Ashley, glad you're feeling so well after your chemo. Loulou, hope things are well with you. EAM I hope I can be as brave as you about shaving off my hair, which is now starting to fall out. I'm hoping it will last until Sunday so that my first outing of the wig isn't at my grandson's birthday party.
I'm due my next chemo on Thursday. I'm hoping it will be less eventful and involve less unscheduled plans to the hospital. Having spend most of Monday there because of a blood clot I then spent part of Thursday night there because my arm swelled up and a couple of fingers went blue. I thought it was due to the clot and that they would have to take out the PIC line but no, it's something completely different, an infection in the skin - cellulitis . So now on tablets. Husband has done another chart! And my arm is decorated with black felt tip marking the original extent of the swelling. Looks like a kid has drawn on me while I was asleep.
But managing to do nice things. Went to the theatre last night to see a very funny play. Eldest daughter and partner down for the weekend for grandson's party. Grandchildren coming across today - I'll probably have to go to bed after that!
Finally, first time around I had the injections to boost the white cell count for 7 days. the oncologist told me that they used to give a single injection but it was too expensive. Since I am having to have daily injections of blood thinner I really baulk at having to have these daily as well and am wondering if I can persuade him to put me on the single one. Are you all having the daily injections or is anyone lucky enough only to have to one.
hi ladies, glad everything went well for you loulou and you feel ok. have fun at the museum suzie and out with your friends.
EAM - you are a very strong lady, you are inspiring me everyday and reminding me that although what we are going through is horrible it isnt all that bad. I am glad your daughter didnt react at all, that is my biggest fear that my son will almost reject me, he said a few things at the start about not cuddling me or sitting next to me incase he catches cancer, I know they dont understand and I have fully ecplained but it is still hard.
well touch wood I still feel fine, had chemo weds, went to watch my boy swimming yesterday and took him to football training and mcdonalds treat for dinner last night. I have got to wait in today for district nurse to come do my injections, hoping she comes early so we can get out whilst I still feel well.
hope everyone has the best easter weekend they can.
Just popped in to let you know all went ok yesterday, very tired in afternoon but steroids kept me awake until 8pm. I went to bed and only woke the once. Face is very flushed and had a severe hot flush in the night. This morning a few stabbing pains in random places but not been sick yet....although I feel queasy. Hope everyone else is ok and ill be back on later xxxxxxx
Kirstie. I have quite a dry face - and an unsightly patch of what seems to be excema, which I have never suffered from, on my cheek. Wonderful. E45 lotion is helping with the dryness. My lips are also very dry and sore but got some great stuff from the chemist (Cymex) which healed the blisters and seems to be preventing any more forming. Just wish I wasn't so thirsty all the time; I seem to be drinking constantly. Anyone else having this?
Kirstie. After all you have been through I am sorry that your husband is not being supportive and frankly being a bit of a s**t. I know it is tough for them too and hope his behaviour stems from him struggling to come to terms with what is happening to you. Would he be willing to talk to a counsellor about it or has the 'word' your sister had with him brought about any change?
Sorry, think I posted my last message to the wrong person, it was intended for Books and Wine. Also forgot to say that I don't use a sleeve cover other than a stretchy bandage and it seems OK.
Ashley. I have the waterproof sleeve and it is brilliant. You can shower without worrying about getting the dressing wet and you can even bath - keeping your arm out of the water of course. It's a bit tricky to put on over the PIC line at first, needed my husband to help me but now can usually manage it.
How do you all manage to reply to so many messages in one. I have only been able to keep a couple in my head at once.
Lou-lou, they told me with breakfast and lunch but no later otherwise I'd be up all night (which I was anyway so presumably if I'd taken them later I'd have been out dancing.
Kirstie; you must be so relieved to be home. Let's hope next round is problem-free - well apart from the unavoidable side effects. It's good to know that your clot cleared with medication. I'm keeping my fingers crossed.
I start tomorrow with TAC x6, very nervous today. I have taken my steroid this morning and need to take the others at nine tonight, so probably not much sleep. Hope I manage ok, will let you know xxxx
After reading your post where you mention about how to explain things to your young grandchildren, BCC have a publication especially aimed at the little ones to help them understand, it's called 'Mummy's Lump' but I am sure you could adapt it to fit a grandparent. I have put you the link below, you can order it free of charge on line and a copy will be posted out to you. I hope you find it helpful, it's a lovely little book.
I'm a newbie to the forums. I start my chemo tomorrow morning, can't wait to get the first session over with tbh.
I was just wondering if any of you who have already started or have been through chemo previously have any tips for what to take with me, apart from reading materials, etc.?
I'll be trying the cold cap just to see if it works for me and I've already been told that they will supply the conditioner and towels, but I wondered if a little fleecy jacket or cardigan might be needed if i start to feel cold with the icy cap on my head.
Any little tips or experiences you can relate would be very much appreciated!
Thank you! : )
So pleased to hear you are home and feeling OK kirstie!!! And that you are feeling confident they have adjusted things for your next dose. I haven't lost any hair yet (Day 12) - well no more than normal anyway - I'm not expecting to this cycle but even with the cold cap I am expecting to lose some in the second cycle.
Joan glad you are doing OK, bummer about the clot but the main thing is they are on the case and you are being looked after.
Loulou, glad your wound has healed and you have a definite start date now, I would call the hotline about the steroids if I were you, I think it's pretty crucial.
Today I went to my Look Good Feel Better course, which was most enjoyable and interesting. I came away with a lot of very nice products and lots of info about how to make up - of course I know how to make up, but they gave tips about how to cope with some of the effects of chemo such as being flushed, losing eyebrows and eyelashes etc, which I didn't know before. They also gave guidance on extra hygiene measures while having treatment and using makeup which I thought was a good idea. I am happy with the look I achieved and it has boosted my morale a bit in that I have not been wearing makeup while at home, and now I think I might while I'm feeling good.
Just as an example, I usually have my eyelashes tinted and don't bother with mascara, but of course they have gone all pale now and I can't have them done. I felt so much better with mascara on that I thought - I should wear mascara until I can dye my eyelashes again. Obvious really but I just hadn't realised that it was making me feel drab.
Good news, start thursday, wound healed.... 6 rounds of Tac not Tax which I think is a bit unusual?? Been round the chemo suite and looks ok. I have been sent home with steroids for tomorrow but cant remember the times she said to take them 😕
Well, it was all going well. Had a lovely day on Sunday over on the Gower peninsula. Walked on a beautiful beach then had a delightful lunch (and managed to eat all of it) overlooking the bay. Knackered after it but worth it. Was looking forward to a week with only one, minor, medical appt and being able to get back to doing some work (I work from home). But Monday morning my left arm was swollen and red. Had to rush into the BRI where they diagnosed a blood clot triggered by the PICC line So now have to have daily injections of a blood thinning drug! Hey-ho. I had wimped out from giving myself other injections but having to go to the health centre every day at the same time for the next 16 weeks would just be too constraining. So plucked up my courage and said I would do them myself. And in fact it's OK although my husband is fussing about making sure I Inject in a different place each time and has drawn a diagram of my tum to record each one. If allowed I think he would like to use a biro and draw little 'xes' on me to mark each site, along with the date! ! Never realised before that at some point I would be grateful I have ample flab in that area!
Hoping my hair doesn't fall out before my grandson's birthday party on Sunday. Are there any other grannies out there?