Booklovertoo. I became allergic to the first type of plaster and developed blisters. Now changed to a different type and all OK so far. Thanks for looking up the recipe for GoCake. This time I may need it.
Booksand wine. re scalp care I was given a very useful little booklet by the hospital information centre produced by an organisation called Cancer Hair Care. It's called 'the helpful little directory of hair loss products, tips and services' which does exactly what it promises. They have a web site www.cancerhaircare.co.uk
Ashley, so sorry you are having such a rough time. I hope you feel better soon.
Rosie, I'm Having to rush to the loo to wee every half hour, for not much output, but fortunately so far made it on time.
Suzie. My hospital does routinely give injections to boost the white cell count. Every day for 7 days. I'm on Zarzio.
Last time around I felt reasonably OK for the first couple of days but this time absolutely knackered. Spent virtually whole day in bed feeling very wobbly. Now managed to have something to eat and feel a bit better, hence able to get on computer. Unfortunately I can't get wireless in my bedroom and find it too irritating on the phone. But now, at last, worked out how I can reply and see all the messages at the same time. So don't have to fire off separate replies.
I have had to result to a headscarf and a sun hat as my hair is now very thin and has bald patches. Felt a bit silly going in the supermarket with a sunhat on felt like a tourist! The only good thing is I can hide under it if I see anyone that I don't wish to meet!!!
Glad all went for you Wildpurl. I know what you mean about just getting back to feeling normal and then bang. I felt pysically sick when I saw the bottle of red poison!
never mind we will be fine by Tuesday! I have 5 injections to do also.I feel like a junky!
Hope everyone manages to sleep well! x
Im day 8 now and feeling much more my old self, really struggled the first few days with nausea and fatigue. Tbh I slept on and off for the first 3 days...I didnt have any bone pain from the injection in my tummy on the second day and was only told to do it once, is anyone doing it daily. I am now on two separate courses of antibiotics, is that the same for everyone? Rosie I think your on the same regime as me, TAC ? You are having yours every fortnight though while mine is 3 weekly. Having a spoonful of manuka honey every day to help with blood count and mouth issues, was advised to try and swill it round my mouth.
Booksandwine. My hairdresser has trimmed and thinned my wig so it now looks much more like my normal cut.
Ashley and Suzie, thanks for the suggestions about the scalp cap. I think I was given something like that with the wig so will try it. But tempted to go au natural for the chemo this afternoon.
Glad you're back home safely Rosie and hope things continue going well Kirsty.
Took the plunge today and had my hair clipped (a number 3 I'm told) at the hairdresser's. At the time I was pleasantly surprised, although I did feel I needed a nose stud and at least one tattoo to complete the look. Hairdresser also trimmed the wig and again I was pleasantly surprised; looks muych less like a teacosy. Like Eam I funked going for something very different so it's as near to my normal hairstyle as possible, but greyer. They didn't do streaky. Took it for it's first outing, lunch with friends and they were very complimentary. Hopefully they weren't just being nice. I wore it for several hours but did find it very itchy and wondered whether I would have to have a Mo Mowlam moment and whip it off to have a good scratch. Managed to resist. But I think my (hopefully) surreptious scratching resulted in it being pushed a bit back off my forehead so will need to be careful. Anyone any hints about helping the itching? Next chemo tomorrow. going to the supermarket in the morning to get in a supply of plain crackers, chicken soup and bananas which is pretty much what I lived on for the first few days. Sod's law of course I will probably develop a yen for Marmite, which I usually hate or other strange things.
Good luck to everyone having chemo this week. Bumblegirl's mum. Good to hear you're now reading the posts on the forum yourself. Hope to hear directly from you soon. Sorry to hear about your infection in the PIC line; hope it is now under control.
Hi Booklovertoo. I find soft ready to eat dry figs very good. Also fruit tea which contains Hibiscus. Just been on the thread 10 top tips for chemo and there are other suggestions there including a Go Cake! Hope something will work for you.
Dear Wildpurl. I'm at the same stage as you; round two on Thursday. Hair dramatically thinning but still just about covering my scalp. Wore a cap in bed last night (made out of cotton jersey so quite comfortable) because hairs kept falling on my face. That was quite successful. I hadn't expected hair loss to make my head sore (it's where I lie on it). Anyone else had this.
Those of you who have already taken action and cut it all off. Did you shave your head (ie with a razor) or use clippers? My husband is really worried about doing it in case he cuts my head. (Frankly I'm a a bit bothered about that too given the cuts he seems to give himself.
Dear Booklover. I've had a PIC line for over two weeks now but have never been aware of it in my chest. I think I would give your hospital a ring just to check it out. I have contacted my oncology centre several times when I have not been sure whether I should be worried about something and have always found them very helpful; reassuring when it's nothing; getting me to come in when it's not.
You have no need to feel old; I'm 66!