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Anyone due to start chemo April 14??

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Re: Anyone due to start chemo April 14??

Flowergirl my metal taste went away the next day do good luck with that. Have heartburn now ! Never had it before in terms of things to look forward to tomorrow my partner will inject me as I'm too chicken to do myself.

Recommend get the free prescription card and ask for what you want and need All the best.

I think my next call you for support will be hair loss day but wig has been ordered. Feels like a wierd journey
Member

Re: Anyone due to start chemo April 14??

Hi thanks rosie14.
Thanks for the reply. You sound like you're coping well with it.
I'm hoping it won't be too rough as I have my own business. Your tips will help me, it's good to read all these tips.

Just had strawberries and cream and didn't enjoy it like I usually would ! Sore throat starting so mouthwash here I come.

X
Community Champion

Re: Anyone due to start chemo April 14??

Hi Flowergirl14. I had my first session a week ago and I have just had nausea and tiredness and a metal taste in my mouth- gone off coffee and tea. I find if I eat little and often and drink plenty of soft drinks it helps. Good luck keep visiting this board to find out how others are doing. x
Member

Re: Anyone due to start chemo April 14??

Hi everybody. Great to meet other people going through it.
I had my first one yesterday with cold cap. I was wondering if anybody knows when you are expected to feel worse. I felt a bit sick last night and had a headache and bad nausea this morning but the anti sickness tablet sorted that out.

I'm feeling that if I stay feeling like this then I ll cope but don't want to lull myself into a false sense of security. Any help is much appreciated on what to expect x
Member

Re: Anyone due to start chemo April 14??

It won't be spreading I was worried, these little niggles do pop into your head but you have to try to put your trust in the doctors, it's hard I am a massive control freak, mine was the most aggressive and the doc said about the chemo would do its job, was just being as diplomaticas he could whilst looking at me like I was worrying about something I shouldn't be x

I have downloaded a couple of relaxation apps for free today I thought they would be good to help me sleep, have a look for a few they might help in moments when you think it's getting a bit much, this last wait to start is the hardest xx
Member

Re: Anyone due to start chemo April 14??

Hope u ok, how was tour treatment today? X
Member

Re: Anyone due to start chemo April 14??

Hi, no date yet, the on said time for healing n waiting list?? Don't know? Just tired n achy n hate to think it's spreading! X
Member

Re: Anyone due to start chemo April 14??

Thanks ladies, I just found this blog from a young girl, she gives tips on makeup application and headwear she is an alopecia sufferer. She gives cheap solutions - not all of it may be relevant to all of you but I'm sure some of it will be good - anyway thought I'd post http://eyelineher.blogspot.co.uk/search/label/video
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Mummy crow I was 3 weeks wait too, I know it feels like ages to wait and I asked doctor what if it spreads in that time mind was stage 3, he said chemo would do its job as thats the whole point of it, but its very very unlikely it would spread x I know you will have it there in the back of your mind but wildpurl is right they know their stuff and hey don't mess about, remember your on the right road, the week before you start you will find you will have lots to do and it will fly past x
Member

Re: Anyone due to start chemo April 14??

And well done kirstie it sounds as though you are doing well Smiley Happy
Member

Re: Anyone due to start chemo April 14??

Mummycrow my op was on 10th Jan, then 5 weeks to heal, then 2 weeks to get onc appt then 3 weeks to start chemo. I was on hormone treatment until 3 weeks ago though. It seems a long time but I agree with the others that all the risks are weighed up and they know what the safety margins are. Im sure you will be fine !
Community Champion

Re: Anyone due to start chemo April 14??

Oh Well done Kirstie! Its a relief to get one down. It has now been a week for me and the worst thing has been the tiredness. Just keep eating and drinking every few hours and time will pass! x
Member

Re: Anyone due to start chemo April 14??

Congrats Kirstie at least the first scary one is out the way. I considered the cold cap but decided against so hats off to you for giving it a go. This week up down for me just trying to work out pattern. Given the amazing support my partner is giving me we are both trying to rest when we need it ! Men are amazing I could not wish for more from mine.

Hope you feel better as week goes on. C
Member

Re: Anyone due to start chemo April 14??

Hi ladies,
After I had my treatment yesterday you have to wait to 2 hrs with the cold cap so be prepared. It is deffo doable I wore the cap the whole time, near the end my husband was hot so opened the window for 10mins on the quiet - the thoughtful sole and I got very cold very quickly inside and was shivering lots they got me blankets and a hot wheat pack and dried my hair but it took a while to settle, because I have seem to have a bug as well my temp spiked again so I didn't get to leave until 6pm, I think they thought about keeping me in. This has put me off using the cap again because of the extra hassle, I have antibiotics to take at home so that will all be sorted, Just shows how much a little bug can do though so stay sensible ladies, (I went to my nieces birthday on Saturday and heard one of the mums say her child was sick on Friday but had been fine since, I should have left !) I thought I would be okay lesson learnt - nothing is going to kick me off track !!!

So It did make me feel pretty sick tho last night, and pretty washed out BUT I'm fine today so was obv more to do with the bug.

My mouth was dry last night and is still dry today, I had to pop to the loo a few times too in the night because of all the fluids. I have had some melon and avocado and a banana over the course of the morning and plan of having some soup later. I feel okay, although to be honest I didn't really expect to feel much until tomorrow.

They give you plenty of pills to take home I was surprised I have 8 to take today inc antibiotics but its all good, and I took Rosie's advice and made sure I'm taking them all (as instructed), and it seems to be working x

Good luck ladies xxxx
Member

Re: Anyone due to start chemo April 14??

Mummycrow, I also had bilateral on 4th March and haven't had date for the start of my chemo yet, although I have been told it should be sometime in April.

My surgeon started me on Tamoxifen 2 weeks after the op when they realised that my wound wouldn't be healed in the near future.

I'm sure that it's right what EAM28 says though that they weigh it all up and know what is safe.

I know that it's a worry but we have to trust that they know what they are doing. 

I hope that you get a date soon too. 

Is there any particular reason why you haven't had a date yet?

xxxxxx

Member

Re: Anyone due to start chemo April 14??

Auw at least you have a date now loulou1262!Smiley Happy
Mummycrow I had my op 5wks ago & due to start chemo today - I was getting pretty anxious too! But I suppose they weigh it all up & know what's safe. Still can't help getting impatient though I know! Good luck hope you get a date soon xxx
Member

Re: Anyone due to start chemo April 14??

Hi girls, I saw the oncologist on Tues 1st n she said it will be about 3 weeks till I start chemo etc, I had a bilateral n all lymph removal on the 25th Feb, I'm worried that there is a big gap between op n treatment? Have any of you waited this long? Help, getting anxious! Angie
Member

Re: Anyone due to start chemo April 14??

Morning ladies

 

Start date for me is the 17th (fingers crossed)... thought it might be next week but surgeon wants a little longer for my wound to fully heal. 

 

Well done to all tge ladies who have started and good luck to all starting this week. 

 

Positive starts so far which is great xxxxxx

Community Champion

Re: Anyone due to start chemo April 14??

Good luck tomorrow and Wildpurl and to anyone else starting this week.! x
Member

Re: Anyone due to start chemo April 14??

Thank you rosie14 ct scan went well. Takes ages & was dying for a wee! Just hope its all clear - should find out Mon. Had arm drained for the 5th time & two fillings at the dentist so all good for tomorrow I hope!Smiley Happy
Glad to hear suzie68 & kirstie77 also books&wine? found it good today!Smiley Happy. Hope you both have a good night & don't feel it too much in the next few days.
I know what you mean tlj63 & kirstie77 - I bought a few little bottles of anti bac gel at the wkend too along with some nail strengthener & mouthwash to see if any of it helps!
I hope loulou1262 & ellie47 can start treatment along with me tomorrowSmiley Happy. I'm just hoping my bloods & arm will allow me!
Catch up soon ladies,take care xxxx
Member

Re: Anyone due to start chemo April 14??

Hi everyone.

 

 

My appointment with oncologist was cancelled yesterday, and I am booked in for a skin graft next Tuesday, so I still have no start date for my chemo yet. I too just want to get it started so it can finish quicker!

 

Good luck to everyone who is having their first session this week and well done to those who have already started for being so positive for the rest of us Smiley Happy

 

Keep well everyone Smiley Happy

Rach xxxxxxxx

 

Member

Re: Anyone due to start chemo April 14??

All was well, I am OK to go ahead on Friday *gulp*
I saw the chemo suite and the cold cap, which is a Dignicap rather than a Paxman. I feel happier now I have talked things through and know what is going to happen. I was told I would have the injections to boost white cell production, she said that this is done for everyone (at least at this hospital) to avoid delays if people get to the next cycle and have too low a white cell count, at which point they have injections but have to wait before their next cycle can start.

Good luck to everyone having their first chemo tomorrow!
Member

Re: Anyone due to start chemo April 14??

Hi just popped in from august Maisie's so chemo finished, I used the cold cap and although lost a lot of hair after first treatment it slowed down, went a lot thinner but managed not to use wig had to learn to style hair,differently but kept a lot of my hair, but anyway just something that may help with the cold, try drinking hot soup as soon as they put the cap on and take paracetamol 20 minutes before. Hope this helps and good luck
Member

Re: Anyone due to start chemo April 14??

Yeah let's hope so but making the most of it for now! How's you get in Kirste?
Community Champion

Re: Anyone due to start chemo April 14??

Well done Suzie hope all goes smoothly in the next few days!
Member

Re: Anyone due to start chemo April 14??

An yes have turned into even more of clean freak and have antibacterial pump by front door
Member

Re: Anyone due to start chemo April 14??

Hey ladies just wanted to reassure those of you that haven't started yet that it was an absolute breeze. Took less than 2 hours from start to finish and that included having obs done and seeing pharmacist for anti sickness to bring home. They gave a anti sickness pill that they said took 20 mins to work, put in the cannula and then gave anti sickness injection into it, bizarrely it gave pins and needles in my bottom, a bit like sting nettles nurse said this is normal and it only lasts for have injection. Then had the FEC and waited another 20 mins while they flushed me through with saline. I feel absolutely fine but will see what's the coming days bring. I didn't want cold cap as I don't see the point (for me) so should be bald as my hubby by the end of the month. 1 down 5 to go. 😃
Member

Re: Anyone due to start chemo April 14??

Hi wild purl, I hadn't really thought about all the pills I would have to take and I have to have an injection tomorrow to boost my immune system but she said I can do it myself to save me coming back in so that's good. We are going to be pro's soon. I have learnt so much already, especially about what not to say to someone who has it lol ! Don't worry about the cold too much as I really thought thy were going to cancel on me today, the nurse even said so but the doctor then said it would be fine.

Tlj63 I know what you mean, the waiting is the hardest part but it will be here before you know it and then you feel like you have something to do x I have been sending my husband to chemist to buy the hand sanitizer hey use in the clinic's so you are not alone, I also cleaned he fridge out yesterday and told my husband about the food storage protocol !

I need to get a head scarf even if it is for around the house I better get looking.

Other than that I got through the whole session and still have the cap on as we speak you really do get used to it !

Good luck ladies xxx we are all pretty amazing !

Community Champion

Re: Anyone due to start chemo April 14??

Wildpurl -Hope all went well with the chemo sister and that you are able to start on Friday the sooner it starts the sooner it will finish! x
Member

Re: Anyone due to start chemo April 14??

Hope everyone is feeling chipper this morning. My hair cut seemed to take hours yesterday, but I'm quite pleased with end result and have had a few complements, so quite happy. I wish my chemo was starting today, just want to get going. I'm not the most patient person at the best of times.
Is everyone becoming neurotic about cleanliness? I'm making my kids wash their hands when they come home from school and I haven't even started the chemo yet! I think I will have to invest in industrial quantities of hand cream to stop my hands falling apart if I keep washing them at this rate.
My head scarf parcel still hasn't arrived, hoping today will be the day or I will be getting worried it's got lost in the post.
It's really comforting to hear that everyone is coping so far. We can do this. Role on August( she says impatiently)!
Member

Re: Anyone due to start chemo April 14??

Morning all!
Glad you are starting to feel better Rosie
Good luck to all who are starting today. I have had ECG and am due to meet chemo sister this afternoon. I have the very tail end of a cold, it gets a bit better every day but is still there, so I am a bit worried I will not be able to start on Friday, but we shall see.
Loulou, hope your appointment with oncologist goes well and you feel happy with the treatment that is decided on
Wildpurl x
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Re: Anyone due to start chemo April 14??

Well after a bit of a false start my bloods had dropped to 2.4 it needs to be 3 there was some backwards and forwards to see if it can go ahead and I'm hooked up to he water and the cold cap is on ! It is freezing ! Really cold, I know someone who used this and kept most of her hair, I'm not really sure I am that bothered at this stage, if you are having the old cap take a headband/sweatband for your hairline it will help. 15 mins in and you get used to the temperature a little but when it first goes on it is a shock !

So far I have had some emend anti sickness, four steroids, and a yellow anti sickness pill !

Member

Re: Anyone due to start chemo April 14??

All the best Kirstie. I wish I had the line in as the candua (sp) in hand really hurt

Yes 1 down 5 to go. Re all the gear hope you left space for the drugs you will get today. NB I wrote on the boxes to make sure got it right. Be an old hand at it soon.
Community Champion

Re: Anyone due to start chemo April 14??

Hope all goes well keep busy! x
Member

Re: Anyone due to start chemo April 14??

Well got through chemo no 1. Isn't it odd it was a lovely room and not busy but funny how although in same boat my partner and I sat together and while made eye contact didn't really speak to anyone. Think as I get to be a regular this will change and I feel comfortable speaking to others. Might look to suggest a reading group - as in general life never have time for this

Drugs I went to the doctor today to get a number of things on prescription I have read in forums that could be useful etc. He did not seem to keen Q can I request things from the oncologist when I have more symptoms ?

Had wig referral also yesterday think my partner and I are def past the no makeup stage lol

Best to all
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Re: Anyone due to start chemo April 14??

Hi everyone, sorry only just getting to reply, didn't get home til 10pm last night, had the line fitted all went well it was no problem at all, went in well and ECG all fine. I had a temp and low blood pressure though so they tested my blood as well and I had to wait looks like i did have a bug rather than me getting myself into a state which is good as hat makes me feel better somehow lol, as my appointment meant wasn't until 6pm in the first place it, I was there late with all the faffing.

So as I write this I am sat in the hospital waiting to be hooked up for my first dose, so by the end of today here will only be five more to go ! I have just tried on the paxman and it doesn't look as big and bulky as I nought but its not been turned on yet lol. I have brought snacks, a laptop, kindle, scarfs, I think they think I'm moving in - I was in the brownies .... Lol maybe next time I will bring less !

Good luck to everyone who is starting chemo today i am thinking of you and well done Rosie you are rocking this so far, we plan to move abroad one day I'm feeling Cyprus envy ;0) xx

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Re: Anyone due to start chemo April 14??

Hi ellie47

 

How did you get on, can you start tomorrow?  I am going for my wound check today to see if I can start, fingers crossed xxx

Member

Re: Anyone due to start chemo April 14??

Fantastic rosie, well done, Smiley Happy onwards and upwards hopefully until the next round xxxxx

Member

Re: Anyone due to start chemo April 14??

Good luck suzie, thinking of you, as soon as your well enough,  let us know how you get on..... ((((hug)))) xxx

Member

Re: Anyone due to start chemo April 14??

Thanks Rosie I'm still feeling quite chilled about it all. Glad you're feeling better. Xxx
Community Champion

Re: Anyone due to start chemo April 14??

Day 6 feeling much more human, eating very well, good appetitie, thought I would put on weight not working, walking dog etc but thank goodness haven't done- if anything I have lost a pound! Good luck to all you ladies starting chemo today and tomorrow! xxx

Community Champion

Re: Anyone due to start chemo April 14??

Good luck Tlj63 with chemo on Friday stay positive. The scarves sound exciting! x
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Community Champion

Re: Anyone due to start chemo April 14??

Good luck Eam28 thinking of you today stay positive! x
Community Champion

Re: Anyone due to start chemo April 14??

Good luck Suzie stay positive you are right to think of the chemo zapping the cancer cells. I had a cannula went in no probs. Be thinking of you! x
Member

Re: Anyone due to start chemo April 14??

Yep defo agree suzie68 - that's exactly how I'm feeling about it all too! One of the nurses said today that ive been very positive & seem to be taking it all in my stride - what else can you do?! & like u say all the treatment is to throw at it all & zap it bloomin away!!
Hey Ellie 47,I start my chemo Thur too. I've had a 5wk hold up as my harm has been filling up with fluid so keeps needing to be drained but its not infected so should be able to go ahead now & we were also waiting to get fertility advice xxx
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Re: Anyone due to start chemo April 14??

Hi all, I'm due to start Thursday 3/4, have pre assessment tomorrow and also wound check as it's not fully healed yet. Bit worried because I've had infection in site of gland removal under arm and it's taken 4 weeks to get clear and 3 lots of antibiotics!! Anyone had similar problems? I love everyone's positivity.....just my style ladies.....wait to hear from you all and thanks in advance.
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Re: Anyone due to start chemo April 14??

Hey all, I had my bone scan results and my bloods done this morning and all good to go for chemo tomorrow. Showed me the wards and looks as I expected Im feeling really chilled about it all at the moment and am just going to imagine that chemo zapping any bad cells rather than focus on the other stuff. Quite honestly I am looking forward to a few days off sick!
Sounds like you are doing well Rosie, that's such great news. Kirstie did you get you line put in? I asked today and will just have cannula in hand unless there is a problem which is what I had previously imagined.
Eam,rose and nibbles sound great, I am about to have a glass of sauvignon since Im sure I wont fancy one for a while and nobody has told me not to, Lou hope your appoint goes well tomorrow. Ti63 goods luck for Friday.
We can do this ladies, we are strong amazing women who are on a unique journey, ok its not the one anyone would have picked but a journey all the same. This time next month I could behalf a stone lighter, have an extra 45 mins every morning because I wont have to worry about my hair and my eczema could have cleared up and that's what Im gonna focus on. xxxx
Community Champion

Re: Anyone due to start chemo April 14??

We have lived in Cyprus for 5 years! The sun does help although of course won't be able to do any lying about in the sun this year! Good luck with your line Kirstie 77!
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Re: Anyone due to start chemo April 14??

Hi all! Haven't had chance to come on here! We've all got so many appointments & things to get done before chemo haven't we?!
Thanks loulou1262 my bcn has never mentioned any kind of help so I'll ask her & was going to ring MacMillan as well soon - another job on the list! Do you know if you can go ahead with chemo yet?
Auw you sound like your doing really well rosie14!Smiley Happy. I was really tired after both wle's so god knows what I'm going to be like! I expectv the nice weather in Cyprus is helping? & hopefully your grandchildren will keep you entertainedSmiley Happy
Hope you're feeling better kirstie77? So did they put a line in today? I went to have mine put in and it wouldn't go in Smiley Sad they tried 4 times so think I'm going to be pretty bruised later! So they are going to put a canula in on Thur and then hopefully get a line in ready for 2nd dose. So just had zoladex injection and bloods taken today. The nearest lgfb session is 2hrs drive away from me so think I'll be giving it a miss too! Yes I don't think I'll read mummy's lump very often - it makes it all 'real' especially as youre reading it out loud! My little girl isn't old enough to take it all in & ask questions anyway. The drunken night is needed! We need to let our hair down (whilst we still can!). My friend came round sat night for a culpa & a catch up which turned into most of my friends - we hit the rose,nibbles & had a giggleSmiley Happy much needed! Good luck for tomorrowSmiley Happy & suzie68Smiley Happy
XxX
Member

Re: Anyone due to start chemo April 14??

Hi Rosie,

I love Cyprus it's beautiful, have you lived there long? Let me know if there is anything I can do to help with the jargon, we get that much info thrown at us it's hard to keep track.

I think your right and I may be getting myself in a bit of a panic, I'm not the most patient of people so all this waiting is hard, right time to sort myself out !

I will let you know how I get on with my line, is everyone having the cannula ?
Community Champion

Re: Anyone due to start chemo April 14??

My wound wasn't completely healed and they started me, so hopefully you will be ok.I had a problem after the biopsy which held me up a week. I had the biopsy March 13th and chemo started on March 27th.