Morning everyone day 5 and the worst thing is the tiredness I am like a hamster I will be sitting in the chair and fall asleep for 30 mins at a time! Really wanted to watch Homes under the Hammer yesterday and missed the middle part completely!
Good luck everyone starting this week, take a day at a time and keep eating little and often and drink lots of soft drinks. I can only drink tea in the morning and evening no coffee its rather like being pregnant all over again. The joys of womanhood!!!! Remeber you are not alone we are all on this board because we all share the same problem -United we stand !!!!!! xxxx
Rosie, hope you are ok and your symptoms are not too bad...Hi Whirlpool, sorry to confuse but no, they have decided on fec × 6 if my second node is a micromet and 6×tac if its a macro (over 2 mm), will find out weds. I was concerned that it was just the fec when I had node involvement, but on speaking with the bcn she said its not just about node involvement but the way the cells were growing, if there was any vascular invasion, there wasn't. I suppose I will just have to trust my onc, he has over 30 years experience.
Booked for my hair cutting to shoulder length before I start the cold cap and going to visit a wig shop in Leeds next week to get some ideas incase it fails. Found a great product for roots if anyone has the dreaded grey!!
Good luck with the line tomorrow kirstie and let us know how it goes. Have you requested it as my bcn said I wouldn't be offered anything unless I had problems with my veins.
Fingers crossed my wound is closed Wednesday so I can crack on,
Take care everyone xxxx
Still ok ladies went to bed at 9.30pm last night got out 4 times to toilet but it was only the liquids that they had pumped through me the day before so that's acceptable! I am finding it best to eat little and often if you feel just a lttle possibly imaginery pang of nausea it takes it away! Try to keep your mind off side effects starting and have a goal for the day. Not cleaning the house from top to bottom though!!! I am finding puzzle books good. Hubbie is being very supportive at mo and cooking and washing up and I am making the odd cup of tea and feeding the dog. I am lucky I am 58 and my 3 children are all grown up with partners and grandchildren. I take my hat off to you all dealing with children at home and do wish you all the very best for your treatment and that it will be gentle on you. Remember ladies this is not for ever we can get through this time in our lives !!
Hope all is well... I've had one of those run away train days ( as my hubbie calls them) This is when every niggle or pain I feel in my body, even if it only lasts 2 secs, goes back to my cancer. Hope these days diminish in time as tbh I do my own head in !!!! Anyway, hope you are ok Rosie and the SE are not too bad, just think, you will be the first to finish
On the financial front my BCN has told me when I visit next week she will give me a macmillan grant form to fill in which is available to everyone. Both myself and husband work and we will still qualify, ask your BCN as any financial help is better than none.
Having nice glass of red tonight, cheers xxx
Hi everyone just to say I had my first chemo session yesterday was bricking it! It went as well and I got through the night without any side effects so just hoping I don' tget delayed sickness I can cope with any of the other symptoms. Hope this will encourage all of you April starters. I joined Apirl becaause March aer on their second round!
I was regular as clock work as well but went 6 weeks between my last periods, bcn said it was stress related.x
Looks like we all share the same concerns, I too am really concerned about my boys seeing me really ill. I have also had two surgeries and was not that bad afterwards, well not as bad as they expected! I initially told them I would be poorly whilst I recover and I think they think the worst is over, I keep having to gently remind them that I will be ill again (Hopefully not too bad!!)..Have any of you decided to use the coldcap? Eam28 do you know what chemo you are having? Im ready to start just waiting for my wound from haematoma to completely close, nearly there, should be starting two weeks tomorrow.
Wonder how Rosie got on, hope your ok
Take care everyone
I've tried a couple of wigs and I was also surprised at how realistic they looked. I have very thick hair which is a bit wiggy anyway, so couldn't really tell the difference!!
I visited the onc today and was surprised at the outcome and any thoughts would be appreciated.
They advised that initially my results were 1 node positive, 1 node micromet, this led to me having full clearance, fortunately no further node involvement. Today I have been advised the onc wants the micromet checking to make sure it is a micromet as the pathology report is not straight forward...they will then offer the following.
If the original report was correct I will be offered Fec, if they decide the micromet is now a macromet they will class me as two nodes positive and I will have Tac. I will find out next week and hopefully start the week after, is this treatment plan similar to anyone's. I always assumed that as I was node positive I would automatically have Tac, im going to post on chemo thread as well and see if any ladies previously treated have been advised this.
Thanks ladies xxx
Got back from the Look good, feel better event this afternoon and it was great. What a selection of goodies including Chanel, Estee Lauder, Benefit and Clinique to name but a few. It was a small group of ladies and tea and coffee was provided. We practiced various techniques with make up application and everyone was really friendly, highly recommend xx
Here's the link to the Little Princess Trust for donating hair.
Hi I have had it confirmed that I will now start chemo in April - seeing Chemo suite on Thursday and Oncologist on Friday.
Took a while to get my head around chemo as I was to have had the operation first, but due to growth and unable to rule out something on my lung and possiblity of things on my right book - Chemo it is. I think I am ready?? - Keep getting told I am brave - half of me just wants to get started and the other half of me wants to stay buried under a pillow and duvet - probably normal !!!
Will be up in Mount Vernon which looks to be quite nice
I have shoulder length hair which I am looking to get cut in readiness - looked into donating hair but does not seem straight forward - any advice or has anyone donated hair?
How is everyone feeling today?
Very good luck with your 1st chemo session on Thurs Rosie, sending loads of love.
Kirstie, I didn't book an appointment with the dentist either. I have a ridiculous dentist phobia which, after all this, you really would have thought I'd have got over! I shall pluck up the courage and (maybe) do it today. Hope you've managed to get an appointment.
Loulou, hope the look good, feel better course goes well this afternoon and looking forward to hearing all about it.
Thank you so much for the reassurance Southpool, it's really lovely to hear from people who've already been through it.
Morning Rosie, hope you are well, are you using the cold cap?
Hey Kirstie, I'm trying the coldcap but im going to have a wig ready and waiting. Im going to have my hair cut into a bob and buying a wig the same colour and style. I've also purchased a few headbands from accessorize which are lovely, these are to hide my greys if I am lucky enough to keep any hair. Im going to the look good feel better session this afternoon so will report back later to let you know how it was xx
Good luck Rosie
You will be the first one of us to get the chemo, which type are you having? Xx
I am due to start this Thursday which is only just March so I thought it made more sense to join this group as the March group are on their second round!
Went to the hairdresser today and had my hair couloured and then cut short, also puchased two sun hats, I live in Cyprus, and a head scarf. Am beginning to feel rather anxious now!!!!!