Hi everyone I was just typing a long text and it disappeared!
I am back home after round 4! It was all rather stressful as the oncologist had failed to tell us to go on Wednesday this week as he was leaving for UK in the afternoon untilnext week! Fortunately he had left the prescription for me. The blood nurse was a different one and she couldn't get the canular in my vein she said why not and pulled it out and the needle was bent! I then had to endure her going into another vein!!! If I see her again I shall run a mile.
Sent the hospital meals away the thought of them maked nme feel unwell. Took a sandwich and yogurt and melon for lunch and later had the cake that came round with the tea and then sent hubbie to shop for a bag of crisps! Oh dear not very healthy but sometimes you need to eat what you fancy. I have just eaten a bowl of past and made hubbie stop and by some fish for tonight! Glad to hear everyone is coping with hairloss I have got quite used to my headscarves now. Positve for the day is is saves on shampoo and conditoner!!
Enjoy your good days, I am expecting to wilt later this afternoon. Oh I nearly forgot to tell you. Things hadn't been going to well bowel wise toward the end of the second week so I stuffed 2 apricots and 2 prunes in my mouth before I went to the hospital. I don't know which felt the most uncomfortable not being able to go or a churning stomach? x
Hi Jackie09 sorry to hear you are so sad. I have the opposite problem, I live 30 doors away from my 86 year old mother and I have to keep her at bay with a cattle prod! I am not good with the (s)mothering but I know what its like to be far away from family when you need them. My husband is a cockney and we lived in Peckham ( its like Beirut but with a cockney accent or our huge council tower blocks were) This is not the lovely Old London Town of Hugh Grant portrayal. Anyway I had our son and he was a MONSTER he never slept and continually cried. In the end the Drs wanted to sedate him because he only slept 4 HOURS A DAY!!! I am from lovely Notts/Derbys borders with the Peak District 40 minutes away. Culture Shock or what? The day my Mum left me alone with my monster baby to come back North I cried for days.
Now I cry because my monster baby does not see daylight, he is welded to his bed apart from when he is working! But it all passes and nothing is forever. Positive you have birthday tomorrow and must be treated like the balding princess you are! Then when you see you see Mum again you will be extactic and you have over come your injection phobia - triple whammy !
Just a thought, how about we make a deal for every upsetting, totallying sh*tty thing that we post about our situation you have to post one good thing? It really does not have to be anything major just one good thing like " finally no need to remove hair from shower trap" or "husband/partner significant other or friend cooked sandwiches for tea" ( this is my husband's speciality) or " read fab book" Just because we need that light at the end of the tunnel and I know that I am new to this and I am only at the start but we need to believe there is an end and it's the happy ending that we all crave and deserve. Now, what shall we insomniacs talk about? Bloomin FEC I am turning into Pollyanna!
Welcome to the "What the FEC" club! Honestly hon dont worry about your hair and baldness really it's inevitable so we cant waste time/energy on it. However, I have never been blessed with beautiful flowing locks so for me this may be a blessing as they say your hair comes back possibly different colour, thicker and with chemo curl can't bloomin wait! Cancer is a little extreme to get the hair I have always wanted but it is a big plus in a situation that is a bit short on laughs.
I am only having FEC as a precaution as the grade/size of cancer they found was contained in the breast with no nodes involved. I had a masectomy and that went well and my husband and I find it hysterical that when I stand side ways facing a mirror its like a vanishing act! Now you see "tit" now you dont!
Hubby works away and I am left to the tender mercies of 2 x teenage children. I have told them this is a practice for old age ( I am 49) and if they fail its goodbye inheritance! They are very good but obviously anxious my son calls me the "one tit wonder" which kind of sums it up.
I am enjoying time at home and a computer was put in today for me by work and linked up to them. Prior to this little "FEC" up I could run a home and a job and basically be wonder woman! Today I feel like the 100 year old woman, the hair is falling out and I did some work today - about 2 hours - and felt like I had run a marathon. I used to type quotes at 50 words a minute it took me an hour to do 300 words, I kept going over and over it and losing my thread. Honestly it was pathetic! BUT we are all here to tell our stories and maybe as little as only 10 years ago our prognosis was not as good So chin up get your scarve on and let's have as many good days as we can possibly can. My scarves make me look like a pirate and even with all this going on I would still give Johnny Depp house room!
I had to go back to hospital yesterday when I told them I had been having a stitch like pain/niggle for the last week in the opposite side. Very nervous but after various checks inc a water test it was confirmed I have a upper urinary tract infection..... back on anti b's but my runaway brain is relieved. I have been told to be more positive, think I may need some help with it so going to purchase 'Emotional support through breast cancer' a book a lot of ladies have recommended on this site.
Funnily enough I mentioned the clothes/sick thing to a nurse yesterday and she gave me the technical term for it, I had it after pregnancy as well as I was that sick then as well. She did say I can ask for the best stuff, the name began with an A but think its the same as emend, I think emend is just one manufacturers name. I was told I woukd take it one in the morning and evening for 3 days after treatment.
I did the shave last night, now a grade 1 although patchy as where its missing totally is visible, I cried but feel much better than the clumps falling everywhere. Was scared what the kids would say but they have been fine. I have a wig and a couple of scarves for indoors, sleepcaps for bed. Im a fussy customer, need matching nighties to match the sleepcaps!!! My hubbie just smiles at me and looks as into say shes crackers but I love her !!
Well next round Friday so start the dreaded steroids tomorrow..... hate them, but at least no coldcap.
Kirstie hope you are feeling better after your fall, just brings every emotion to the surface, hope any pain has eased.