and I'm back to work which is good to have a bit of normality and see people again, even though it's quite stressful being back into a hectic work environment.
Had my Radiotherapy assessment last week and now have three dots tattooed, all ready to start on Monday! Bit surprised it's so quick, but sooner started, sooner finished.... Just hope I've recovered enough from Chemo to cope with it. Is anyone who's having Rads trying to work through it as I'm hoping to but want to be realistic as well - I know it can make you so tired once you're into the treatment.
So glad to have got through Chemo after The Churchill in Oxford where I'm at, has had such negative press this week in the news saying their Chemo treatment is 'unsustainable' - talking of delaying treatment and reducing the number of cycles for patients, so glad it hasn't affected my treatment but really feel for people who will be undergoing treatment in the future, if what they say is true.... Can't fault the treatment I've had, the lovely nurses and the NHS in general - all been so supportive and caring throughout my Chemo, I'm so grateful to them all.
Butterfly, so pleased you've finished now as well, hope the side effects are bearable for you. Great that you're finishing Rads on Tuesday, Mishy18 - it's been a long journey for you.
Jo, best of luck for your Op tomorrow, hope it all goes well and you recover soon. And Fairy how are you doing after your surgery, hope you're recovering well?
Sib, hope you're doing OK, it must be your last Chemo next week - you've had such a tough time through it all, you'll be so pleased to get to the end... Hope your nails start to grow back soon, it sounds horrible for you. I'm starting tamoxifen too soon and I'm a bit worried about the potential side effects...
CK - I agree with you about going through this treatment changing your perspective on things, people and life in general, hope it makes you stronger and able to cope with things life might throw at you - although I've only been able to think like that on the good days, just hoping they'll be more frequent going forward! 2018 hopefully be a better and healthier year for us all...
Ali, sorry to hear you didn't get clear margins and need to have another Op, I can relate to that as I had that several times before Chemo - really hoping they get it all next time, at least you won't have too long to wait. Hope doing the moving forward course helps you - the course does sound good, think I might look into it too.
Hope everyone else is doing as well as expected. Thanks for all your support on this forum, it's helped me get through this so much... xxx
Happy New Year everyone,
Have you thought about the BReast Cancer Care "moving forward" course? It's a 4 week course, one afternoon a week. It deals with all the issues that rise at the end of treatment and return to normal life. I'm going in March. X
Ali so pleased for you that your sentinel node was clear. I’m lucky that they’ll inspect mine while I’m having surgery so will take what nodes they need there and then. Yes I think radiotherapy will depend on the surgery, unless they have to do the axilla anyway. Glad they are giving you plenty to zap the little buggers!
Very little sleep last night due to steroids, glad I only got 2 more days of them! Although last time it was only the first night that was disturbed, so hoping for the same this time.
Have a good day ladies, hope you’re all managing ok. Xx
Thank you Ali. Be kind to yourself, as we all know it’s the waiting that’s as bad as any of the treatment. How many lymph nodes did you have taken?
The radiotherapy should certainly zap any rogue cells, they are giving you plenty to do the job. Hope you dont have far to travel for them.