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Anyone due to start chemo April 14??

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Re: Anyone due to start chemo April 14??

Hi Girls, Iam one of the Awsome April Angels who started chemo 2/4 last year. Chemo is definately doable, listen to your bodies and yes drink plenty water in the first few days. Take all your anti sick meds whether you feel sick or not as if you leave it till you do then it's too late, ginger biscuits help too. Don't suffer in silence ask for more meds if you feel unwell, hopefully most of you will get through it without too much side effects. Just ask any of the ladies on hear and someone will have an answer. Pineapple is good for a sore mouth if you get one also ask doc for mouthwash. For low immunity days just don't put yourself at risk, I had anti bac gel all over the house! And nobody got over the doorstep until they had anti baced for risk of infection. I was on FEC-T x 6 and it wasn't nearly as bad as I thought it would be. The not knowing is the worst but was number 1 is over keep counting down. Good luck Ladies xx
Member

Re: Anyone due to start chemo April 14??

Hi Kirstie, welcome to the BCC forums

Along with the support you have found here our helpliners are on hand with practical and emotional support for you, lines open weekdays 9-5 and Saturdays 10-2 on 0808 800 6000

Here's a link to the BCC undergoing treatments area of the site where you will find lots more information and support ideas:

http://www.breastcancercare.org.uk/treatment

Best wishes
Lucy BCC
Member

Re: Anyone due to start chemo April 14??

Hi Suzie,
Yes I found that they are really good at just giving you enough information very clever really, I don't have to have the radiation part, I originally told I was going to but because I had to have the mastectomy they said I don't need that now.

I read that too about the injections but i don't know what they are really.

I have been advised not to work I'm a project manager but its a really busy time and we have 200+ temps in over the next few weeks so my doc said he would only be happy for me to work if I worked from home or in an office with one other person?!
Has anyone else been told this ?
I'm only getting statuary sick pay and my husband doesn't earn enough to pay the bills so money is a worry so if I can work I'd like too.....

Onwards and upwards ladies xxx
Member

Re: Anyone due to start chemo April 14??

Hi Kirstie

Nobody has given me any options with regard to cannula's etc as yet. I I have a bone scan on Thursday as I have had a sore shoulder and hip for around 6 months so they are just going to check it out (I also have arthritis in my lower back so I am not particularly (concerned). I have a bloods and consultant appointment on the 1st so I assume they will talk to me about that then. I have pretty prominent veins so don't know if that will be a factor. The hospital have been amazing and I think they give as much information as is needed at a particular time rather than overload me but I will definitely ask about this. Yes I too am having 6 sessions of FEC (every 3 weeks) and will also have radiotherapy and Tamoxifen after chemo. I have read that some ladies have needed to inject themselves for a few days after chemo, I think to help with immunity but I am not sure if that is only for certain types of chemo??? There is so much to remember and take on board
Member

Re: Anyone due to start chemo April 14??

Hi Suzie,

That's good we will be able to compare how we are getting on ;0), my sessions will generally be on a Wednesday I've been told.
Are you on FEC too? I'm going to meet the chemo nurse tomorrow to go through all the bits and bobs, I still don't know which line to have, I wanted to go down the cannula route just in my hand so that when I'm out of there I'm gone and dont have anything to look after, but people have said the other way is better.
Have you got all this stuff sorted? I think after I have been through things with the nurse things will be clearer about which way ill go.
They have said I will be on tamoxifen afterwards is that the same for you ?
Member

Re: Anyone due to start chemo April 14??

Hi Kirsty mine is also Positive 8/8,we'll be starting the same day sxx
Member

Re: Anyone due to start chemo April 14??

Hi everyone,

I just typed a reply but this hasn't seemed to work so I will try again lol!

Having read lists of threads over the last couple of months I thought I would now join in.

I was diagnosed on 29th Jan with grade 3 oestrogen pos 8/8 - Her2 neg, I initially had a lumpectomy on 10th Feb but my results showed lots more in situ and I needed to have a mastectomy, had a double mastectomy on 3rd March (double was my choice due to risk) and I am starting chemo on the 2nd April, mine will also be in 3 week cycles of FEC on Wednesdays.

I have been offered the paxman cold cap which is the one that stays on and you don't have to swap but they haven't used that type before so I will be the guinea pig.

I was 36 when diagnosed, I turned 37 in hospital and I have 2 children a 16yr old girl who has moved out to live with her father at the end of last year (she knows it all) and a 7 year old boy.

I'm near Buckingham.
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Member

Re: Anyone due to start chemo April 14??

I am also on a 3 week cycle. My chemo will be on Wednesdays and I am hoping that after being off sick for the Thursday and Friday and having the weekend I will be ok again by Monday. I am also lucky enough to be able to work from home. My role is mega busy and really quite stressful at the moment due to some critical projects so not sure if I am being too optimistic but only time will tell. Focusing on work has kept me sane the last couple of months and I just cannot imagine being off sick for 5 months. I've read lots of info about eating while on chemo but wondered if anyone had read any recommendations for before you start like detox etc? Lou I saw you mentioned the no carbs anyone else seen stuff for this? sx
Member

Re: Anyone due to start chemo April 14??

Im looking to work as well. Dont know if I will manage it, only time will tell. I am also lucky in that my employer is happy for me to work from home whenever I feel I can. Im booking a couple of weeks leave when I have my first chemo though just to see how things roll xx

Member

Re: Anyone due to start chemo April 14??

Hi Suzie68, I'm also planning to try and work through chemo. I'm on a three week cycle, so my plan is not to work week 1, work from home week 2 and work in the office week 3. Obviously it's all a bit of an unknown at the moment, but I'm going to give it a go. I also live in Surrey and am being treated at the Royal Surrey.

As for other information about me, I'm 57, with two grown up children who have left home. I was diagnosed with grade 2 ER + IDC last year and because of my family history was given hormone treatment while waiting for genetic testing results, which showed I have a defect in the BRCA2 gene. In January of this year I had a mastectomy with immediate reconstruction. Results showed one node had micromets, and the lump had not responded as well as expected to the hormone treatment, so I was offered the option to have chemo as an additional risk reduction, I will then take Letrozole for 5 years as well.

I'll also be having risk reducing surgery on the other breast and the ovaries in due course, but I'm taking this one step at a time!
Member

Re: Anyone due to start chemo April 14??

I think I am! I have been given a choice by the oncologist - surgery then chemo or the other way round. My lump is big, so they suggested chemo first to see whether that would shrink it so I could have a lumpectomy rather than mastectomy. However tests have come back to say that my lump won't really shrink with chemo (although she said there was a small chance it would) so am back to square one! Have appointment on 2nd of April and they said if I decide chemo - I could probably start the next day.
Love and hugs x x
Member

Re: Anyone due to start chemo April 14??

Hey Lou, they have offered me cold cap but to be honest I don't think I'll go for it. From what I've read it just seems to delay the inevitable in list cases and I've also seen that you are nut supposed to wash and style your gmfaur yo minimise drop. I have to wash mine every day do would just look hideous anyway. I booked a private wig appt when they told me they were going to do more tests on my lump and bought a wig the day my chemo was confirmed. Def going for the increased water have read do many people say that helps. For me this feels a bit like when i was pregant the first time, terrified as i dudnt kniw what would hapoen and then terrified for the 2nd and third because i did! It's just the unknown and everyone reacts differently some if us will have a better time than others and we won't know who until we are on the other side. I am planning to try and work full time through chemo, us anyone else ? I am 45, live in Surrey and am being treated at the Royal Marsden in Sutton, they have been amazing, ironically I worked there a couple if years ago on a temp contract (non medical staff) but never planned on going back as a patient ! There are so many good and bad stories, and for me a serious information overload, I am going to try to focus on the positive. Good luck with your appointment Sxxxxxxx
Member

Re: Anyone due to start chemo April 14??

Hi

 

I know we wont remember everything about each other but thought I would give a few more details about myself and diagnosis. I am 37 years, married with two boys aged 9 & 11. I was diagnosed 6th January with grade 2 (from biopsy) and unlikely to have lymph node involvement as per scan....This all changed after first surgery on the 26th January as the results showed grade to be 3 and one lymph with macro and one with micromet. I then had clearance on 6th March, results were no further nodes infected.

 

I did suffer from a haematoma after the initial WLE and this opened my wound which has needed to be packed every second day to ensure I heal from the inside to out. The cavity was initially 7cm when they started packing 4 weeks ago and is now down to 1.5cm, fingers crossed this will be closed in the next two weeks for chemo to start, its all im waiting for and really want to get started!!

 

I am attending a ' Look good , feel better' workshop on tuesday at Leeds.I dont know if anyone has been on one yet but my BCN advised me to go as they are meant to be good, I will let you know.

 

Ps My treatment is at Doncaster

 

Take care everyone xxxxxxxxx

Member

Re: Anyone due to start chemo April 14??

Hi everyone.

 

I am also due to start chemo some time in April. I am not sure of the exact date at the moment as I had a bilateral mastectomy with immediate reconstruction just over two weeks ago and unfortunately have had ongoing problems with right implant (skin necrosis, infection,etc). I am now wearing a negative pressure dressing which will hopefully help to remedy the situation, but these problems have delayed me starting chemo. Consultant has said that it will definitely be within the next 4-6 weeks though and I have been issued all the info on FEC-T and wig prescription is ready to go.

 

Reading the posts from the amazing ladies on this discussion board has been invaluable to me and I am reassured that I have no need to feel alone whilst undertaking the chemo journey. 

 

Thanks for the post Louise and I'll look forward to chatting with you all.

 

Lots of love

Rach. xxxxx

Member

Re: Anyone due to start chemo April 14??

Hi Louise, I have been posting in the March thread as I thought I would be starting at the end of March, but my first FEC has been confirmed now for 4th April.
Carol
Member

Re: Anyone due to start chemo April 14??

Thankyou Rollercoaster, its really good to gear from people who haven't finished the chemo. Hope time goes quick, found my lump on new years eve!! New year will never be the same again xxx

Member

Re: Anyone due to start chemo April 14??

Hi loulou, I'm one of the amazing august ladies so finished chemo in December. I was reading your comments re diet while on chemo and the best thing I can say is listen to your body, it will tell you what and when you can eat. If you feel like eating something go for it. There will be days when you may not feel like a lot of food and then there will be other days when you will eat everything in sight, just be sensible about it and you will get through chemo and you'll be amazed how quickly it will pass. Hope all goes well for you and all the other girls going through or about to start the chemo trail, hugs to all xxx
Member

Re: Anyone due to start chemo April 14??

Hi Sue

 

Very apprehensive but really want to get started now. I've read a lot of these pages whilst in the waiting room and now I know exactly what im dealing with I just want to crack on. Have you decided if you are using the cold cap?? I think I am going to give it a go but make sure I have my wig in place if needed. Dont know how interested you are in diet etc but quite a few ladies have limited there carb intake 2 days before and 2 days after chemo, I will also be trying that, along with water,  water and more water, if my stomach can take it!! 

 

Going to continue checking out the tips from the ladies who been there and done it Smiley Happy

 

 

Take care xxxx

 

 

Member

Re: Anyone due to start chemo April 14??

Hey Louise I was diagnosed with grade 2 idc mid Jan and had WLE and SNB on 12 Feb, they wanted to do some extra tests on my tumour and have now had first chemo session (FEC) confirmed for 2 April Sue
Member

Anyone due to start chemo April 14??

Hi

 

After being diagnosed in January with grade 3 idc and two surgeries I am now due to start chemo at the beginning of April.  Just wondered if anyone else is?

 

I am seeing oncologist next weds to discuss which type but as I had one node positive and one with a micromet I am thinking it may be tac?? 

 

Louise xxx