Looks like we all share the same concerns, I too am really concerned about my boys seeing me really ill. I have also had two surgeries and was not that bad afterwards, well not as bad as they expected! I initially told them I would be poorly whilst I recover and I think they think the worst is over, I keep having to gently remind them that I will be ill again (Hopefully not too bad!!)..Have any of you decided to use the coldcap? Eam28 do you know what chemo you are having? Im ready to start just waiting for my wound from haematoma to completely close, nearly there, should be starting two weeks tomorrow.
Wonder how Rosie got on, hope your ok
Take care everyone
I've tried a couple of wigs and I was also surprised at how realistic they looked. I have very thick hair which is a bit wiggy anyway, so couldn't really tell the difference!!
I visited the onc today and was surprised at the outcome and any thoughts would be appreciated.
They advised that initially my results were 1 node positive, 1 node micromet, this led to me having full clearance, fortunately no further node involvement. Today I have been advised the onc wants the micromet checking to make sure it is a micromet as the pathology report is not straight forward...they will then offer the following.
If the original report was correct I will be offered Fec, if they decide the micromet is now a macromet they will class me as two nodes positive and I will have Tac. I will find out next week and hopefully start the week after, is this treatment plan similar to anyone's. I always assumed that as I was node positive I would automatically have Tac, im going to post on chemo thread as well and see if any ladies previously treated have been advised this.
Thanks ladies xxx
Got back from the Look good, feel better event this afternoon and it was great. What a selection of goodies including Chanel, Estee Lauder, Benefit and Clinique to name but a few. It was a small group of ladies and tea and coffee was provided. We practiced various techniques with make up application and everyone was really friendly, highly recommend xx
Here's the link to the Little Princess Trust for donating hair.
Hi I have had it confirmed that I will now start chemo in April - seeing Chemo suite on Thursday and Oncologist on Friday.
Took a while to get my head around chemo as I was to have had the operation first, but due to growth and unable to rule out something on my lung and possiblity of things on my right book - Chemo it is. I think I am ready?? - Keep getting told I am brave - half of me just wants to get started and the other half of me wants to stay buried under a pillow and duvet - probably normal !!!
Will be up in Mount Vernon which looks to be quite nice
I have shoulder length hair which I am looking to get cut in readiness - looked into donating hair but does not seem straight forward - any advice or has anyone donated hair?
How is everyone feeling today?
Very good luck with your 1st chemo session on Thurs Rosie, sending loads of love.
Kirstie, I didn't book an appointment with the dentist either. I have a ridiculous dentist phobia which, after all this, you really would have thought I'd have got over! I shall pluck up the courage and (maybe) do it today. Hope you've managed to get an appointment.
Loulou, hope the look good, feel better course goes well this afternoon and looking forward to hearing all about it.
Thank you so much for the reassurance Southpool, it's really lovely to hear from people who've already been through it.
Morning Rosie, hope you are well, are you using the cold cap?
Hey Kirstie, I'm trying the coldcap but im going to have a wig ready and waiting. Im going to have my hair cut into a bob and buying a wig the same colour and style. I've also purchased a few headbands from accessorize which are lovely, these are to hide my greys if I am lucky enough to keep any hair. Im going to the look good feel better session this afternoon so will report back later to let you know how it was xx
Good luck Rosie
You will be the first one of us to get the chemo, which type are you having? Xx
I am due to start this Thursday which is only just March so I thought it made more sense to join this group as the March group are on their second round!
Went to the hairdresser today and had my hair couloured and then cut short, also puchased two sun hats, I live in Cyprus, and a head scarf. Am beginning to feel rather anxious now!!!!!
Just popping in from May Moonbeams (started chemo May 2013)- Best wishes to you all. Chemo is doable but it does eat up a chunk of your life. I don't know where I'd be without sharing with my fellow moonbeams. Now I am looking forward to going back to work with "different" but interesting hair! This time last year I was not feeling quite so confident! Good luck all!
Just noticed we are the same age. When I visit the breast care unit everyone seems to be older, I find myself scanning the room for someone of a similar age. Just shows this blighter can get anyone !!
Thankyou Amber D for posting. It is so helpful to hear from ladies who have been through it. Hope I can manage the water to flush the chemo through, 3 litres a day I think ?? Xx
Forgot to mention that I visited the dentist this week and got full check up with X rays as we will not be allowed to have work done through treatment. When I rang the receptionist said I would be waiting three weeks for a check up but when I explained she got me in within a couple of days. Also the mouthwash incase of ulcers through treatment was prescribed by dentist (nice as a freebie, got 3 bottles!!) xxxx
Im looking to work as well. Dont know if I will manage it, only time will tell. I am also lucky in that my employer is happy for me to work from home whenever I feel I can. Im booking a couple of weeks leave when I have my first chemo though just to see how things roll xx
I know we wont remember everything about each other but thought I would give a few more details about myself and diagnosis. I am 37 years, married with two boys aged 9 & 11. I was diagnosed 6th January with grade 2 (from biopsy) and unlikely to have lymph node involvement as per scan....This all changed after first surgery on the 26th January as the results showed grade to be 3 and one lymph with macro and one with micromet. I then had clearance on 6th March, results were no further nodes infected.
I did suffer from a haematoma after the initial WLE and this opened my wound which has needed to be packed every second day to ensure I heal from the inside to out. The cavity was initially 7cm when they started packing 4 weeks ago and is now down to 1.5cm, fingers crossed this will be closed in the next two weeks for chemo to start, its all im waiting for and really want to get started!!
I am attending a ' Look good , feel better' workshop on tuesday at Leeds.I dont know if anyone has been on one yet but my BCN advised me to go as they are meant to be good, I will let you know.
Ps My treatment is at Doncaster
Take care everyone xxxxxxxxx
I am also due to start chemo some time in April. I am not sure of the exact date at the moment as I had a bilateral mastectomy with immediate reconstruction just over two weeks ago and unfortunately have had ongoing problems with right implant (skin necrosis, infection,etc). I am now wearing a negative pressure dressing which will hopefully help to remedy the situation, but these problems have delayed me starting chemo. Consultant has said that it will definitely be within the next 4-6 weeks though and I have been issued all the info on FEC-T and wig prescription is ready to go.
Reading the posts from the amazing ladies on this discussion board has been invaluable to me and I am reassured that I have no need to feel alone whilst undertaking the chemo journey.
Thanks for the post Louise and I'll look forward to chatting with you all.
Lots of love
Thankyou Rollercoaster, its really good to gear from people who haven't finished the chemo. Hope time goes quick, found my lump on new years eve!! New year will never be the same again xxx
Very apprehensive but really want to get started now. I've read a lot of these pages whilst in the waiting room and now I know exactly what im dealing with I just want to crack on. Have you decided if you are using the cold cap?? I think I am going to give it a go but make sure I have my wig in place if needed. Dont know how interested you are in diet etc but quite a few ladies have limited there carb intake 2 days before and 2 days after chemo, I will also be trying that, along with water, water and more water, if my stomach can take it!!
Going to continue checking out the tips from the ladies who been there and done it
Take care xxxx