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Anyone blogging about their experience?

21 REPLIES 21
catlet
Member

Re: Anyone blogging about their experience?

Here's mine and thanks for the boot up the jacksie to update it!

 

www.catlet.com

Mai7
Member

Re: Anyone blogging about their experience?

mustardandgrey
Member

Re: Anyone blogging about their experience?

An old thread, but I'm blogging about my experience and I'm sure others are too, so I've reopened the thread 🙂

 

My blog is:      http://thesherbetpatch.blogspot.co.uk/2018/05/fec-t-one-downfive-to-go.html

 

It's a general blog that I've had for ages, but at the moment it's documenting my breast cancer journey.

 

Sarah x

Belle
Member

Re: Anyone blogging about their experience?

Hi Catlet,

Humour is definitely the way to go! I've had some good laughs along the way. This is one of my 'hair' accounts, nasal hair in this case: https://gettingabreastofthesituation.wordpress.com/2016/07/08/nasal-deficiency/

Enjoyed reading your blog 🙂

B x
catlet
Member

Re: Anyone blogging about their experience?

Hi,

 

Hope this thread is still active.

 

I tried to write with humour when I was diagnosed as it allowed me to laugh in the face of cancer.

 

Don't get me wrong there were some of the darkest days i've ever had post diagnosis but, ultimately, what I will remember is the sheer absurdity and craziness of it all.

 

I'll never forget the tears of laughter streaming down my face as my husband gave me the worst haircut EVER when my hair started to shed. I had visions of being chic like Sinead O'Connor or Gail Porter or ruggedly beautiful and "interesting" like Hillary Swank in Boys Don't Cry.

What I actually looked like was a mad monk who had let a 5 year old child loose with a pair of scissors. Blindfolded.

 

My blog can be found at www.catlet.co.uk

 

x

 

Belle
Member

Re: Anyone blogging about their experience?

Can't believe it's not listed here so in the interest of completeness here's the utterly fabulous Liz O'Riordan, Breast Surgeon with Breast Cancer: http://liz.oriordan.co.uk

 

It's a mine of useful information.

 

Anyone else any blogs they'd like to add?

 

B x

Grottychops
Member

Re: Anyone blogging about their experience?

Just taken a peek at all the blogs listed here and they're all fantastic!

I've never blogged before but decided to do one as a diary during my recent mastectomy and DIEP breast reconstruction - i really enjoy writing a post and it's a great way for friends and family to keep up with how you're doing. I'd certainly recommend it :). It's....

Breastbegone.wordpress.com
Belle
Member

Re: Anyone blogging about their experience?

Hi Kaytonks,

 

I'm so sorry to hear all this.  All I can say is that this is a great place to give vent to your worries, get support and share experiences.  You might find you get more response if you start a new thread on the Chemotherapy board https://forum.breastcancercare.org.uk/t5/Chemotherapy/bd-p/4435 or in the Diagnosed with Breast Cancer board https://forum.breastcancercare.org.uk/t5/Diagnosed-with-breast-cancer/bd-p/4432 as more people will see them.  Just click the 'Start a new thread' button to do so.  This particular thread isn't going to get much traffic and you need as many people to read your concerns as possible.  Well done for posting and I really hope this helps.  I was diagnosed back in February and like you was only expecting a lumpectomy and course of radiotherapy.  Here I am in June having had a mastectomy and currently undergoing chemo.  The shock does pass, and knowing what I was up against helped me to deal with things eventually.  I hope that is so for you too.  Most of all tonight I wish you peace.

 

with love,

B x

kaytonks
Member

Re: Anyone blogging about their experience?

Hi, I have just signed up to this site, trying to find support, still trying to find my way around. I was diagnosed 19th April with 2 small tumours oestrogen receptor positive. Had a lumpectomy and 17 lymph nodes removed 3 weeks ago. Went back for results yesterday, and felt sick at the results, 10 lymph nodes contained cancer, a 3rd tiny cancer was also found. And postive HER2, which explains the agressive nature of the cancers, as I was and still being told, I caught it early. I feel like I've been diagnosed all over again, all the cancer was removed, expecting just a course of radiotherapy, now face chemo and herceptin theropy, totally devastated, can't stop crying and in need of support and others experience x
Debbie34DD
Member

Re: Anyone blogging about their experience?

I started blogging from diagnosis - it has really helped me to come to terms with it all - debbiesdiaryblog.wordpress.com xx
Belle
Member

Re: Anyone blogging about their experience?

Hi Pook,

 

Just read your blog and loved it!  Initially, I did exactly the same regarding privacy as you - it is helpful for those long distance to keep in touch.  

 

Thanks for sharing,

B x

Sue H-S
Member

Re: Anyone blogging about their experience?

Hi LJ Sam,

 

Yes there is a lady currently blogging - here is the link to her blog - https://gettingabreastofthesituation.wordpress.com/

 

She is also known on here as Belle - this is her profile and she is active on the  Chemotherapy Monthly thread for Junne 2016 and a few others.

 

https://forum.breastcancercare.org.uk/t5/user/viewprofilepage/user-id/106018

 

Hope this helps.

 

Sue xx

Pook
Member

Re: Anyone blogging about their experience?

Delurking to say that I've been blogging my experiences since April this year. I just had my second chemo today.

 

Love your blog, Belle, and know exactly what you mean about it being cathartic. I originally kept mine private, but then realised that it might be a good way of keeping my family (who all live some distance away) and friends (particularly online ones) in touch with what's happening. It's also a useful way of sharing the experience with fellow cancer patients - I've found reading other people's blogs can be a very positive experience, particularly with regard to all those unknowns you have before the treatment actually starts.

 

Sam - it sounds like you're having the same treatment as me. Sorry your experience has not been particularly great so far. I hope things will pick up for you soon.

 

If anyone's interested in reading it, its at http://www.suepook.wordpress.com. I can't guarantee it will be particularly entertaining, but hopefully it will be informative 🙂

 

Belle
Member

Re: Anyone blogging about their experience?

I've been blogging on and off since 2005.  My first blog was on a site called Blogger but I now use Wordpress. They are both easy to use.  I opted for Wordpress this time because I'm more familiar with it and knew how to add things like a 'follow by email' option for people who didn't want to have to keep seeking it out but wanted to know when I posted.  I like the interaction of comments too.  I don't know Weebly but most blogsites have a template that you can follow and add bits too as you become more confident.  I've always gone for free options, but you can pay and have extra bits too.  Never seen the need for that.  Some very clever techi minded people can write their own code (I have literally NO idea what that means!) and have a template tailored to their requirements but I've always managed with uploading pictures.

 

So basically, Millasmummy, yes, it's easy.  If I can do it, anyone can.  I write whenever I want to.  Sometimes that's been every day.  Sometimes less often.  Occasionally it's been more frequent.  It depends on what I have to say.  It's primarily for myself but if others are interested, great.  I'm generally careful to anonymise details as I want to be free to be able to be frank.  But that's just the way I do it.  Everyone has to find a way that works for them.

 

Hope that helps,

 

B x

LJSam
Member

Re: Anyone blogging about their experience?

To be honest I just googled it and found a free blog site and just went from there the one I use weebly it has an app for phones etc and is easy to use.

I will read Lisa lynch's book too thanks for recommending.

Thanks for the other blogs love reading those too.x
Millasmummy
Member

Re: Anyone blogging about their experience?

Great blogs Belle and LJSam. How do you know how to do these. Is it easy? Do you just update it weekly or daily? Xx
Belle
Member

Re: Anyone blogging about their experience?

It's a fantastic blog Em32!  I've read the whole thing, and the book.  Not seen the film yet, but will do eventually 😉

 

It's here: http://alrighttit.com

 

B x

em32
Member

Re: Anyone blogging about their experience?

I'm not but I am reading lisa lynchs book the c word. Which started as a blog alright tit. I can't put it down!
Belle
Member

Re: Anyone blogging about their experience?

Lovely!  Fab blog - just read it through. Well done, it's so cathartic, isn't it?

 

B x

LJSam
Member

Re: Anyone blogging about their experience?

http://livsamnursetopatient.weebly.com/

It's great isn't it I am going to read yours now thanks for sharing.x
Belle
Member

Re: Anyone blogging about their experience?

Yes, LJSam, me!

 

https://gettingabreastofthesituation.wordpress.com

 

I love it!  It's been my therapy from the very first phone call telling me I needed to attended the recall clinic up to now and I see no reason to stop.  It helps me off load, it helps me keep those friends and family that want to read in the know, and also helps others in similar situations.  Win win.

 

What's the address of yours?

 

B x

LJSam
Member

Anyone blogging about their experience?

Hi

Is anyone blogging about their experience? Friends from work suggested I did and I have found it quite therapeutic. Would just be interested in reading anyone else's if they are.