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Anyone due to start chemo April 14??

Community Champion

Re: Anyone due to start chemo April 14??

Still ok ladies went to bed at 9.30pm last night got out 4 times to toilet but it was only the liquids that they had pumped through me the day before so that's acceptable! I am finding it best to eat little and often if you feel just a lttle possibly imaginery pang of nausea it takes it away! Try to keep your mind off side effects starting and have a goal for the day. Not cleaning the house from top to bottom though!!! I am finding puzzle books good. Hubbie is being very supportive at mo and cooking and washing up and I am making the odd cup of tea and feeding the dog. I am lucky I am 58 and my 3 children are all grown up with partners and grandchildren. I take my hat off to you all dealing with children at home and do wish you all the very best for your treatment and that it will be gentle on you. Remember ladies this is not for ever we can get through this time in our lives !!

 

Member

Re: Anyone due to start chemo April 14??

Hi Ladies

 

Hope all is well... I've had one of those run away train days ( as my hubbie calls them) This is when every niggle or pain I feel in my body, even if it only lasts 2 secs, goes back to my cancer. Hope these days diminish in time as tbh I do my own head in !!!! Anyway, hope you are ok Rosie and the SE are not too bad, just think, you will be the first to finishSmiley Happy

 

On the financial front my BCN has told me when I visit next week she will give me a macmillan grant form to fill in which is available to everyone. Both myself and husband work and we will still qualify, ask your BCN as any financial help is better than none.

 

Having nice glass of red tonight, cheers xxx

Member

Re: Anyone due to start chemo April 14??

Thank you x
Member

Re: Anyone due to start chemo April 14??

Hi EAM

Here's the link to the Macmillan website where you can find the financial support details:

http://www.macmillan.org.uk/HowWeCanHelp/FinancialSupport/FinancialSupport.aspx

Take care
Lucy BCC
Member

Re: Anyone due to start chemo April 14??

Hi kirstie77, yes I suppose I am a spring chicken! You are young too dearSmiley Happy. Well done you for planning to do the race for life! My mum,two sisters & two nieces are doing it this yr too - hopefully I will join them next yr!Smiley Happy. This may sound silly but how did you get in touch with a MacMillan nurse for financial advice? I am currently on 8 months stat sick pay ( I was advised not to work through due to risk of infection as I am a support worker for adults with learning disabilities). My husband is now working away on a job to get extra money for us - just when I need him the most! Xx
Member

Re: Anyone due to start chemo April 14??

Hey Rosie14, I'm glad its gone well for you so far! I spoke to a girl that lives near me today - she had chemo a few yes ago & said she felt fine afterwards so cleaned the house from top to bottom then felt awful! Keep us updated (if u feel like it). This time next week I will just have had mineSmiley Happy xx
Member

Re: Anyone due to start chemo April 14??

Hi loulou1262, I am having 6 sessions of chemo every 3wks. It will be FEC for fist 3 then T along with herceptin for the last 3. I hope you get a start date soon. I hope they still go ahead with mine - my arm has been filling up with fluid ever since surgery so has been drained 4times but my nurse said as its not infected hopefully they can still go ahead. My little girl hasn't got a clue what's going on which is prob a good thing. Think she'll notice soon enough thoughSmiley Sad. My oncologist gave me a book to read to her called 'mummy's lump' - might be good for your 9 yr old? Or he may find it babyish? I'm just not looking forward to my little girl going from pillar to post as she's not old enough to go to pre school or school everyday. She will keep me busy if I feel up to it though!xx
Member

Re: Anyone due to start chemo April 14??

Thanks Rosie I have put in a request thanks for that, have you got a hat for your head then or a scarf I may have to find a hat :0) good alternative and worth a try x
Community Champion

Re: Anyone due to start chemo April 14??

Thanks Kirstie!
Take a look at Heather's Hair website hairpieces made with real hair especially made for cancer patients You pay P&P and make a donation. They have sent one out to Cyprus to me!
Member

Re: Anyone due to start chemo April 14??

Hi Rosie
Yeahhhh - good to hear from you glad all went well x

Hey Suzie thanks for the link I will have a look into that x I really need to get a wig sorted but feel like I'm running out of time ! I asked about the injections I will be having them 24 hrs after the chemo they are called nylasta ?! I think ?!?! it depends where you are being treated I think. One dumb question, what is your WLE and snb ?

I have signed up to do the race or life, I have raised £1125 already and some of my friends are doing it too, we have set up a group called breast friends and have raised over £2500 - That's 5k but my nurse said I may not have the energy but could be pushed in a chair if not though I have to be careful immune system.....etc


Hi tlj63 welcome to the gang :0) my little boy has been surprisingly good about it all though I haven't been having any meltdowns in front of him and I haven't told him its cancer, just that I have had bad bits that need o be removed and I'm going o have one horrible medics that might make my air all out but will make me poorly. He was okay with it all except the hair, he cried and said I don't want a bald mummy, that broke my heart but I said it would be okay I'd get a wig !!

I am gong to try the paxman cold cap, apparently the cap s the worst bit and most people give up after the second round, BUT I have been speaking to someone who didn't and she still has her hair, she lost a bit and had one little patch at the back which fell out but you couldn't notice as she had long hair ...... Everyone is different ;0)

Hi EAM28 - wow your a spring chicken, I think you might be the youngest of us so far, I'm 37 (just last month), I have had 2 operations too its like a whirlwind isn't it ! The more I read on here the more the "this happens to older people" I find is just plain not true ! I still class myself as young btw lol !

Loulou, the more I read from you the more I think we are the same lol !

I have still not been to the dentist, and I'm due to have my PICC Line fitted and my ECG on Tuesday ........
Community Champion

Re: Anyone due to start chemo April 14??

Have posted above all well so far thanks ladies!
Community Champion

Re: Anyone due to start chemo April 14??

Hi everyone just to say I had my first chemo session yesterday was bricking it! It went as well and I got through the night without any side effects so just hoping I don' tget delayed sickness I can cope with any of the other symptoms. Hope this will encourage all of you April starters. I joined Apirl becaause March aer on their second round!

Member

Re: Anyone due to start chemo April 14??

Thanks loulou that does make sense pod to know I'm 'normal' whatever the hell that us these days! Lol xx
Member

Re: Anyone due to start chemo April 14??

Hi Suzie

 

I was regular as clock work as well but went 6 weeks between my last periods, bcn said it was stress related.x

Member

Re: Anyone due to start chemo April 14??

Hey ladies I have a random question I had my WLE and snb on 12 feb and haven't had a period since, I am regular like clockwork every 21 days, sometimes even sooner, periods for the last few years have been totally horrendous and now nothing, haven't started chemo or tamoxifen yet, has anyone else experienced the same ? Sx
Member

Re: Anyone due to start chemo April 14??

Hi Ladies

 

Looks like we all share the same concerns,  I too am really concerned about my boys seeing me really ill. I have also had two surgeries and was not that bad afterwards, well not as bad as they expected! I initially told them I would be poorly whilst I recover and I think they think the worst is over, I keep having to gently remind them that I will be ill again (Hopefully not too bad!!)..Have any of you decided to use the coldcap? Eam28 do you know what chemo you are having? Im ready to start just waiting for my wound from haematoma to completely close, nearly there, should be starting two weeks tomorrow.

 

Wonder how Rosie got on, hope your ok

 

Take care everyone

Louise xxx

Member

Re: Anyone due to start chemo April 14??

Hello Girlies! I am starting chemo on the 3rd April. I was diagnosed 23rd Jan with invasive ductal, grade 3, her2 & ER positive. Have had two operations & now ready to take on the next stage! I am 28, married with a 20month old little girlSmiley Happy xx
Member

Re: Anyone due to start chemo April 14??

Joining in too. I'm starting FEC T on the 4th. I had my first screening mammo at the end of January, called back for biopsy the following week. Had mastectomy and reconstruction 20th Jan. Then told I had micromets in my sentinel node, so starting chemo next Friday. Feel like it's all been a bit of a whirlwind few weeks, but the surgery has healed well so now just want to get on with the next phase. The sooner I get started, hopefully the sooner it will all be over. Trying to convince myself that if I stay positive I will cope with the side effects better. Really, don't want my children to see me horribly unwell and not coping. My son's friend (aged 10) died of a brain tumour last year so I think he is worrying about me, despite the fact that we have told him it's a completely different disease.
Member

Re: Anyone due to start chemo April 14??

Morning Ladies
Rosie good luck for today I hope it all goes well for you and you will be in all our thoughts today.
Kirstie Look Good Feel Better have web-site and are generally based in hospitals, I cant get into mine at the Marsden until May but have added the link for you
http://www.lookgoodfeelbetter.co.uk/workshops-and-advice
I got bought a wig on the day I was told I would have chemo and had pre-booked an appointment for a local private shop in Surrey (just Googled them). I was really surprised how lightweight they are too and very realistic looking. In the end I decided to go for an acrylic one as the human hair ones are unstyled and I found it very hard to imagine what they would look like. My current style is bobbed and I have a lot of hair but it is quite fine, I found similar styles looked to wiggy on me as I don't have that much hair so have gone for something much shorter. I am not even certain that I will wear it but at least its on standby, must also invest in some scarves. I saw a great you tube video of a young woman in the US who showed you how to make them out of t-shirts with the sleeve part cut off and I have tried this with vest top and it is seriously quick and easy.

Thank you to all the 'vets' for popping into this tread, it really does help to hear from those you have come out of the other side.

I cant remember who I had an earlier convo with about the self injections after chemo? I asked my BCN about this and she said they are to boost your immune system if have low white count but it is quite rare to need them. I also told her that I had signed up to one the BCC sponsored walks before I knew I was going to have chemo and wondered if it was something I could still do (10 miles is a long walk even without it!) and she told me about one of her patients that ran the London Marathon last year on while on chemo. That really encouraged me to believe we can get through this and still have some kind of normality. I am having hypnotherapy on Saturday to try and get my body to work with the chemo rather than try and fight it. I have no idea if this will work but I don't think it can hurt and makes me feel like I am taking some kind of control in all this and I know and trust the person who will be doing it.

Im off for a bone scan today, apparently they inject me with something radioactive and I have to walk around the hospital for 3 hours while it goes through my system. Its strange how things that would have previously terrified me seem quite normal these days!

sxxx
Member

Re: Anyone due to start chemo April 14??

Hey Rosie, good luck and hope all goes well, will be thinking about you today xxxx

Member

Re: Anyone due to start chemo April 14??

Hi Ladies,

Rosie, I'm sure our probably feeling a little apprehensive tonight, so I wanted you to know that I'm thinking of you, and you will be in my thoughts tomorrow, I would image there are lots of other ladies on here who will be thinking of you too xx be strong and I'm sending you a big hug. X

Rach, still no dentist for me, to be honest I can't be bothered, it's just something else to do and I feel like I'm running out of time to do everything I need to before I start my Chemo, is that really bad? Have you been yet?

Books and wine, - I keep getting told I'm brave too, I don't think I am, I'm just doing what needs to be done, I'm grateful for those quiet moments where I can reflect, have the odd moment, and carry on, im lucky i have lots of really amazing friends x You are very good to be donating your hair that's a lovely gesture, you and Amber are great, I'm dreading having to part with mine and I can't bring myself to get it cut !

GMT - this site is just amazing, I'm so pleased I joined, we can all get through this together, I'm sure we will have lots of hints and tips :0)

Wilpurl, I really need to get this wig thing sorted, i think i could have some fun with it ;0) how did you find out about the look good thing, I haven't heard of it except or on here, could McMillan help?

Sweet loulou, I'm sorry you didn't get the news you were expecting, it's hard when that happens I felt floored when they told me I needed the mastectomy when I went for my results of the lumpectomy, as I was expecting my treatment plan, - its hard, you get your head around one thing and then something else gets thrown into the mix, I'm sorry I can't offer any advice maybe some other ladies can but I'm sending you a hug if you need one too x x

Appointment by appointment we will all get through this, put your best foot forward ladies we may have a mountain to climb but the view will be brilliant once we have done it ;0)

Get me all hugs and metaphors ! Feel free to tell me to shut up lol xxx
Member

Re: Anyone due to start chemo April 14??

Hi Wildpurl

 

I've tried a couple of wigs and I was also surprised at how realistic they looked. I have very thick hair which is a bit wiggy anyway, so couldn't really tell the difference!!

 

I visited the onc today and was surprised at the outcome and any thoughts would be appreciated.

 

They advised that initially my results were 1 node positive,  1 node micromet, this led to me having full clearance,  fortunately no further node involvement.  Today I have been advised the onc wants the micromet checking to make sure it is a micromet as the pathology report is not straight forward...they will then offer the following. 

 

If the original report was correct I will be offered Fec, if they decide the micromet is now a macromet they will class me as two nodes positive and I will have Tac. I will find out next week and hopefully start the week after, is this treatment plan similar to anyone's. I always assumed that as I was node positive I would automatically have Tac, im going to post on chemo thread as well and see if any ladies previously treated have been advised this.

 

Thanks ladies xxx

 

I

Member

Re: Anyone due to start chemo April 14??

Hi everybody, I went to look at wigs today. I was really impressed with how lightweight and realistic the ones I tried on were, and feel confident that if I do need to wear a wig, it will look good. The lady matched my hair colour and found two styles both very close to my current style, and has entered all the details in her system, so if I decide I need one I can call her and a few days later it will be ready for collection. It's one less thing to worry about, so I'm happy I went along.

I also booked myself into a Look Good, Feel Better workshop on 15th April, something to look forward to after my first chemo!
Member

Re: Anyone due to start chemo April 14??

Hi everyone

 

Got back from the Look good, feel better event this afternoon and it was great. What a selection of goodies including Chanel,  Estee Lauder,  Benefit and Clinique to name but a few. It was a small group of ladies and tea and coffee was provided. We practiced various techniques with make up application and everyone was really friendly, highly recommend xx

GMT
Member

Re: Anyone due to start chemo April 14??

Hi, another April 2012 'bunny' popping in to say hello. As Sarabee and Southpool have said you will find lots of support here, discuss all sorts of things you can't / wouldn't want to share with your nearest and dearest! You will probably make friends for life as only those going through it, really understand. Lots of love to you all xxxx
Member

Re: Anyone due to start chemo April 14??

Hi booksandwine,

 

Here's the link to the Little Princess Trust for donating hair.

 

http://www.littleprincesses.org.uk/

 

Take care,

Jo, Moderator

Member

Re: Anyone due to start chemo April 14??

Hi bookandwine, I had my hair cut just after my first chemo and donated it to the Princess Trust which makes wigs for children. If you go on the website it tells you what to do with your hair. I felt I needed to do something with it and it certainly went to a good cause xx
Member

Re: Anyone due to start chemo April 14??

Hi I have had it confirmed that I will now start chemo in April - seeing Chemo suite on Thursday and Oncologist on Friday.

 

Took a while to get my head around chemo as I was to have had the operation first, but due to growth and unable to rule out something on my lung and possiblity of things on my right book - Chemo it is.  I think I am ready?? - Keep getting told I am brave - half of me just wants to get started and the other half of me wants to stay buried under a pillow and duvet - probably normal !!!

 

Will be up in Mount Vernon which looks to be quite nice

 

I have shoulder length hair which I am looking to get cut in readiness - looked into donating hair but does not seem straight forward - any advice or has anyone donated hair?

Member

Re: Anyone due to start chemo April 14??

Morning everyone.

 

How is everyone feeling today?

 

Very good luck with your 1st chemo session on Thurs Rosie, sending loads of love.  

 

Kirstie, I didn't book an appointment with the dentist either. I have a ridiculous dentist phobia which, after all this, you really would have thought I'd have got over! I shall pluck up the courage and (maybe) do it today. Hope you've managed to get an appointment.

 

Loulou, hope the look good, feel better course goes well this afternoon and looking forward to hearing all about it.

 

Thank you so much for the reassurance Southpool, it's really lovely to hear from people who've already been through it.

 

xxxxxxxxxxx

 

 

 

Member

Re: Anyone due to start chemo April 14??

Good morning to the latest April thread. I'm one of the 2012 Chemo Bunnies and wanted to hop in and wish you all good luck in your journey. As Southpool said the thread will be your best source of information, entertainment and just a place to post when you are feeling down or if you're ok. The bunnies have gone from strength to strength and it was only because we had each other that we got through it all. Much love to you all xxxx
Member

Re: Anyone due to start chemo April 14??

Morning Rosie, hope you are well, are you using the cold cap? 

 

Hey Kirstie, I'm trying the coldcap but im going to have a wig ready and waiting.  Im going to have my hair cut into a bob and buying a wig the same colour and style. I've also purchased a few headbands from accessorize which are lovely,  these are to hide my greys if I am lucky enough to keep any hair. Im going to the look good feel better session this afternoon  so will report back later to let you know how it was xx

Member

Re: Anyone due to start chemo April 14??

Thanks Southpool, just what we need to hear, hope you had a fab holiday !! Xx

Community Champion

Re: Anyone due to start chemo April 14??

Not sure as its different here will report back!
Member

Re: Anyone due to start chemo April 14??

Hi Ladies

I am an April 2012 Chemo bunny & am writing this at Newark airport on my way back from holiday in the States. Joining this thread & forum will be the best thing you do during treatment. The support I got from my fellow bunnies was invaluable and 18 of us are still in touch, 'speak' daily & see each other regularly. Chemo is tough but 2 years on it seems a distant memory. Good luck & take care of each other.

Hugs
S x
Member

Re: Anyone due to start chemo April 14??

Oh and has anyone investigated Wigs yet, I'm trying the paxman cap but have been told will know before 3rd treatment if its going to work, so think I may get one ready.....
Member

Re: Anyone due to start chemo April 14??

Hi Ladies,

Yes Louise we are the same age, I noticed that too x

This is such a lovely forum and so nice I hear from other people who can reassure us before our first session thanks Penny and Amber.

Rach, I didn't get onto to the dentist today so I'll call tomorrow hope you were better than me ;0)

Rosie sending lots of good vibes your way for Thursday.

I am feeling much better today after seeing McMillan and my chemo nurse, she went through lots of things and despite being really nervous this morning I felt much better about things before I left. I am waiting for a call tomorrow to confirm the date for my ECG and picc line to be put in.
Member

Re: Anyone due to start chemo April 14??

Good luck Rosie

 

You will be the first one of us to get the chemo, which type are you having? Xx

Community Champion

Re: Anyone due to start chemo April 14??

I am due to start this Thursday which is only just March so I thought it made more sense to join this group as the March group are on their second round!

 

Went to the hairdresser today and had my hair couloured and then cut short, also puchased two sun hats, I live in Cyprus, and a head scarf. Am beginning to feel rather anxious now!!!!!

Member

Re: Anyone due to start chemo April 14??

Thanks for the Dentist and flu jab tips ladies, I will get on to that now Smiley Happy

 

xxxxxxx

 

 

Member

Re: Anyone due to start chemo April 14??

Just popping in from May Moonbeams (started chemo May 2013)- Best wishes to you all.  Chemo is doable but it does eat up a chunk of your life.  I don't know where I'd be without sharing with my fellow moonbeams.   Now I am looking forward to going back to work with "different" but interesting hair!  This time last year I was not feeling quite so confident!  Good luck all!

Member

Re: Anyone due to start chemo April 14??

Hi Kirstie

 

Just noticed we are the same age. When I visit the breast care unit everyone seems to be older, I find myself scanning the room for someone of a similar age. Just shows this blighter can get anyone !!

 

Louise xxx

Member

Re: Anyone due to start chemo April 14??

Hi loulou,

Yes I need to do that, I have been putting it off so thanks for the nudge, I will call them tomorrow I get dodgy gums as it is.

I did go and have my flu jab though as instructed :0)
Member

Re: Anyone due to start chemo April 14??

Thankyou Amber D for posting. It is so helpful to hear from ladies who have been through it. Hope I can manage the water to flush the chemo through,  3 litres a day I think ?? Xx

Member

Re: Anyone due to start chemo April 14??

Hi ladies

 

Forgot to mention that I visited the dentist this week and got full check up with X rays as we will not be allowed to have work done through treatment.  When I rang the receptionist said I would be waiting three weeks for a check up but when I explained she got me in within a couple of days.  Also the mouthwash incase of ulcers through treatment was prescribed by dentist (nice as a freebie, got 3 bottles!!) xxxx

Member

Re: Anyone due to start chemo April 14??

Hi Amber,

Thanks for the tips I will take them all on board and invest heavily in antibacterial gel !

Suzie,

I'm off to see McMillan in the morning to go through my options so that will be good, and I have requested a meeting with my boss to see if they will let me do anything from home so we will see, I figure 6 is an easy number to tick off even when it feels like its taking ages, I feel like in the grand scheme of things this year has flown by until now, lets home the next few months do the same we are on the right road and I'm sure with the lovely bunch we have on here so far we can push each other up any hills we may or may not encounter xxx. I read on one thread that chemo is our friend and its right, we just need to get to know it ;0) x

We are all stronger than we think ;0)
Member

Re: Anyone due to start chemo April 14??

I am starting to think that I am being a bit optimistic about working full time but I am just going to try and keep an open mind and see how it goes. That's a real shame about your sick pay, s if you don't have enough to worry about, I think MacmIllian can help with money worries. I get full pay for about 12 weeks so will have a bit of a buffer if I do need to be off. My Consultant didn't really comment when I said I want to work fulltime, he just said see how it goes. I just Googled cannulas and PICC lines in between replies, I don't think that was the best idea; I just envisioned it going in the back of my hand at least there will be no surprises now !

Be strong, we can do this xx
Member

Re: Anyone due to start chemo April 14??

Hi Girls, Iam one of the Awsome April Angels who started chemo 2/4 last year. Chemo is definately doable, listen to your bodies and yes drink plenty water in the first few days. Take all your anti sick meds whether you feel sick or not as if you leave it till you do then it's too late, ginger biscuits help too. Don't suffer in silence ask for more meds if you feel unwell, hopefully most of you will get through it without too much side effects. Just ask any of the ladies on hear and someone will have an answer. Pineapple is good for a sore mouth if you get one also ask doc for mouthwash. For low immunity days just don't put yourself at risk, I had anti bac gel all over the house! And nobody got over the doorstep until they had anti baced for risk of infection. I was on FEC-T x 6 and it wasn't nearly as bad as I thought it would be. The not knowing is the worst but was number 1 is over keep counting down. Good luck Ladies xx
Highlighted
Member

Re: Anyone due to start chemo April 14??

Hi Kirstie, welcome to the BCC forums

Along with the support you have found here our helpliners are on hand with practical and emotional support for you, lines open weekdays 9-5 and Saturdays 10-2 on 0808 800 6000

Here's a link to the BCC undergoing treatments area of the site where you will find lots more information and support ideas:

http://www.breastcancercare.org.uk/treatment

Best wishes
Lucy BCC
Member

Re: Anyone due to start chemo April 14??

Hi Suzie,
Yes I found that they are really good at just giving you enough information very clever really, I don't have to have the radiation part, I originally told I was going to but because I had to have the mastectomy they said I don't need that now.

I read that too about the injections but i don't know what they are really.

I have been advised not to work I'm a project manager but its a really busy time and we have 200+ temps in over the next few weeks so my doc said he would only be happy for me to work if I worked from home or in an office with one other person?!
Has anyone else been told this ?
I'm only getting statuary sick pay and my husband doesn't earn enough to pay the bills so money is a worry so if I can work I'd like too.....

Onwards and upwards ladies xxx
Member

Re: Anyone due to start chemo April 14??

Hi Kirstie

Nobody has given me any options with regard to cannula's etc as yet. I I have a bone scan on Thursday as I have had a sore shoulder and hip for around 6 months so they are just going to check it out (I also have arthritis in my lower back so I am not particularly (concerned). I have a bloods and consultant appointment on the 1st so I assume they will talk to me about that then. I have pretty prominent veins so don't know if that will be a factor. The hospital have been amazing and I think they give as much information as is needed at a particular time rather than overload me but I will definitely ask about this. Yes I too am having 6 sessions of FEC (every 3 weeks) and will also have radiotherapy and Tamoxifen after chemo. I have read that some ladies have needed to inject themselves for a few days after chemo, I think to help with immunity but I am not sure if that is only for certain types of chemo??? There is so much to remember and take on board